new diagnosis of pancreatic cancer adenocarcinoma

8 Posts | Page(s): 1 

new diagnosis of pancreatic cancer adenocarcinoma

by puddy on Sun Jun 17, 2012 01:32 PM

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have been searching for a chat room to share with others our journey. thank you for letting me in

RE: new diagnosis of pancreatic cancer adenocarcinoma

by sheann on Sun Jun 17, 2012 04:49 PM

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Welcome to the message board, i truly hope it helps you, are you a candidate for surgery. I was diagnosed last september but with mets to the liver so was unable to have surgery, november i started on a clinical trial folforinox first couple of months lots of side effects then every thing settle down, ct scan march - stablized, ct scan results last thursday - pancreatic mass shrunk 30% great news. Hope all goes well for you, my prayers are with you.

Sheann

 

RE: new diagnosis of pancreatic cancer adenocarcinoma

by Harts on Mon Jun 18, 2012 08:38 PM

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Hi. It sure does help to talk to others that are on this new journey in life. I've had pc for 18 months, with mets to my lungs and now on my diaphram. My tumors shrunk-and grew and are now stable...It's also a rollercoaster ride. Come to talk anytime, you are not alone. Karen

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

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RE: new diagnosis of pancreatic cancer adenocarcinoma

by praying4acure on Wed Jun 20, 2012 01:16 AM

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I have found this site to be a wonderful source of first hand information. My father has stage 4 PC, this place has been a God send for me at time. Welcome, but at the same time I am so sorry you had to come here....

 

RE: new diagnosis of pancreatic cancer adenocarcinoma

by puddy on Thu Jun 28, 2012 06:59 PM

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i also started my journey in september. surgery in november because of a diagnosis of stage lll  and the fact that i am probably older than others on the board i chose not to have chemo . it isn't an easy decision and one that i made with my physician and my family. The statistics are not very encouraging no matter what course one takes.  I am 7 months out now and doing fine so far.It 's a shame other cancers take priority over the pc. We could use some good news on cures too.  i am on your side and will pray for your continued remissions.

RE: new diagnosis of pancreatic cancer adenocarcinoma

by Amandako on Fri Jun 29, 2012 03:52 AM

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On Jun 28, 2012 6:59 PM puddy wrote:

i also started my journey in september. surgery in november because of a diagnosis of stage lll  and the fact that i am probably older than others on the board i chose not to have chemo . it isn't an easy decision and one that i made with my physician and my family. The statistics are not very encouraging no matter what course one takes.  I am 7 months out now and doing fine so far.It "" target="_blank" rel="nofollow">http://far.It " target="_blank" rel="nofollow">far.It 's a shame other cancers take priority over the pc. We could use some good news on cures too.  i am on your side and will pray for your continued remissions.

If you don't mind me asking how old are you? My dad who is 68 was just diagnosed and they were offered a chance at a clinical trial but he'd have to wait 4 weeks and could still be turned down for it. They've decided to start Chemo and opt out of the trial. I'm amazed as I've started learning about this cancer how little money is spent on research for it. I agree about the statistics. I've read where so many people have said they wish they could go back and not put their loved on through Chemo because while in some cases it prolonged their life it did not help the quality. So glad to find this site. Praying for you all. 

RE: new diagnosis of pancreatic cancer adenocarcinoma

by jgash on Fri Jun 29, 2012 02:53 PM

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It takes lots of courage and very though emotional decisions.  My husband is in the same situation as you.  He was diagnosed with pc (stage 1-2) in Jul 2010 and had whipple done on the same month. Being through 3 types of chemo protocol.  Finaly, he decided to put a stop on last trial ... Clinical trial in which the severe side effects of chemo causes more downs than the diasease itself.   It was a very hard call and he decided to listen to his body.  We fully supported him.  This was in early April.  It has been two months now and side effects are subsiding and he is in much better conditions for quality wise of his life.  Have faiths and keep praying.  I hope my husband could hold on long enough and hoping new cures may be on the ways too for pc.    I just hope all in this difficult journey like my husband have a good balance of quality of their life in their fights.  God bless all.

RE: new diagnosis of pancreatic cancer adenocarcinoma

by donadavis on Sun Jul 01, 2012 11:33 PM

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Hello,

I am new here as well. My mother was diagnosed April 19th of this year with (likely) stage 2 pancreatic cancer-adenocarcinoma with common bile duct and pancreatic duct obstruction. Some say we are lucky that it was caught early, but her primary care physician had been misdiagnosing her with stomach issues for about a year. We never really questioned the oncologist's treatment plan which consists of 6 weeks of IV chemotherapy (once a week for two weeks, skip a week, then repeat), radiation/oral chemotherapy (6 weeks-5 days/week), and then surgery. The tumor is believed to be in two of the main nerves (?); it is 5 cm (2 inches) which we were told is very large considering it is localized. I have done so much research about this disease I am constantly asking questions that the doctors wish that I wouldn't. My mother is 72 years old and I am her primary care giver (45 yrs old) but she lives with my younger brother. I am one of six siblings, but have no real support from them, which makes it difficult for me. My mother is so weak, has lost weight, and is so foggy on the drugs it upsets my brother and I. We are wondering if anyone else has had experience with their loved one saying something (maybe related to drug side effects?) that is out of nowhere. Example: mom says to my brother, "Is the cat still under the bed?"... they don't have a cat. She is so confused most of the time; we have caught her over-dosing on the pain medicine. We have to keep it hidden so she doesn't do this again. She was clear headed and active before being diagnosed. I am wondering if we should go ahead and do the surgery? what would anyone here suggest? Please help. 

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