by searchingsuz on Fri Jun 15, 2012 10:04 PM
Does anyone have any idea as to how this could happen? I have contacted Gliogene to be a part of their study. No response yet.
by siblingof on Sat Jun 16, 2012 12:43 AM
by sluss910 on Sat Jun 16, 2012 03:02 AM
Curious as to what the relationship is between the 3 family members if you don't mind sharing.
by passionfish on Sat Jun 16, 2012 03:13 AM
Sadly enough, I knew a bit about GBM before my sister was diagnosed with it. A close family friend had a first cousin with GBM and her two brothers did as well..Joey was dx at the age of 27, Janet at 34 and Jesse at 46....They grew up on a farm in New Hampshire and we always wondered if it might be chemicals that had contaminated the drinking water...A tragedy for sure...It was devastating loosing my sister to it , I can`t imagine the pain of loosing three siblings ;-(
Hope this helped...Adonna sister of Marilyn dx GBM 7/27/09 died 12/21/09
by searchingsuz on Sat Jun 16, 2012 02:47 PM
Thank you for your detailed message. I have looked at the conditions that you have mentioned. I have found on Gliogene that there are several families with two or more members cursed with this disease. Yes, it is rare. Trying to find answers for the next generation. I want to leave them with as much information that I can find.
by siblingof on Sat Jun 16, 2012 03:27 PM
by bill1958 on Thu Jun 21, 2012 01:46 AM
My wife (59 years old) was diagnosed with GBM IV 10/18/11. Her younger brother died of the same thing 2 1/2 years ago. I know it is very rare to have two siblings with the same dx but we have not had the opportunity yet to persue the familial aspects of this terrible disease.
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