Early study found it had high accuracy, but experts say it won't replace colonoscopy anytime soon
by janieg on Thu Jun 07, 2012 04:23 PM
My Dad had surgery to remove most of his tumor 3 weeks ago, and he is in a very bad way. I'm not sure what is normal (or if any of this is?), but he is only slightly responsive - can squeeze a hand to answer something, and can open his eyes if we ask him to. He hears everything, but is sleeping ALL THE TIME. After 18 days in ICU, he is now in a rehab hospital, and the physical therapists cannot even get him to wake up long enough to work with him. Has anyone experienced this type of lethargy associated with glioblastoma before? I am so afraid this is the way he will be indefinitely... any advice or ideas of why this might be happening?
by Fight56 on Thu Jun 07, 2012 06:25 PM
My mum had her craniotomy on May 23, she is also very lethargic, but not to the extent of your dad's. Is he on decadron, or was he prior to surgery. Decadron, in combo with the surgery, can make you really lethargic. It sounds like he had complications if he was in ICU for 18 days? At least he is in a rehab hospital now. My mum is now hemiplegic on her left side, and we have not yet started rehab. It takes time for the brain to heal. Is she seeing a therapist for neurorehabilitation? I am looking into this, as I think it might be better for my mum than regular physical therapy.
by huxley2006 on Thu Jun 07, 2012 06:29 PM
Is your father on Dex. Did they anticipate neurological damage from the surgery? Did they remove all or most of the tumor?
Some folks are up and around in 24hrs other don't do so well. It’s hard to predict but age, general health, tumor location and total % removed all play major roles when recovering.
by janieg on Thu Jun 07, 2012 11:55 PM
by huxley2006 on Fri Jun 08, 2012 10:33 AM
From what you said it sounds like he should be on at least a small dosage of Dex. The drug is definitely a double edge sword but it does work well in reducing swelling and can provide relief of symptoms associated with swelling. There is also Avastin, which can help with symptoms and potentially slow the growth of the existing tumor.
Over time damage caused by the surgey can heal to a certain extent. The brain is fairly resilient.
You can also consider certain antideypresseants or anti anxiety medicine. This diagnosis can be very traumatic and these sorts of medication can help.
by RobinMB on Wed Jul 11, 2012 02:03 AM
Just a note! Please check the gene therapy clinical trial for exclusions. Sometimes you are unable to receive the therapy after you have been on chemo/radiation. All of the trials contain very specific criteria. Hope this helps!!!
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