Partners even more likely than survivors to experience fear and worry over long term, study finds
by dmgilly on Fri Jun 08, 2012 07:06 PM
i just got the report on my latest CT Scan that i have a enlarged lymph nodes in the lungs and several in the stomach. i am a 14 year kidney cancer survivor and my right kidney is functioning well. i had a rad lft neph with rib resection along with losing my mother to kidney cancer 11 months prior to my diagnoses. i feel fine, but am wondering if anyone has had this show up after this long? waiting on the oncologist to schedule an appt. i am very nervous about this and an information would be helpful.
by tommyv91 on Mon Jun 11, 2012 04:37 AM
Unfortunately, it is the nature of the beast, in can remain dormant for years and then raise it ugly head. I have been fighting this beast (RMRCC) for 22 years, in Feb of 2011I I received almost the same diagnosis, CT showed several “unknown artifacts” in the Subclavian, Hilar lymph nodes and in the left adrenal gland. Just love the radiologist’s descriptions don’t you”.
My Onc sent me for a Tranesophageal Endoscopic Ultrasound-guided Fine-needle Aspiration, the result of the tissue analysis was consistent with metastasis of renal cell carcinoma in 4 to 6 Subclavian, Hilar lymph nodes.
Additionally I had a CT Guided Fine-needle Aspiration of left adrenal gland the result was tissue consistent with metastasis of renal cell carcinoma.
When we got the results I met with my Onc after a discussion we decided that the best action was to seek a Thoracic surgeon’s opinion as to the feasibility of surgery for the Subclavian, Hilar lymph nodes. Also a Urologist as to the best coarse for the Adrenal tumor (I had had a radical right Nephrectomy which included the right adrenal gland.
After examining the CT’s and reviewing the rest of the data The Thoracic surgeon’s opinion (two of them) was that it was too dangerous to surgically remove the lymph nodes.
My initial reaction was looks like I finally lost.
One of the Thoracic surgeon’s suggested that I contact a Radiology Oncologist that was familiar with “Cyber-Knife” technology which is NOT CONSIDERED AS A USUAL PROCEDURE FOR RCC. After several diagnostic procedures, I underwent 14 Cyber-Knife treatments 4 for the adrenal and 10 for the Subclavian, Hilar lymph nodes.
The last 3 ct scans have showed no visible tumors of the Subclavian, Hilar lymph nodes and only scar tissue verified by another Fine-needle Aspiration of left adrenal gland. So it looks like the Holy Spirit is not done with me.
I also take Sutent.
by MamaB on Tue Jun 12, 2012 05:17 AM
Congrats to both of you!
Wow! Fourteen years and twenty two years! I think that is really an awesome accomplishment! That certainly gives the rest of us something to look forward to!
I was diagnosed with Stage IV RCC, mets to lungs in June of 2007. The Oncologist told me it was uncureable and inoperable; a short while later, I was told to get my affairs in order. I was on Nexavar for 8 weeks and then put on Sutent 50 mg. for two and a half years. God intervened in my case, the Oncologist I was seeing lost his job; the one that replaced him, came in demanding to know why I had not had surgery?!?!?! I was sent to the UWMC in Seattle; my left kidney was removed and I was out of the hospital in three days! That was a little over two years ago; I am taking no chemo, and my tests have all come back clean except for this last one. They saw a spot in my lung; too tiny to test. We will watch it and re-test in six months.
Prayer and my faith in God brought me through some very rough times and I give God all the praise.
I got to see my little 6 year old granddaughter graduate from Kindergarten the other night....I considered it such a blessing! When she was just an infant, I never thought I would live long enough to see any of her accomplishments in life! God is so good!
I pray you will both stay strong, and fight off anything that might show up on your scans! Keep hope and faith for brighter days ahead!
Thank you both for writing, it was very inspirational to me!
Prayers and blessings,
by MamaB on Tue Jul 24, 2012 03:44 PM
Hi, How are you? I haven't heard from you since you had the apppointment with the Oncologist. What did he say and what approach did he take for your treatment?
That was really a bummer for the cancer to raise it's ugly head after 14 years!
I pray things are going good for you.
by jeanabenna on Sun Aug 05, 2012 05:59 PM
stay strong, and yes God is so good. Prayers really work.
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