On Aug 05, 2012 3:00 AM BlessedDaughter wrote:
On Aug 04, 2012 7:06 PM grace9 wrote:
Thank you for your prayers! My PT scan has finally been approved and scheduled this coming Tuesday. I'm scared now too because, although the CT scan didn't show anything my markers have climbed again to 3800 and WBC down to 1.8. Dr. told us to just leave it alone and see what happens because I won't be able to beat it anyway!!! Kid you not! I'm 47 years old and have children still at home. I refuse to give up but he's definitely given up on me. He actually raised his voice to us because we are wasting money and resources. Because I want to live!! He has literally offered nothing extra. When I asked that we look at some of the new clinical trials from Johns Hopkins he said Johns Hopkins doesn't do that kind of research. I had him look the 2 trials I'm interested in up and he did do that along with saying he didn't have time to call them and then he said even if he did get it arranged I didn't have the financial means to get involved anyway. Made me feel all hope was lost. Then I see how many people are praying for me and I know I still have hope. Cal
Cal,
I am so sorry to hear this. I am praying for you. I just have a few questions, if your CT scan is showing nothing as of now, why is your oncologist so convinced the cancer is back? I've read many places where even though tumor markers are certainly valuable; the scans always trump the markers...meaning if the scan is showing nothing then your doctor has no reason to believe it is back for sure and that you are not going to beat this. There are several factors that can effect those markers. I feel that you should find a new oncologist...someone who knows more than this person. John Hopkins is one of the leading hospitals dealing with PC so he clearly knows nothing. Be your own advocate!!!
My mom is also battling PC. We pray all the time and our faith is strong. We have had many blessings on this journey so far; we continue to pray for more. Please keep her in your prayers. Know you and your family are in mine. I hope you find a better oncologist who believes in you and your will to live. Stay strong and hopeful and know God does hear His children when we pray!!!
Cal,
I understand your frustrations. I too have had the whipple procedure with complications which required 5 post surgeries. What a nightmare! And, then for you to be facing insurance issues and a situation where someone says the cancer is back w/o exact evidence is unsettling indeed.
Father God I come to you and place Cal and this situation before You. Lord I ask that somehow You bestow the calm, peace and trust Cal needs right now to get through this situation. Father, calm the nerves and the anxiety. Lord I pray that you pour your spirit upon Cal in a mighty way, and that Cal would feel your presence. Lord give the medical techs and doctors your wisdom in this situation and may the time pass swiftly. Lord allow the test necessary to diagnose this situation, and give the wisdom needed to treat it. Above all, wrap Your loving arms around Cal, and pull Cal close to Your loving heart. In the Precious Name of Jesus I pray. Amen