Kidney cancer (stage 4) spread to lungs

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Kidney cancer (stage 4) spread to lungs

by jtomwag on Tue Aug 28, 2012 03:27 AM

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I was diagnosed with stage 4 kidney cancer in October. I had that entire kidney removed and now have some places in my lungs. I was on Sutent but had bad,bad reactions and am now on Afinitor and so far so good.Haven 't had a scan since starting it but know it'll work. It's difficult also because I have a balance issue but all will be ok one day.

What are some suggestions about nutrition and maybe vitamins? Most everything I know is from online.

Oh I am 42 and am not afraid of a fight....

RE: Kidney cancer (stage 4) spread to lungs

by mkldominos1 on Tue Aug 28, 2012 03:41 AM

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Hi Jtomwag,

You have a great attitude!  My husband was diagnosed with stage IV pancreatic cancer in March 2011.  He was told he was inoperable.  He has done quite a bit of tough chemo and 2 surgeries prior to having a successful surgery on Feb 28th 2012 to remove the tumor.  He turned 60 while in the hospital recovering.  What a great birthday present! We kept him healthy by going pretty much organic with cold water fish and chicken and eliminated sugar and red meat from his diet.  I also had him on quite a few supplements.  I found some great information in 2 books:  Beating Cancer with Nutrition (patrick Quillin) and natural Strategies for Cancer Patients (Russell Blaylock).   Best of luck and keep looking up.  Our God is healer...where man said there was no way, God made a way.  God Bless...Linda

RE: Kidney cancer (stage 4) spread to lungs

by Flowerbed4 on Wed Aug 29, 2012 01:23 AM

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So sorry to hear you had to go through all that. Do you mind me asking what your symptoms were for the kidney cancer? Also curious if you had symptoms with the lungs or was it only the pet scan that showed the spots? Thanks, and pray you continue to heal and Feel great again.

RE: Kidney cancer (stage 4) spread to lungs

by rlknight5 on Wed Aug 29, 2012 02:21 AM

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I am proud of you. June 28, 2012 had a severe appendix attached they did a cr scan found cancer on left kidney said cyst on right, they removed my appendix. July 24 had my left kidney removed, she said was not going to do anything to right with cyst but just watch. I am afraid something is not right but the left was only a stage 2. I guess I will go crazy. I am afraid something else is wrong I have a stomach all the time.. I will pray for you.

RE: Kidney cancer (stage 4) spread to lungs

by Craig_the_kiwi on Wed Aug 29, 2012 05:24 AM

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Hi jtomwag, Hey read my story below.. bit of a novel!! ....

I am also 42 and have been fighting the fight for a while now. I am using sunitinib rather than afinitor.

(Hi, this is my first post on this site, although I have been reading others on this forum for a few months now. It is interesting in hear about similar side effects to mine on sunitinib. My cancer story began in Dunedin, NZ in 2003(33yo). I was diagnosed with an 11cm tumour which had invaded my right kidney. A few weeks later I had an open nephrectomy which by all accounts went well and I started my recovery back to full health. I had twice annual CT scans thereafter to monitor any possible reacurrance and life carried on very much as normal. Then in late 2009, 6 years after my initial diagnosis a scan revealed multiple lung nodules (40) and lesions in my spleen and remaining left kidney. I had just moved into a new house and my wife was expecting our first child a month later. My life was turned upside down! 2.5 yrs later I live with the continuing side effects of Sunitinib 37.5mg 28/14 having reduced the dose from 50mg mid last year. I am now 42 and work 30 hours per week, my hair has turned mostly white, so I look a lot older that I feel. A positive to this is that results show the sunitinib is having great results with the reduction in size of many of the tumours and in turn I feel better for it. The main reason for this post is to get feedback or make contact with anybody else that may be in a similar situation (young family juggling work/life balance) and coping with the everyday issues associated with taking this form of treatment. People often comment on how well I look which I take encouragement in, but knowbody other than those who go through this really know what it is like. I have a great oncology team here in Dunedin but really do feel I am battling this alone! I still manage to smile and laugh, that is important to me & don't get me wrong, I do remain mainly positive. I would look forward to any contact or feedback from others who are dealing with these similar issues).

Would like to hear how you manage treatment with work life balance etc

Take it easy Craig

RE: Kidney cancer (stage 4) spread to lungs

by jtomwag on Wed Aug 29, 2012 07:51 PM

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Thank you! That IS a great present, everyone needs that. I have a great support system and that has been so important. My pastor is the best and the people at my church gives me the best hugs, lol.

The best to you and your husband and thank you for that again.

RE: Kidney cancer (stage 4) spread to lungs

by jtomwag on Wed Aug 29, 2012 07:58 PM

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My symptons were a 30 lb. weight loss and bad nausea and pain in that area. My primary doctor diagnosed me with a sinus infection but I knew it was a bit more, lol.

It's hard to hear and I had no reaction in front of anyone but privately I did and that is nothing to be ashamed of. I think a good cry is helpful, lol.

 

RE: Kidney cancer (stage 4) spread to lungs

by jtomwag on Wed Aug 29, 2012 08:13 PM

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Craig I shave my  head anyway but my beard when it comes out was white but who cares? Eyebrow color does wonders, lol. My Oncologist is great and is doiong whatever is possible to keep me healthy. I don't work for prior health issues but try to do as much as possible.

Being tired and having no energy at times is my biggest issue and am thankfull for the days when I feel great.

I do have a great support system but also feel like I am doing most of this myself. I am a stronger person for this and am planning on making a full recovery.

Keep living life like you have no time to be sick, lol. It will surprise you how it affects your mind but try to push it aside.

Thank you for the response and anytime you need a friend, I'm here.

Good continued luck my friend.

RE: Kidney cancer (stage 4) spread to lungs

by jtomwag on Wed Aug 29, 2012 08:16 PM

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Thank you. Don't be afraid, that will drive you crazy. Everyone worries, that is natural but try to be as positive as you can...

Life has better things to offer when you live each day the best you can.

RE: Kidney cancer (stage 4) spread to lungs

by imStillAlive on Sun Sep 02, 2012 05:33 AM

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On Aug 28, 2012 3:27 AM jtomwag wrote:

I was diagnosed with stage 4 kidney cancer in October. I had that entire kidney removed and now have some places in my lungs. I was on Sutent but had bad,bad reactions and am now on Afinitor and so far so good.Haven "" target="_blank" rel="nofollow">http://good.Haven " target="_blank" rel="nofollow">good.Haven 't had a scan since starting it but know it'll work. It's difficult also because I have a balance issue but all will be ok one day.

What are some suggestions about nutrition and maybe vitamins? Most everything I know is from online.

Oh I am 42 and am not afraid of a fight....

Hello,

I am in similar situation.  Kidney removed and now a 1.5 years later mets to both lungs. I have one 3 cm spot on my right lung and two small 6 mm spots on my left lung.  I’m waiting to see Oncologist next week. I’m assuming I will start Sutent.  I’m also thinking because I have 3 tumours then that means surgery is not an option for me.   Can the tumours on your lungs be removed by surgery or did they basically tell you its non-operatable?

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