by Spudlady on Mon Jul 09, 2012 06:00 PM
Hello all - I just joined this board. My husband and I are Canadians and my husband is being being treated in Canada. My husband was diagnosed May 28th with a left temporal parietal brain tumour, he has surgery June 13th, and started radiation and oral chemotherapy with temozolomide 140mg daily on July 3rd. What side effects have other people had with the radiation? So far he is doing well, but he is only a week into the treatment. Does dexamethasone make you "high"? He is on a very low dose right now, but is mentally very busy!!! Thanks
by Ducks-n-Row on Mon Jul 09, 2012 06:57 PM
Funny name....lol Keep your humor is the first thing. I will only referance myself on what I felt. Surgery, 2 years of Temodar, and 8 weeks of radiation. The Temodar started to take it's toll the longer I was on it. 5 days on 23 days off 420mg for the 2 years. For me the feeling of walking in a fog" like mind set. I did have dex in the beginning but my Drs wanted me off of it as soon as possible. Seems the body can become a little dependent on it. Then followed by 8 weeks of radiation. All of this can take a pretty good toll on ones body/brain as far as emotions, anger, depression, the why me, etc etc the list goes on.Long story short a little anti-depression med went a long way for me. Also the family/caregiver as well. Make sure you are taking care of yourself during this. This is the emotional roller coaster we all would like to get off.......
Dx Nov 07........No regrets
by niallsmum on Mon Jul 09, 2012 07:32 PM
Hi Spudlady (is that name a reference to potatoes???????), Welcome to C.C. You will receive so much support here. My son was diagnosed in 2008, and is still fighting 'the beast'. As a caregiver, you will need to really look after yourself - it can be quite tiring and sometimes you just run out of steam and need to rest awhile. Yes, I think dexamethasone can make you 'high' - in high doses. My son is now down to 1mg daily. I hope everything goes well for your husband and yourself, and remember: mind yourself. God bless. Marian
by Spudlady on Mon Jul 09, 2012 08:37 PM
Thanks for the reply and the insight - Spudlady - I own a horse named Spud, which is also funny because he is a thoroughbred
by distancerunner on Mon Jul 09, 2012 09:18 PM
by Spudlady on Tue Jul 10, 2012 12:12 AM
On Jul 09, 2012 9:18 PM distancerunner wrote: The treatment effects from the radiation for my wife were MUCH more devastating than the cancer..
It caused my wy wife to become a demented zombie.
Over the last two weeks, she has fallen twice for a total of 17 stitches and a huge chunk of skin off of her knows, hopefully she isn't aware much of this..
I am currently back in our hometown from our retirement home..
I have a meeting with my asset protection lawyer tomorrow (you are lucky, you are from Canada and would
probably not need the services of this kind of lawyer if the need arose)
and a meeting with her family in a coffee cafe a few hours before in discussing what I will be doing with her.
Just ask alot of questions..Tell your NO that at ALL costs you want to stress "quality" of life over all other things...
I did not do that..I was all gung ho, had the docs do EVERYTHING to help my wife survive ....and she did.....sort of.
On Jul 09, 2012 9:18 PM distancerunner wrote:
by TamiLarson on Tue Jul 10, 2012 03:23 PM
It sounds like we are on about the same timeline. We found the GBM IV on 5/26/12, had surgery on 5/30/12, and started radiation and oral chemo on 6/25/12. We have completed 9 of 33 radiation treaments. So far, so good. We are taking it a day at a time and trying to keep a VERY positive attitude. We have two teenagers in the house, so we try and balance out their normal attitudes. Ha, ha! We are just trying to stay strong and move ahead each day. Best of luck!
by Spudlady on Tue Jul 10, 2012 03:44 PM
Wev are -There seems to be some positive stories out there. I sent you a private reply as well. I hope for the best for your husband and mine !
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