Brain Cancer

I just lost my husband to Brain Cancer. Has anyone here just lost a loved one to Brain Cancer? He passed away on Sept 17th. We took care of him at home. He never went to the hospital. I could not trust the hospital to take care of him like my son and I did. We had all the medical equipment, such as hospital bed, commodes, oxygen machine, etc. The brain cancer he had controlled his motor skills and soon he was unable to walk. We picked him up from place to place from wheelchair to commode to chairs to couches etc. then to bed at night. He could not even feed himself. We did that for him. He would stare at the ceiling a lot, he could not focus his eyes. I would put my hand over his eyelids and then he would focus. I would say, look at me....and he would.

Has anyone had this experience. I am so upset about losing my husband and all the things he and we had to go through...I cannot believe it. If someone just had told me all these things and more would have happened, would not have been so shocked.

But his doctors told him nothing and told me nothing. My son and I were his sole caretakers from March to Sept.

Please say a prayer for me and my beautiful Steve my husband.

If anyone would like any information as to what we have gone through and the stages in which brain cancer takes your life, you can ask me questions. I wish someone had told me something.

God Bless You All, Rose

Rose, I'm so sorry you lost your husband, and sorry you didn't find this board sooner, when you were looking for info. Yes, many people here have lost someone to brain cancer. I am about to. Check out the Bereavement board, too. (Under "Message Board" above, then under "Caregivers", last item.)

On Sep 28, 2012 1:42 AM rmwhope wrote:

I just lost my husband to Brain Cancer. Has anyone here just lost a loved one to Brain Cancer? He passed away on Sept 17th. We took care of him at home. He never went to the hospital. I could not trust the hospital to take care of him like my son and I did. We had all the medical equipment, such as hospital bed, commodes, oxygen machine, etc. The brain cancer he had controlled his motor skills and soon he was unable to walk. We picked him up from place to place from wheelchair to commode to chairs to couches etc. then to bed at night. He could not even feed himself. We did that for him. He would stare at the ceiling a lot, he could not focus his eyes. I would put my hand over his eyelids and then he would focus. I would say, look at me....and he would.

Has anyone had this experience. I am so upset about losing my husband and all the things he and we had to go through...I cannot believe it. If someone just had told me all these things and more would have happened, would not have been so shocked.

But his doctors told him nothing and told me nothing. My son and I were his sole caretakers from March to Sept.

Please say a prayer for me and my beautiful Steve my husband.

If anyone would like any information as to what we have gone through and the stages in which brain cancer takes your life, you can ask me questions. I wish someone had told me something.

God Bless You All, Rose

Dear Rose_ I am saying prayers for you and your family.  My husband is fighting this GBM IV since May and it has been a roller coaster ride for sure.

Stay strong, keep the good memories next to your heart and know that you are not alone in this journey.  You and your Son must have been wonderful Caregivers how lucky your husband was to have you both by his side.

Diane

Thank you for your reply. I will check out the Bereavement Board .  I am so sorry to hear about your Sister. I will keep her in my thoughts.

Take care, Rose

 

Dear Diane,

Thank you for your prayers. I need them. After it is all over, you feel the impact of the whole ordeal. How is your husband doing?

The doctor's did not even tell us how long my husband had.

They said we can't tell you. I guess they figured we'd know when the time comes, and we did. There were good days and bad days.

Sometimes, I would fool myself and say wow he seems to be getting better today and the hospice nurse would tell me, nothing has changed, he will not get better. I guess that's just part of loving someone and not wanting them to go.

Thank you for your support.

If you need to talk anytime, I'm here.

Rose

 

Rose,

I'm so sorry for you're loss, I am going through this with my wife. Today Hospice was here for the 1st time today and things seem to be going downhill fast. Yesterday she absolutely could not even walk on her own so I'm carrying her when she needs the bathroom etc. Monday we will get a hospital bed and my daughter will be flying home from the military. Say a prayer for my wjfe Sue Marincic  as I believe prayer always makes things a little better.

Bill

Dear Bill,

I will certainly say prayers for your wife Sue. I will light a candle for her in church as well. When my husband Steve no longer could walk we had a catheter put in because it made it so easy for him to just urinate through the tube and we would empty out the catheter bag. We also would change the tube and bag too.  Once the nurse shows you how to do it, you can do it too. My son and I did it. It will be easier for you, Bill. Also, we had a commode for my husband next to his bed so when he had bowel movements the commode was close by. Whenever you want to ask me anything or just talk,  I'm here.

Rose

 

 

Thank you Rose I believe that is the next step for Sue. We have the commode next to the bed and we will be getting a hospital bed Monday. It is so sad and was preventable (she smoked). Thank you for the prayers. God bless.

Bill

Bill,

I also wanted to mention that when we had to get my husband to the commode we would not carry him, we would get him from the hospital bed to the wheel chair and then transfer him to the commode. You have to find ways to do things that will make this easier for you.

Rose

Right now we have a power lift chair that Sue sits in and I put the commode right next to it and help her stand and help guide her to it then use it I'm going to do the same in the bedroom tonight. It is a learning experience, that is for sure.