Small trial suggests the scans might help, but experts aren't so sure
by tinnakopelow on Mon Jul 09, 2012 12:53 AM
I had NHL twice. My husband had two heart attacks & by-pass plus stents & afib. My 43-year old son was diagnosed less than a month ago with AML & immediatly started treatment at Moffit Cancer Center in Tampa. I live in NY & was treated at Sloan. He first got a lung infection, cough & couldn't breath. He then had liver & kidney failure. The oncologist called today to say he is dying. How could this happen so fast? He was healthy & his heart was good.
by Katherine2011 on Mon Sep 17, 2012 10:08 PM
I'm so sorry. My daughter is 23 and she's been diagnosed with NHL. We're praying she gets through this. No parent should bring a child into the world and witness their passing. God Bless you.
by tinnakopelow on Mon Sep 17, 2012 10:36 PM
On Sep 17, 2012 10:08 PM Katherine2011 wrote: I'm so sorry. My daughter is 23 and she's been diagnosed with NHL. We're praying she gets through this. No parent should bring a child into the world and witness their passing. God Bless you.
On Sep 17, 2012 10:08 PM Katherine2011 wrote:
It is over 3 months since we have been told 3 times that our son was dying. He is alive, but barely. At his first chemo he developed ARDS (acute respiratory distress syndrome). This is a life-threantening lung disorder. He has been on life support ventilator since the end of June. He also has a trach. He is all bones, no flesh. He cannot talk or walk. He is now in an acute long term facility which is trying to wean him off the vent so that he can eventually learn to breath, talk, move, walk, etc. on his own. This is a very difficult process. It is up one day and down another. He is in remission for the Leukemia, but it is expected it will come back and he will need further treatment; probably a bone marrow biopsy. Because of our own illnesses, my husband and I lived every day with simple joy. Now that joy is gone.
As for you and your daughter, my sincerest hopes for a full recovery. I went to Sloan Kettering 13 years ago with stage 4, large bone marrow involvement. I was given a poor prognosis, but I survived. I relapsed and again had chemo and radiation. I am in good health today. I continue to go to Sloan for CT scans, blood work and exams. There has been great advances in treatments for NHL. Hopefully your daughter is at a good cancer center. What type and stage is she? What type of treatment will she have? I would like to follow your journey. She is young and if she has no other large health problems she will very likely make it thru.
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