folfirinox

my brother was diagnosed of pancreatic adenocarcinoma, liver and peritoneum metashasis, he has been using fulfirinox for 3 months , tumor initially was 9.5 cm, actually reduced to 7.5. and his condition is stable. neuropathy in hands , diahrrea  (mild), finding food tasteless, pain in grade 3 (abdominal), no other symptoms to take  into account.

Hello, i was diagnosed september 2011 with pancreatic mass metastases to the liver and lymph nodes, started folfirinox november first 6 weeks lots of side effects, treatment was adjusted and most of the side effects except for neuropathy in the hands and feet.

Ct scan march pancreatic mass stabilized.

Ct scan last week pancreatic mass - shrunk 30%.

Next treatment june 29th which will be number 16, i will be having a break for 5 weeks then another scan will be done on august 7th.

Hope every thing goes well for your brother, any information i can give you regarding folfirinox which i have been having every two weeks, please dont hesitate to ask.

Sheann

In the last 10 months of chemo (20 sessions) my wife Annie only skipped the therapy 2x; the first was after about 6 months chemo and the most recent skip was just last week due to her blood counts.  She is scheduled for chemo tomorrow, end on thursday of this week (48 hour infusion) then 4 Neupogen shots on Friday, Monday, Tues then Thursday.  She will fly to Manila on Friday the 5th of July (her one year anniversary since diagnosis of stage 4 PC) and her oncologist approved her to travel and vacation there till August 17.

Her last CTscan was taken on 6/12 and we got results just last tuesday the 19th.  We were blessed by more improved results.  The liver is still clear and they can no longer see the 2 less than 1cm spots that were there last year at diagnosis and the 5cm tumor on the body of the pancreas shrank even more in the last 3 months from 4mm back in February to less than 2mm now.  She's got a great appetitie and continues to maintain her weight around 92-95 pounds on her 5'0" frame.  

Now with regard to Annie's tumor markers they were steady getting slashed by 1/2 after every chemo session begining her 4-5th session.  Started off at 21,000 and went all the way down to a normal less than 15 since last February and have remained at this number ever since then.   

My wife has been brisk walking and jogging around the park for about 5-6 miles a day Mon-Sat and taking a break from cardio on Sundays.  Still pain free since last year around September or October and started using some medical cannibis that really eliminated the nagging muscle and bone aches after her Neupogen shots. The cannibis also has given her the best sleep ever, sleeping a straight 8-9 hours and waking up refreshed.

I will definately keep her progress posted especially how she does on her 6-7 week break/vacation from chemo.  Keep us in your prayers...

thanks a lot. we'll¨have you in our prayers and let you know about my bro asap

vjhp22

My dad just finished 2nd treatment of folfirinox-- he was actually doing really well except for some problems with cold water.  After his second tx they gave him Neupogen and then they started him on some Creon...and then for the last 3 days he has been having tenesmus (cramping of the rectum).  Has anyone else had this??  Any advice?  I wish Delaware allowed medical cannabis-- I think it would help tremendously.  They gave him Marinol but from what I understand, it's a poor substitute

On jun 30, 2012 4:21 p.m. Kejnah wrote:

My dad just finished 2nd treatment of folfirinox-- he was actually doing really well except for some problems with cold water.  After his second tx they gave him Neupogen and then they started him on some Creon...and then for the last 3 days he has been having tenesmus (cramping of the rectum).  Has anyone else had this??  Any advice?  I wish Delaware allowed medical cannabis-- I think it would help tremendously.  They gave him Marinol but from what I understand, it's a poor substitute

my brother finished 7 treatment (folfirinox). he has neuropathy (hands and feet), food tasteless,also cold water problems and since 5 treatment some sort of ulcers (hemorrhoids) very annoying, the doctor says that surgery will solve the problem. neupogen after treatment with the usual side effects (muscle pain).

On ???? 18, 2012 4:25 pµ vjhp22 wrote:

my brother was diagnosed of pancreatic adenocarcinoma, liver and peritoneum metashasis, he has been using fulfirinox for 3 months , tumor initially was 9.5 cm, actually reduced to 7.5. and his condition is stable. neuropathy in hands , diahrrea  (mild), finding food tasteless, pain in grade 3 (abdominal), no other symptoms to take  into account.

Hello there, I hope everything will go ok with your brother. just want to know how ofter was the treatment of folfirinox. my relative started today for 48hours and then again in 2 weeks. can you pls let me know..

I thank you in advance,

may God be by yourside.

Hara

Hi my name is Sheila and I have been on folfirinox since Novenber, 16 treatments every two weeks.  30% shrinkage last scan, I am on a 6 week break due to neuropathy in my hands and feet, then I will have another scan and Dr. will decide the next step.

Hope your relative does well on thr folfirinox with not to many side effects.

On ???? 05, 2012 7:31 µµ sheann wrote:

Hi my name is Sheila and I have been on folfirinox since Novenber, 16 treatments every two weeks.  30% shrinkage last scan, I am on a 6 week break due to neuropathy in my hands and feet, then I will have another scan and Dr. will decide the next step.

Hope your relative does well on thr folfirinox with not to many side effects.

Hello Sheila, ooo I do really appreciate your response..:) I hope that you will get rid of tumour for ever, and I will pray for you.

My relative has got a huge tumour and we worry if he is going to fight against chemo and side effects. He is 68 yrs old. He didnt have any symptoms until now. Today with the chemo first24 hours, looks ok..I pray. We hope we find something new, good enough for everyone.

I again thank you. Enjoy the 6 week break and I hope neuropathy goes away immediately.

xxx HARA  

HELLO,

Good news thay your wife has so much shrinkage in just 10 months. Did her primary tumour go from 5 cm down to 2 mm? Not clear on your post what you meant, can you explain. My husband with EC just started FOLFIRI, am hoping he will have the same success over the next while. Did she have a port and took it every 3 weeks.