by andy73 on Sun Jun 10, 2012 11:53 PM
My grandmother was diagnosed with AL primary Amyloidosis this week. Looking for others dealing with this as well
by andongp on Tue Jun 12, 2012 06:45 AM
Here's one site you can find fellow Amyloidosis patients for support: Amyloidosis Support Network.
It is one of 30+ rare disease patient support communities powered by Ben's Friends, a global organization committed to raising awareness on rare diseases and offering peer support.
If you suffer from Amy or any other rare disease, why not reach out nad see how Ben's Friends can be of help. The site lists the 30+ communities we serve.
Join the group to enjoy the benefits of being part of a family sincerely dedicated to helping one another.
by andongp on Tue Jun 12, 2012 06:48 AM
Sorry, the links should read:
by andy73 on Tue Jun 12, 2012 12:16 PM
Another group is www.amyloidosissupport.com
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