GBM

AS I think that the best way to beat this hideous disease is to find the cause and prevent it in the first place.

Having lost my beloved Wife Donna to this beast in 2009 I would be interested in working and living environments of new Diagnosis? Also if there is any cancers in family history

If anybody could help me I would be more than glad.

Thank you all

Mike

My mum retired in 2002. She is currently 57 y.o. Never smoked, does not drink, never had a cell phone. She has underactive thyroid because she had her thyroid removed a few years ago. She has a BMI of ~30.

For me, I think food is the biggest culprit for her diagnosis. A lot of the Asian flavor packets she would use contained MSG in them. She cooks a lot, and she usually tries to make the food pretty healthy (i.e. fresh, lots of fruits and veggies, just a little oil). She dyed her hair at least once a month. The MSG and hair dye are the two factors for my mum that stick out the most.

My grandma had leukemia the last few months she was alive, but other than that no history of cancer in the family.

On Jul 22, 2012 12:31 AM Fight56 wrote:

My mum retired in 2002. She is currently 57 y.o. Never smoked, does not drink, never had a cell phone. She has underactive thyroid because she had her thyroid removed a few years ago. She has a BMI of ~30.

For me, I think food is the biggest culprit for her diagnosis. A lot of the Asian flavor packets she would use contained MSG in them. She cooks a lot, and she usually tries to make the food pretty healthy (i.e. fresh, lots of fruits and veggies, just a little oil). She dyed her hair at least once a month. The MSG and hair dye are the two factors for my mum that stick out the most.

My grandma had leukemia the last few months she was alive, but other than that no history of cancer in the family.

Many thanks for your help, I do not think MSG is suspect otherwise GBM would be very prevalent in China and it is not?

Was the hair dye Red by any chance and did es she use a Blow Dryer very ofrten? are there any electrical installations close by?

Regards

Mike

I'm actually very curious as to how prevalent GBM is in Asian countries, as my family is Filipino. I still have a strong suspicion that something in our food (e.g. preservatives, MSG, colouring) is related to GBM.

And the hair dye she usually used was a reddish-brown (not sure the brand, but it's definitely a commercial brand). No more hair colour since diagnosis. She used to perm her hair too, but not since the 90s or early 00s. I know she has tried a few hair loss shampoos and stuff like that as well. She blowdried her hair but I'm not sure how that would relate? No more electrical stuff around than usual. We do have wifi internet at home, but mum didn't use the computer.

On Jul 22, 2012 8:26 AM Fight56 wrote:

I'm actually very curious as to how prevalent GBM is in Asian countries, as my family is Filipino. I still have a strong suspicion that something in our food (e.g. preservatives, MSG, colouring) is related to GBM.

And the hair dye she usually used was a reddish-brown (not sure the brand, but it's definitely a commercial brand). No more hair colour since diagnosis. She used to perm her hair too, but not since the 90s or early 00s. I know she has tried a few hair loss shampoos and stuff like that as well. She blowdried her hair but I'm not sure how that would relate? No more electrical stuff around than usual. We do have wifi internet at home, but mum didn't use the computer.

GBM in common with most cancers is partly Genetic and partly Environmental........this is what I have been told by Donnas Surgical Team and my research has confirmed this.

GBM is a very complex disease and I think there are a number of causes for it. For instance I know of 3 cases of GBM and all 3 were Ladies Hairdressers my Wife included, she used Red hair color for many years. I am in contact with a Scientist here in Australia and he has implicated Electrical installations to DNA replication breaks and immune system disruption due to people spending many years in close proximity to high EMF fields.............in one instance a cluster of Brain Tumors amomg staff working in an office below a large electrical installation above the ceiling!! ( 6 Tumors!)

I am 100% certain why my Wife Donna ended up with a GBM and was given a couple of weeks to live. I and my married children will not use WIFI for this very reason and a lot of schools in the UK and in New Zealnd are are going back to wire. At present a lot of researcgh is being conducted into the proliiration of wireless Technology and I think it wise to aur on the side of caution.

The thing for my mum is, why wouldn't I get a brain tumor instead of her? I have a cellphone and have been using wifi for several years. I think wireless is a large factor for many patients, just not my mum.

Is there a particular ingredient in hair dye that stands out? I have never dyed my hair and now probably never will.

I feel like there is too much hearsay and speculation regarding the causes behind brain tumors. Each country's researchers are doing their own thing. I would love to see more research collaboration on an international level. Like an international tumor bank with a database of info on individual GBM cases. It would include the info you are looking for - environment, genetics, tumor location, treatment, etc. I think most GBM patients and their families would gladly participate.

On Jul 23, 2012 5:20 AM Fight56 wrote:

The thing for my mum is, why wouldn't I get a brain tumor instead of her? I have a cellphone and have been using wifi for several years. I think wireless is a large factor for many patients, just not my mum.

Is there a particular ingredient in hair dye that stands out? I have never dyed my hair and now probably never will.

I feel like there is too much hearsay and speculation regarding the causes behind brain tumors. Each country's researchers are doing their own thing. I would love to see more research collaboration on an international level. Like an international tumor bank with a database of info on individual GBM cases. It would include the info you are looking for - environment, genetics, tumor location, treatment, etc. I think most GBM patients and their families would gladly participate.

I am not an Epidemiologist but there are a few very reputable internet sites that detail in depth various studies being undertaken with regard to causal effects for GBM and other cancers. I note that Viruses are being looked at as a possible causal effect with certain cancers. In my Wifes case it is very suggestive by our Doctors that she may have had a predisposition to a Tumor due to a Gene mutation which was iether there since birth or was aquired as they say to enviromental factors.

Something obviousely went wrong in your Mothers Genetic structure that is why you did not get a Tumorand she did also GBM tends to strike people in the 50 to 70 year age group more often than not.

I have been told that their is something in Red hair dye that if used excessively could cause a problem.

I am 995 certain what had a causal effect for my Wifes GBM and I have 2 Scientists who concur with me.............go to EMfacts on the net. Beware of crank sites!! I can send you some litratuure if you wish...........I am not a nut case! just look at our profile photo........us in happier days.

I do not think you are a quack, I have seen your older posts and know GBM has changed your life greatly (otherwise I wouldn't have responded to your post). I admire you for trying to bring forward change.

Did your wife dye her hair more than once a month, or do you think it's more a case of coloring other people's hair?

Also, can you be more specific about what electrical installations? Do you mean like cell phone towers? I don't think she has lived/worked anywhere with something like that.

I have read that GBM is a variety of different types of tumor cells. The virus theory stands out to me as immunotherapy seems to be the next wave in tumor treatment.

Mum had a 5% cancerous growth on her thyroid, and that is why they had to remove it, and she subsequently developed hypothyroidism. It makes me wonder if those cancerous cells were able to move to her brain.

Hi Mike , i am a firm believer that a strong coorelation exists between the increase in GBM cases and EMR (electrical magnetic radiation). My wife for all practical purposes did everything right from a nutritional standpoint and health standpoint for the past 16 years. She ate as organically as possible, she has had no other health issues, she has never been on any pharmaceutical drugs. The last time she even had to go in medically prior to this was to give birth to our daughter 12 years ago. She watchs food additives like a hawk, and our children have been programed to read food labels since the time they could read (both of which i might add, our incredibly healthy them selves).  My wife hasnt used a microwave in over 12 years.  Our last house that we just moved out of literally within two weeks of my wifes seizure, had some electrical wires that came into the house near our bedroom. My wife hated those wires there and we did rearrange our bedroom so head boards were away from them. (interestingly enough, the previous home owners wife died in the house of GBM).  My wife is doing fantastic and just celebrated her one year mark at the end of June.  She travels , works etc and we dont even really talk about it anymore. We do keep Bio chips on our cell phones and the kids as well, which if they work great and if they dont no big money lost. I think that EMR can effect cellular physiology and u cant go anywhere these days without wireless devices communicating around you. I think the WHO (world health organization) is going to have to update the statistics with respect to GBM's.  I personally know of 11 people who have it or died from it. And these were people i know or have known well (including my DAD's mother who passed away 13 years ago).  Just my thoughts.

Have also seen some that support previous head trauma and a association with GBM.

Steve

I don't have a GMB but was told in January that I have a low grade glioma, in my parietal lobe, 2cm x 2.5cm.  I have never smoked, eat healthy, exercise, never taken drugs.  I have only had highlights in my hair a few times, my hair is naturally red. I do use computers.  My father has had skin cancer, but is well and nearly 70.  My gran had cancer of the stomach, but lived to the age of 93. I have an underactive thyroid since I was about 30, Im am now 42, with a 4 year old and a 23 year old, both are well.  In my opinion my glioma was caused by 14 years in the electronics industry, using pretty toxic chemicals on a daily basis as well as breathing in lead solder fumes.  I was constantly ill while working there with various chest infections, headaches, streaming eyes, there were warnings on labels of chemicals ''carcinogenic to lab animals" "known to cause CNS damage".

Did your wifes GBM start off as a glioma or was she diagnosed straight away with a GBM?  I find this a very frightening journey and I know I am only at the start of it.  I want to be here for my children, see them grow up, and don't want to be a burden to anyone, or turn into a stranger that my husband doesn't want to be around any more.  I love life and my family.  I so wish they could find a cure for all cancers.  I am sorry to hear that you have lost your wife, I cannot imagine how you feel and totally understand why you want to research this.  Wishing you happiness for the future.

Paz