Partners even more likely than survivors to experience fear and worry over long term, study finds
by Gramdof4 on Mon Jun 25, 2012 03:51 AM
My husband was diagnosed with lung cancer in June. He says he doesnt have no symptoms not even a cough! Has anyone heard of that? Any info would be appreciated!
by thebyrdsfriend on Mon Jun 25, 2012 11:52 AM
I never had symptoms. I didn't have a couph. Many, many of us have that same experience. Actually, since there are no symptoms to lung cancer, most lung cancer is found in late stages. To be found early is usually only because the doctors are checking for something else.
All the doctors who were trying to find out what was wrong with me, all said the same thing after listening to my lungs, "your lungs are clear, no problems there". So, it is the norm not the exception, that there are no symptoms for lung cancer.
Take care friend, Byrd
by Gramdof4 on Sun Jul 01, 2012 01:30 AM
Sorry I havent written back until now. My husband is having a few problems dealing with this . On the first visit with the oncologist I had asked him what stage my husband was at and his reply was stage 3, and my husbands question was how long do I have and the answer was 6 months to 2 years. My husband feels he has no chance of getting rid of this so why go through the chemo and radiation if he will not get cured. So now I am at the fork in the road...... what do I do or say? Any suggestions?
by thebyrdsfriend on Sun Jul 01, 2012 03:30 PM
Dang, I hate when doctors give patients a time line, because actually, I feel that does more harm than good. But then, who knows. My oncologist just told me he didn't know. There are so many factors. But, you can look on line and see what the statistics are. Keep in mind, they are compiled from data taken 10 or more years ago.
You can read him my letter. I also have a little bio written at my profile that you can get to by clicking my name.
Since I was diagnosed in May of 2010, you wouldn't believe the progress made with the new treatments, drugs, and mutations the medical community has introduced. I've seen progress in early detection through ct scans. And I've seen people living years longer with in-operable and recurring lung cancer. Way beyond the stats for survival with treatment.
Why do chemo and radiation? Because now they have better ways of targeting the radiation with as little damage to surrounding areas as possible. AND, there are now so many more "easier" chemo's than years ago. AND if that chemo isn't working any longer, there's another chemo to try after that, and then another. There are targeted chemos too that go after a specific mutation. (mutation should have been tested for with the biopsy) Also, it is good to know your type of lung cancer, the mutation, and the staging, so YOU can research and find all the valuable information out there about cllinical treatments, different treatment options, different radiation options, and just generally how others are being treated who have the same conditions as your husband.
Tell your husband I was absolutely scared to death. My father died of lung cancer one week short of a year from diagnosis. That was 1989. I thought I'd have the same fate. But, now It's been 2 years and I'm still here, and I'm healthy. Tell him a cure may not be known now, but you never know if it may appear in a year from now, or 2. You just don't know how close research is to keeping us as close to a cure as possible. Like I said, we're living years with lung cancer, and if we can just hang on ~ you just never know if your type of mutation may be the one that breaks through.
Like I said, my oncologist would never give a patient a timeline. He doesn't believe in it. And I guess, to prove his point would be what your husband is now going through. My oncologist was a cheerleader for me, and my progress. Possitive outlook has so much to do with treatment too. I'm sorry this oncologist did this to him. I'm just trying to tell your husband that it isn't all gloom and doom, and he can do it!! He can get through treatment, yes, it's a bitch, and it's tiring, and sometimes you get a little testy from the "chemo brain", but it is worth it. Please try to convey to him that I am speaking from experience, and he CAN do it!!
There is HOPE. It takes COURAGE and STAMINA and FAITH and GUMPTION! It's too early to give up. He is in the fight of his life. BUT, it's a fight I hope he realizes he has help with in you. Together, my husband and I traveled this road, and together my husband and I survived. The road may be traveled again by us, and it may not lead to the same spot, but we'll have traveled it together, for each other, and with all the faith, courage, stamina, and gumption we can muster.
Take care Linda, I hope somehow you can convey all this to your husband. I hope most of all, that he can find peace and strength to make the decision best for him.
by Gramdof4 on Sat Jul 14, 2012 04:11 AM
I am so sorry that I have not written back. Things are happening so fast now, that time is flying by. He had his first chemo and radiation treatment on 7/9. Radiation is everyday and after 1 week one of the residents in radiation told him today that he would only have 6 weeks of radiation,but she did not say why, was it because there is no more hope for him or was it because the human body can only withstand so much radiation.
I dont think that was the right thing to say. Just wanted you to know we were still alive. So until later....Linda
by thebyrdsfriend on Sat Jul 14, 2012 01:36 PM
Hi Linda, I was wondering how you two were doing. You say that one of the residents in radiation told him he would have 6 weeks of radiation. Is that someone who works there and read his chart? If it true that he's having 6 weeks of radiation, then I'm thinking that's all that is needed for his treatment. I wonder why you weren't informed of how long his radiation would last before you even started treatment. He should also know how long he will be doing chemo. I'm assuming that he wasn't eligible for surgery. So, a plan should have been made with regards to how much radiation and for how long, and also the same for chemo. I had 4 treatments of chemo, with 2 types (cysplatin and alimta) spread over a 12 week time. I imagine that the reason he is only getting 6 weeks of radiation because that's all that will be needed, but I don't know. I was staged 3a and did not have radiation.
Yes, you will be busy during this entire time of treatment. You two will look back and say "whew ~ that sure was a ride!" At least that's what my husband and I say now. That whole entire year was just a blurr. I'm glad you wrote back, like I said, I was wondering about you two.
Remember, there is always HOPE!! I'll keep you in my prayers, Byrd
by Gramdof4 on Mon Jul 16, 2012 02:57 AM
I am so sorry I didnt get back to you.We knew he was having 6 weeks of radiation,but she made it sound after that there is no hope.He is having 6 weeks of chemo and radiation.No he is not eligible for surgery cause he has pulmonary fibrosis and if they took the one lung out the other would not be strong enough.He has chemo every monday for 6 weeks and radiation 5 times a week. Well it will be a busy day tomorrow.
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