Brain Cancer

That's great. That will help a lot. Yes, the you really experience things you never thought you would.  Sue is very fortunate to have you and your daughter. Take care of yourself. It's very important you get rest as well. I know people told me that but I kept on going. I looked at my face one morning and I had bags under my eyes so deep I could not believe it. It takes a toll on you that is unbelievable. But, I would do it all over again for my husband. 

Take care, Rose

On Sep 28, 2012 1:42 AM rmwhope wrote:

I just lost my husband to Brain Cancer. Has anyone here just lost a loved one to Brain Cancer? He passed away on Sept 17th. We took care of him at home. He never went to the hospital. I could not trust the hospital to take care of him like my son and I did. We had all the medical equipment, such as hospital bed, commodes, oxygen machine, etc. The brain cancer he had controlled his motor skills and soon he was unable to walk. We picked him up from place to place from wheelchair to commode to chairs to couches etc. then to bed at night. He could not even feed himself. We did that for him. He would stare at the ceiling a lot, he could not focus his eyes. I would put my hand over his eyelids and then he would focus. I would say, look at me....and he would.

Has anyone had this experience. I am so upset about losing my husband and all the things he and we had to go through...I cannot believe it. If someone just had told me all these things and more would have happened, would not have been so shocked.

But his doctors told him nothing and told me nothing. My son and I were his sole caretakers from March to Sept.

Please say a prayer for me and my beautiful Steve my husband.

If anyone would like any information as to what we have gone through and the stages in which brain cancer takes your life, you can ask me questions. I wish someone had told me something.

God Bless You All, Rose

Hello Rose it is Mike here ( lay researcher I try to be)

I am very very sorry to hear of your tragic loss and beleive me, I do know what you have beeb through and now going through. Our Doctors were more forth coming and told my beloved Wife Donna about 7 days after her operation that the GBM had grown back 5 CM and that she had a couple of weeks to live but I cared for her and kept her positive and administered the Medication ( Temedar) which failed to work  .

A dreadful time as I was travelling in a state of shock.

you can check my profile and read my posts, I would be very interested to know what your Husband job was and working and living enviroments as I am looking for patterns and family history of cancer.

Very kind wishes to you and your son at this dreadful time.

Mike Shelfer ( Australia) 

Hi Rose, you have gone thorough a very difficult time. I have no idea how you and others in your situation handle it.

Prayers for your husband,

Ravi

Hi Ravi,

Thank you so much for prayers.

It has been the hardest thing I have ever had to do. Something I will never forget.

It is very hard to deal with the situation, mentally and physically but when I looked at my husband is was all worth it.

He was the one with cancer not me and I had to give him the best care in the world. My son and I gave him that.

I cry everyday and I talk to him everyday.

Thank you for support.

Rose

hi mike

my mom collasped in june with a Stage 4 glioblastoma, she had some of the tumour removed then after a month she started treatment 6 weeks radiotherapy and chemo but that had to be stopped after 4 weeks due to her legs.

we are to go back on the 22nd of this month for the results im so scared and dont know what to expect ?

my mom keeps asking if it has cured her its so hard to have to say to her that it is not cureable, i feel like im bursting her bubble od hope all the time.

im too scared to ask what happens and when i just keep crying all the time.

im so sorry to hear of your loss .

there was no cancer in our family until this and mom did not work that much of her life , and ive only know her go to the doctors twice in my life and im 43,

all though this so far she has been very well even with the treatment and not took one tablet for any pain . its just so hard to except and feel im waiting for the worst to start.

regards elaine

Hi Eliaine,

I was reading your post. My husband just died 2 weeks ago.

When you said about your Mom's legs...is it because she cannot walk or she is weak in her legs?

That was the first thing to go for my husband. He got weaker and weaker and could no longer walk. He only took two courses of temodar...for two months. Then decided to stop. Really it would have only prolonged his life not cured him.

He lived for 7 months. I always told my husband he would get better because I believe that's what he wanted.

He never spoke of his condition and never asked me about anything so I assumed he did not want to talk about it.

So I left it at that. You really should ask what happens and what is to come. No one told us and that was wrong.

Stay strong, Elaine. I know you can do it. I cryed everyday too. You cannot help it. You watch your loved one slip away.

I was happy for the good days he had.

Blessings, Rose

Hi Elaine,

I can mirror everything that Rose just said to you. My wife is in her final days unable to walk and today unable to even drink. I too never told Sue as I wanted her to be positive but when we were at the Dr's 2 weeks ago he asked her if she was aware of what was happening and Sue said "I'm very sick and I'm gonna die". Everyone is different as to what they do and do not want loved ones to know. I chose not to tell Sue because we are Christians that have accepted Jesus and I was not worried about her Salvation. It has been a very bad time and I continue to cry every day, now with her having no quality of life I want her to just go home in peace. BTW my wife has mastecized brain cancer that started as small cell lung cancer from years of smoking. God bless and you may always talk to me iif need be.

Bill

Hi Bill,

I was reading your post. I believe three days before he died he could not drink either. But you know what we did...we got a syringe and filled it with water and let the water go into his mouth.  Although, you have to be careful they do not choke on the water, especially if they cannot swallow.

You can also try those little sponge sticks, dip them in water and put them into the mouth. It can help.

My husband has terrible breathing problems with mucus.

The last 3 days were the worst ever. I was so scared and upset I called the hospice nurse and she came over. She did not do much but made me feel better.

I will keep Sue in my prayers.

Rose

hi  Rose  im very sorry to hear about your husband my thoughts are with you .

my moms legs are due to cellulitus, so that is why they stopped chemo.

 she is convinced she will live to 100.

Im just not sure that she understands or her memory has been affected as she repeats herself a lot now.

thank you for  your reply

elaine

Hi, My heart goes out to you and your son.   My husband is battling a Grade IV Glioblasatoma, left temporal lobe.   We are going through some pretty rough things right now.   My brilliant husband is slowly losing his mind.   Hi right side is losing control.   The doctors do not tell us anything either.  They are willing to keep trying chemos until we say no more.   I feel helpless at this point.   I am taking care of him at home.  I am not sure how long that is possible.   My heart is breaking for him, for you, and for all brain cancer patients.