Although most said they'd let their physician know if asked, survey finds
by eddiec3434 on Sun Oct 07, 2012 10:01 PM
I recently had a tumor removed near the motor cortex. after the surgery the only deficits a had was on my right side. I presented with difficulty moving my right arm and leg. I had some speech difficulty and I'm still having trouble spelling and typing. These difficulties have subsided. The doc said the portion of the brain removed involved the pre motor planning. Anyway, I'm very fortunate and compared to others. Now the hospital's pathology report said the tumor was benign. How ever because of a discrepancy, they sent the slides to John Hopkins Labs. Their report came back with a diagnosis as Infiltrating low grade glioma grade 2. Now the part I'm confused about(like everything else) Is the tissue demonstrate mutant IDH1 expression? P53 labels rare Nuclei ? Ki67 labeling index is low. The cytoplasmic features are suggestive of a astrocytic neoplasm. HuH?
by shariv on Sat Oct 13, 2012 09:55 PM
Call your doctor and ask him/her. Your doctor will explain. If not, I would get a 2nd opinion. Where do you go? I would look on the US News and World Report website to see which hospitals in your area are highest in neurology and go there. I went to a local hospital and then switched to Cleveland Clinic. It is one of the best in the Us (I think it's #4 for neurology). It is SO completely different, and SO much better than the local hospital. Wish I had gone there in the first place!
I don't know "medical talk", but a glioma is cancer. A grade 2 is the same as a low grade. They both mean it is a slow growing tumor.
I have a grade 3 oligodendroglioma. This type of tumor is slow growing, but when it becomes grade 3, it grows faster. Mine has been stable since September 2011.
by eddiec3434 on Sun Oct 14, 2012 12:00 AM
Thank you very much for your reply. I live in South Orange County CA, The hospital (Mission Viejo Memorial) and Doctors are the best if not in the nation, but the world. I was just curious if anyone from a pateint's point of view could give me some clarification. I Have my first consult with a top ranked neuroncologist Monday. Wish me luck and thank you so much!!
by eternalife on Sun Oct 14, 2012 01:10 AM
My girlfriend has a type 2 oligo... slow growing yes, she had surgery in March, only radiation.. last scan was good... however, this kind can recur at a higher grade... ask you doc on monday all the particulars... sounds like you are in good hands there...
My friend is on all kinds of meds.. not sure as whenever I ask she seems to say she can't recall??? I am guessing she is on anti seizure meds... at least... ask about the meds that you may require should the situation change...
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