Stress

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Stress

by Hilde45 on Sat Sep 02, 2006 12:00 AM

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I am fairly new , just been diagnosed in 2004. Had surgery on my neck and they took out the gland. Had 20 radiation treatments. So had many cat scans and pet scans since then. So in May I had the regular cat scan and pet scan where they found two mildly enlarged in my abdomen and one in my right side of my neck. So now I have to get another cat scan in October 13th and see my oncologist October 20th. Has anyone ever been on watch and wait. It just makes me nervous not that I am in a hurry to do treatment. But how can you keep the stress down when you think about this stuff. well thankyou everyone for listening to a new commer. Hilde

Lymphoma

by Judee on Mon Sep 11, 2006 12:00 AM

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I am 53 female. Diagnosed July 6 06 I have been to 3 oncologist. 2 suggested i enter into a Clincal Research Trail Study in Nashville, Tenn. One suggested watchful waiting. I was under a lot of stress considering the Watchful Wait. now that i am starting treatment in about 2 weeks my stress level is down because i know i am doing something. yes Watchful Waiting is not for everyone. I will be doing Rituxian and a vaccine. Please consider Rituxan as a first line treatment. Search until you locate an oncologist that will help you explore some form of treatment. I have Follicular Stage3 Wishing you well.

Rituxan

by Amnia on Thu Sep 28, 2006 12:00 AM

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i would like to agree with the previous person. rituxan is very good. it is not a poison like other chemos. it is quite amazing. it is an antibody that binds to the cancerous lymphocyte. the body's immune system then finds these marked cancerous lymphocytes and destroys them. rituxan is in a new class of cancer fighters called monoclonal antibodies, and there are a ton of them being developed for various cancers. they are really an amazing step forward in cancer treatment. there are various regimens that use rituxan along with poisons, and generally this is what the oncologists want to use, because they have a long familiarity with the poisons and do not want to let go of the old ways yet. see if you can find an oncologist that might be willing to give you just the rituxan, or maybe the rituxan and a vaccine. if that does not work they can always give you the poisons later. (poisons would be things like the CHOP regimen that may give you heart failure.) ps there are a few details i left out. for example, rituxan only works if the cancerous lymphocytes have a protein called CD20 on their surface. luckily, most lymphomas do have this. you can google rituxan and read all about it.

Rituxin

by Hilde45 on Thu Sep 28, 2006 12:00 AM

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Thankyou for the information. I am on watch and wait.I go for my next catscan on October 13th. And to my oncologist Oct. 20th. I hate the watch and wait but just seeing what this cat scan showed. I am just a bit confused because he said the last time he is not happy with my cat scan and pet scan. But still waiting from July 19th. well we will see the next few weeks. Wherever I drop his name they say I have the best. So I will see what happens in October. I am not in a hurry for any treatments. But however just waiting all the time is hard too. But I want to thank you for responding to my post. Hilde

Watch and Wait

by Kitty on Thu Oct 19, 2006 12:00 AM

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I was diagnosed in March '97. I been watching and waiting for almost 10 years. 3 yrs. ago I developed another cancer and had to go through chemo. Almost died twice so I finished with radiation. My 1st cancer (NHL) is back. I will be undergoing Bexxar treatment next month. My faith is what has gotten me through all this. It keeps increasing. I am no longer afraid to die (I've already done that and it is really easy) I have no more doubts about my faith. God will either cure me, give me more time or take me in the next 2-3 yrs. I am okay about what He does. I no longer have fear or doubt. I am free. We cannot for one moment forget we have cancer. That is a given. When people tell you to forget about it and just go on with your life, they don't know what they are talking about. My DH doesn't like for me to talk about my experiences. Tough! It's my life and my cancer and I'll talk to anyone I want to about it. Same goes for my faith. Don't let the cancer control you. I know about waiting for results and not knowing, etc. You keep a positive attitude and tell yourself every day that you are strong and you can beat this. You mind takes what you say as the truth and acts on that. If you tell yourself bad things, the mind acts on that. We want our minds to be strong so they will help our bodies hold up under therapy and the stress of having cancer. It was my worst fear in life. My mother had her first cancer at 42. At 47 she had 2 other cancers and was given 6 months. She lived 18 months. I was only 21, newly married, and expecting my first child. She died before that child was born. My two are the only two out of 11 grandchildren that she never saw. Well, God put my face in my biggest fear and started working on me. The chemo was bad but the radiation was hideous. I am very damaged from it. God got me through it all. I am coping with all of my disabilities. I am not going to waste any of my days being sad and not doing what I want to do. Please feel free to write me anytime. I understand what you are going through and I want to be there for you. May God bless you and yours! Love, Kitty in WA --- Message edited by CancerCompass staff: for personal protection, email address removed. Please review CancerCompass Member Guidelines at http://www.cancercompass.com/common/guidelines.html ----

Judee

by Kitty on Thu Oct 19, 2006 12:00 AM

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What kind of NHL do you have? follicular? cell size? grade? stage? I was stage 4 and watched and waited until I developed a second cancer. That was 7 yrs. after the first diagnosis. Rituxan can be used more than once. It isn't like chemo, I had no side effects at all. We used it after treatment to try to keep the NHL from coming back. When first diagnosed, my DH wanted me to have a bone marrow transplant and get rid of it. The doc said that 15% die from the procedure. The specialist I saw at U of WA and Fred Hutch said that if they had to have cancer, they would want mine. I knew a lady who found out she had chronic leukemia. She was so freaked, she insisted on a bone marrow transplant. I read her obituary in the paper 7 months later. She could have lived a lot longer than that. Don't let the cancer control you. Keep telling yourself that your body is strong and that you will survive. Telling you mind otherwise will make things worse. Our minds take everything we say as the truth and acts accordingly. Get a grip. Write to me if you think I can help you in any way. I want to be here for you. May God bless you and yours! Love, Kitty in WA --- Message edited by CancerCompass staff: for personal protection, email address removed. Please review CancerCompass Member Guidelines at http://www.cancercompass.com/common/guidelines.html ----

Follicular

by Judee on Fri Oct 20, 2006 12:00 AM

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I am female age 53. June 06 i had a lymph node in neck removed. I had no symptoms. Only an enlarged node. I also have enlarged nodes in chest, adomen and kidney area. First oncologist suggested w and w. I know this is common but i could not do it. I was under more stress. So i am entered into a Ttrail Study In Nashville, TN 70 miles from my home in KY. i was given 4 rituxan injections. Only a little nausea and a lot of fatique. Some deprssion. Nov. 8th i will have a whole body scan. If i have prognosis (95% of patients do.) i will receive a vaccine injection made with my own good cells and a shot of an immunity booster.And then if i continue to see nodes shrink i will continue with another round of rituxan. If you can find a Trail Study i highly recommend you take part. I am in a Phase 2 study. so i kow i am not getting a placebo. (i personally would not do a phase I.) Rituxan is widely used and i have done well on it. 3 Oncologist told me i have 8-10 years to live. Even though i did not ask. they gave me this info in my consultation. At times i wished i did not know.( because i am now planning to die when i am 62.) But i am glad i do know i could not NOT know. i want to be prepared.

RE: Stress

by Satine on Tue Dec 12, 2006 12:00 AM

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I just read in a book today called "Living with Lymphoma" that if you're in Stage I or Stage II, sometimes the doctors do, in fact, tell a patient to wait before treatement and see how things go...
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