One patient with glioblastoma still alive nine years later
by livewithfaith on Fri Oct 05, 2012 10:51 PM
My cancer has spread to my bones and its very hard to at times because I have very sharp pain in my butt checks and it shoots down my legs. Does any one have this problem. My doctor wants to put a stimulator in me. I don't know if this is a good choice I dont want my cancer to spread more. I also go to CTCA does anyone go there.
by castrbn on Sat Oct 06, 2012 12:06 AM
You may have sciatia which is nerve pain that shoots down legs. I have that but not from cancer. Your doc may be talking about a tens unit which really helps. If his is what he is talking about, give it a try. the only thing you have to lose is pain!
by livewithfaith on Sun Oct 07, 2012 02:09 AM
On Oct 06, 2012 12:06 AM castrbn wrote: You may have sciatia which is nerve pain that shoots down legs. I have that but not from cancer. Your doc may be talking about a tens unit which really helps. If his is what he is talking about, give it a try. the only thing you have to lose is pain!
On Oct 06, 2012 12:06 AM castrbn wrote:
thank you, i will ask more about that as i also have the same problem down my arm
by castrbn on Sun Oct 07, 2012 05:03 AM
Hope you will find relief. be sure to ask questions, write them down if you need to. Its hard to remember what you are wondering about.
by barbstauff on Tue Oct 09, 2012 01:52 AM
I am sorry your cancer has spread. What you are describing sounds like it could be neuropathy, or nerve damage from the chemo. I have it in my right arm and it was very painful before I went on Lyrica. I also go to CTCA. I am in Philly, where are you?
by leshan on Thu Nov 01, 2012 01:05 PM
My wife has the same pains in the same areas plus lower back and is also stage 4 metastatic breast cancer which has spread to the bones.Her pain is intense and constant. Only thing we have found that helps is at six hourly intervals- 1 panadine extra plus one panadine forte .If you are not already taking this paracetamol/codine mix you may find that 2 Panadine extra alone will help.Be aware that the codine in Panadine extra and Panadine forte is highly addictive but most of the other drugs prescribed to treat this sort of pain are also addictive and some have troublesome side effects.It looks like we will have to go on the stronger stuff sooner than we would like so addiction is the least of our problems.If you go for the stimulator(It's for pain blocking not cancer treatment) please post how things go.Best of luck and hang in there.
by hhollyn on Fri Nov 02, 2012 11:58 PM
by Headhen on Sat Nov 03, 2012 02:26 AM
by SpringFlowers on Wed Nov 07, 2012 05:25 AM
Hiheadhen & Hholly..so good to hear from someone else who is refusing traditional hormone/chemo/rads... I was Dxd Jan/2011 at Stg4, opted for laser to remove tumor & any cancer detected, doing nutrients/diet, all soft tissue now free of mets, only in spine and as of Oct went on Cesium Chloride and feel it is helping rid the bone of invasion. It immediately stopped all backpain, unbelievable. So good to not have that misery following me everywhere. Next scan due in Feb, so we'll see if it is indeed getting the remaining cancer. I hope you will continue to improve. The more i read, the more I realize chemo does very little to rid the core cancer from the body, so why go thru the misery. The cesium is easy, tastes pretty yukky, but a quick down the hatch & something good to eat takes care of that...I got excellent results from supplements, especially Fucoidan, Maitake/Reishi/ShitakeMushroom, curcumin and of course the LaetrileB-17. Please share any additional info, we must all stick together to fight this creepy beast. God Bless and good luck, stay positive.
When you track a discussion, you will get notified by e-mail if anyone else posts a new message on this discussion. Are you sure you want to track this discussion?
If you stop tracking this discussion, you will no longer get notified by e-mail if anyone else posts a new message on this discussion. Are you sure you want to stop tracking this discussion?
If you were considering traveling for cancer treatment, which headline would you find more interesting?
Destination: HOPE. Cancer care that is worth the trip.
Over 84% of our patients travel to our hospital from another state
Neither headline is interesting
We care about your feedback. Let us know how we can improve your CancerCompass experience.