Spots on the Liver

In the last 7 months, my mother has undergone the whipple procedure, while she was in the hospital recovering from her surgery she contacted C-Diff and almost died from that.  After four months of battling C-Diff she finally started chemo, after 5 treatmeats, she was hospitals again with pancreaticis.  Because of this they have stopped the chemo and told us that she can no longer receive chemo treatments as it will bring the pancreatiicis back.  Yesterday, she was at Moffitt Cancer Center to have a P-Scan to see when she could start radiation treatment, they told us that she has spots on her liver now.  I have to wonder if the cancer has spread to her liver, if it isn't time to stop all the treatment and let her have some quality of life. 

I have read all the wonderful stories on this website of how everyone is doing so well and wish that I could be one of the people that could report such a wonder recovery.  Since January I have watched my mother go from working full-time as a bank auditor to being bed-ridden.  She opted for the whipple prodcedure because they told her it was her only chance for a cure.  Two weeks after the procedure she was back in the hospital so sick I thought she was going to die.  After numerous stays in the hospitals and a nursing home, they finally found out that she contacted C-Diff when she had the Whipple procedure.  This complication delayed her getting chemo by four months.  After five chemo treatments, she was admitted back into Moffitt Cancer Center with Pancreaticis.  Because the chemo caused the pancreaticis she can not complete the chemo.  Yesterday they toldus that she now has spots on her liver and there is a good possiblity that the cancer has spread to her liver now.  I wish that we had never agreed to any of the treatments.  if we hadn't she would have been strong enough to do all the things that she wanted to instead of being bedridden for the last 7 months. 

From the being the doctor's have told her that they were going to cure her cancer and she has believed them.  She has held on to the fact that she was going to have all this time to do the things that she wanted to do.  Right now I am so mad I could scream.

bestfriendmom

I am so sorry your mom did not have a good whipple but as was explained to me that is the chance you take if it works you get longer to live  so I took the whipple I was revived twice three weeks after surgery as I nearly bled out and other complications including pneumonia, heart failure. then prostate surgery,eventually i improved I have constant pain everyday but it reminds me I am alive I have had 2 friends die from PC one lasted 4 months the other 7 months neither could have surgery I was given an expectancy of 18months + 6 months more if I had chemo of which i could not finish as i was to ill,so for me it is coming up 23 months and i dont reckon i will pass any time soon I am so sorry it did not work for your mum but you would have questioned maybe if we had the whipple mum might be ok damned if you do damned if you dont foresight is a wonderfull thing I hope she improves soon

so I can understand you wanting to scream best of luck

bushy

Hiya.My dad was diagnosed with Pancreatic cancer nearly 4 years ago.He was given upto 6 months to live.He refused all chemo as he wanted to have his last months of life not suffering from chemo.After nearly 4 years he has been in and out of hospital and the specialist have found that he has a very rare form of Pancreatic Cancer and he is 1in a million with this type.He was taken into hospital again yesterday as he went back into a diabetic coma and has a severe chest infection.He suffers from clots aswell.

Last Friday we went to Derriford Hospital in Devon to speak to a specialist about the LU177 Dotatate treatment.It sounds a good treatment and dad is making his mind up whether to go for it or not.

The main Hospitals in the UK that do this treatment is Royal Marsden London where the doctor we saw did his trainning under the worlds leading doctor on this.Also in Southampton they do the treatment and it has been in Derriford in Devon for about a year now.

As this is still a newish treatment over here there's not many doctors that actually know about this type of treatment.If anyone is under the Macmillan care it will be worth mentioning to them about this so they can get more info on it for you

thank you for your response and I am sorry for all that you have been through it is very hard to watch your parent die in such a horrible and painful way.  I know that everything that she is going through helps to bring them one step closer to curing this horrible illness and that someday other families won't have to watch there love one go through all that she is going through.  We are meeting with the radiation oncoloist today at 1:30 to see if she can start radiation.  If she can I have been advised that it is time to call hospice because she will not make it more the a few months.  My biggest fear is that she is not strong enough to make it through radiation.  Thank for listen