One patient with glioblastoma still alive nine years later
by MC2012 on Sat Jul 14, 2012 04:09 AM
by LITTLEMISS on Sat Jul 14, 2012 08:35 AM
Like you my whole family are totally devastated at my beautiful 30 year old daughter being diagnosed with colon/rectal cancer that has now gone to lymphnodes and widespread liver metastases.
How can this be happening. At such a young age, at any age like you we are all trying to be strong and the pain is unbearable so I cannot imagine what my poor beautiful daughter must be going through. Never smoked, drank, ate red meat etc all things when I looked up internet can be factors to cause these particular cancers.
how can this happen. I hope you and I can find the strength to be brave and keep praying and hoping for a miracle.
Take care of yourself and your loved one. Just take each day at a time and try to make the most of the good days and be there for the not so good days. I am typing this but finding it hard to deal with it all myself so know exactly where you are coming from
Take care x
by MC2012 on Thu Jul 19, 2012 01:58 AM
by LITTLEMISS on Thu Jul 19, 2012 08:10 AM
On Jul 19, 2012 1:58 AM MC2012 wrote: Things like this just shouldn't be happening. I'm so sorry to hear that you to have been affected by such news. Our love ones deserve to have a life full of happiness and free of pain. Why does this even have to exist? I constantly ask myself that.My "" target="_blank" rel="nofollow">http://that.My " target="_blank" rel="nofollow">that.My aunt is 45 years old with 3 kids. Her youngest is only 2.
I keep praying as we all know prayers work miracles and at this time a miracle is what were all seeking. My days are full of mixed emotions. Our faith is to stay positive and to trust in God. I would be lying if I said I wasn't mad,scared or Devastated. No one should have to experience this.
Life is so precious and everyday is a blessing. God bless you and your family.
On Jul 19, 2012 1:58 AM MC2012 wrote:
Thank you so much for your thoughts and wishes MC. My daughter started her first chemotherapy in hospital yesterday but took a very severe reaction and they have kept her in hospital. When I saw her I thought she had a stroke. She could not speak, hand and leg and all down right side numb. She could not walk properly to go to toilet held even by two nurses. Her eyes are twtiching and they said they had never seen such a severe reaction. She has been very sick through the night they told us and not looking like she will get out of hospital today if this is first chemotherapy what happens next. Like you praying for a miracle and will do for your Aunt too and thinking of her children and you too. Keep strong, keep praying and we will both keep praying for a miracle. Will keep in touch when I can get to a computer. Take care of you and yours x
by MC2012 on Fri Jul 20, 2012 02:25 AM
by LITTLEMISS on Fri Jul 20, 2012 09:46 AM
On Jul 20, 2012 2:25 AM MC2012 wrote: Chemo is really rough on them. After my aunt's first chemo treatment, it dropped her blood counts so low that she had to get 2 pints of blood. Her oncologist was trying to attack it aggressively and her body couldn't tolerate it. It's painful enough for them to get such devastating news but then for their body not to accept the treatment makes matters even worse.
So sorry to hear about your daughter's treatment. I will continue to pray for her. Stay positive as you know your daughter counts on you for strength. May God protect her and guide her path.
On Jul 20, 2012 2:25 AM MC2012 wrote:
Thank you for message MC and keeping in touch. My daughter was allowed home late last night and she is totally shattered as we all are. Now we just wait to see how she tolerates the medication pills 21 a day. I just hope that each day she becomes a bit stronger and copes with the treatment and it helps her in some way. We will all keep praying and we have people all around the World praying for her including yourself and we appreciate all the prayers.
She cannot touch any metal or anything cold or have anything cold and she can hardly do anything for herself due to her right side being so affected. The other side is too but not as bad as the right side. She is only young and not medically knowledgeable but her own words were I think I have had a stroke and that is what it looks like.
Oncologist just said sorry this happened. Hospital said they had never seen such a severe reaction in many years if at all as bad as that particular reaction
It is bad enough having this awful thing happen to you without the chemotherapy being like this. Just hope she can remain strong and that the treatment eventually helps her in some way.
Thank you MC and love to your aunt and you and all your family
by LITTLEMISS on Fri Aug 10, 2012 09:01 PM
How are things going with you and your aunt. My daughter is not doing well and had severe reaction again to the second chemotherapy
Not doing well.
Everyone keep praying for each other
Hope things okay for you and yours
by MC2012 on Sat Aug 11, 2012 03:18 AM
by LITTLEMISS on Sun Aug 12, 2012 11:26 AM
On Aug 11, 2012 3:18 AM MC2012 wrote: My aunt is on a different chemo regiment. On Monday, she will have another PET scan. We pray that outcome will be positive. It's been a rough road for her,but you wouldnt know it by her spirit. She's always smiling and concerned for others. When I hear of others complaining about things that are so senseless, it makes me frustrated. Here we have our love ones that are fighting for their lives. Others should be grateful for what they have been given and appreciate that they have life! It just doesn't seem fare, that anyone should have to suffer!
All we can to do is keep our faith in God!
So sorry that your daughter is having difficulties with her treatments. I pray that her body becomes stronger and that shes given the strength to overcome this. Don't give up, we have to remind ourselves, that each day has to bring us closer to a cure.
God bless you and your loved ones. I'll keep y'all in my prayers.
On Aug 11, 2012 3:18 AM MC2012 wrote:
Thank you and keep strong yourself. Like youself people go about their daily lives moaning and groaning about least wee thing and here are people like your Aunt and my Daughter struggling to stay alive.
Life is unfair and we will keep praying and hoping for those miracles. Just about to get organised and go back and see my Daughter today. Just hoping for a little improvement each day and just want to get her strong enough to get out and about even just to sit outside or manage downstairs will be a hurdle. Need to get her better for end of August she and her fiancee go to London to pick their wedding rings for the wedding in November and lots to do for that but has been put on a back burner as have to focus on my daughter's well being at moment but she is determined to get married so first goal is get to London. We had flights booked but my husband and son are going to drive them down and have booked into same hotel in case they are needed for moral support.
Keep you posted how things are going and hope things go well for your aunt. Keep strong.
We can all keep each other strong on this forum that is what is so good about it before I felt so isolated
Take care all
by Katherine2011 on Sat Aug 18, 2012 07:29 PM
As my 23 year old daughter's caregiver a wide range of emotions consume me. On good days, we celebrate life, and on not so good days we pray. Sometimes, I feel as though it's hard to breath, with my emotions clutching desperately to Hope. In two days, a CT and PET Scan, will let us know if the chemo is shrinking this cancerous lymph node in her chest. Her third cycle will begin in five days. In the meantime, her Lymphoma symptoms have returned, including her face swelling up again. My fear of the unknown forces me to panic silently. I pray for a cure to this terrible disease.
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