Small Cell Carcinoma - Stage 4

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Small Cell Carcinoma - Stage 4

by Cindy7 on Wed Sep 13, 2006 12:00 AM

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My brother just found out in July that he has small cell carcinomat, stage 4. It is in his bladder and brain - they cannot find any other place. He had the Gamma Knife on the brain, the next week he had the first chemo treatment 3 weeks ago: Cisplatin - 2 days, IV and VP-16, 3 days IV (out patient) My brother has also been doing lots of natural things. He is now deciding what to do next as the plan WAS to do 4 rounds of chemo (same as above) but he in opting out of cycle 2 with chemo until he feels he has looked at all options. Brother is feeling great now - more energy and vitality - contributes it to change of diet and nutrition. Looking for what other have/is doing - drugs and or nutrition. Any survivors? Wants to live many more years! Prognosis poor past 6 months. Thanks for your info. Cindy

Sclc With Mets

by Hollyrn on Tue Sep 19, 2006 12:00 AM

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Hi Cindy, My mother was diagnosed back in february with sclc with mets to pancreas, adreanls, liver and brain. I called cancer treatment centers of america for advice and they put us on the right tract. First of all we started the chemo, as the tumor in her lung was so large there was a possiblilty that her lung would collapse. She completed a full round of treatment and after a repeat cat scan determined the tumor was gone, her doctor recommended one more round - which she did. Along with all the chemo, I insisted that she had nutritional counciling. Our nutritionist contacted Dr Dalzell and we got my mother on Juice Plus supplements. You can find these at www.juiceplus.com. She was advized to take 2 fruit supplements in the morning, 2 vineyard supplements at noon, and 2 vegetable supplements at dinner. Along with this she also took a multivitamin (centrum) and 2 high dose fish oil capsules. We supplemented her diet with Boost Plus nutritional drink with a scoop of whey protein to help prevent any further weight loss. Her doctor initially told us she would have 2 months without treatment and 6 months to a year with treatment. She is presently in remission. She feels good and lost no further weight once we started the supplements. No cancer is present in any scans however the cancer in her brain left a scar which has caused her a problem with seizures. She is presently getting 20 rounds of radiation to remove any possible residual cancer that may be present. I know this is lengthy but I hope I have helped you a little. I think you have to treat the whole body - mind, body, soul. And as Dr Dalzell told me - human beings don't have expiration dates posted on their foreheads. I don't believe in timelines. Best of luck Holly

Sclc With Mets

by Cindy7 on Sun Sep 24, 2006 12:00 AM

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Thank you Holly for your reply. Nutrition is a great help. My brother after doing one round of chemo, has decided to stay with an all nutritional approach. He started the nutrition before the chemo. He has decided not to receive any more chemo at this time. He is feeling great. He is also doing eletrical impulses. He has read about 8 books and is doing an aggressive approach naturally. (He has seen 3 different Naturapaths to compare notes.) So far, so good. I'll keep you posted. He is working full days and said he hasn't felt this good for a long time. With much prayer, Cindy

Sclc

by Smiticks on Mon Nov 20, 2006 12:00 AM

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hi, my father was diagnosed with small cell in may this year. has met to bone. is your mother continuing to do well? i hope so. just trying to find out if the supplements really help much. thanks. ilam

Sclc

by Hollyrn on Tue Nov 21, 2006 12:00 AM

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Hi Ilam, The doctor gave my mother 2 rounds of chemo. She also had a spot on her brain. After the chemo there was no visible cancer on the ct scans and the doctor sent her for radiation of the brain, to be sure, as she had a couple seizures (that was scary). She felt great Aug thru October but developed a cough end of Oct. A ct scan revealed that the cancer is back, but small, in her lung. We found this out yesterday and we started the chemo again today. My mother continues to take the JuicePlus supplements, fish oil and a multivitamin. She also drinks boost plus with a scoop of whey protein powder. We keep her busy. I have had a hard time trying to get her to stop smoking. It is a work in progress. I think she is doing well considering she was 4th stage back in feb. with mets to the liver, brain, pancreas and adreanals. I do believe you have to treat it mind, body and soul. Do what he doctors say, take the supplements, relaxation techniques, spirituallity. I figure, it the vitamins and supplements only help 10% - I'll take the 10%!! The cancer may get her eventually, but not without a good fight. I also believe the mind plays a huge role in your outcome. She has done remarkable considering she was full of cancer at the beginning of the year. I will keep your father in my prayers - All the best Holly

Extensive Sclc

by Tammyj on Tue Dec 05, 2006 12:00 AM

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Hi Holly...I am responding to your message because you are the first small glimmer of hope I seen in print! My father was diagnosed in October with pancreatic cancer. I had taken him and my mom to the Dr. to review the results of a CT Scan and it was then that his Dr. told us that he had pancreatic cancer and that we'd better get his affairs in order; there was nothing they could do. His Dr. also told us there was a 5% chance that he was wrong. We had a biopsy done about 10 days later and by the grace of God, we were in the 5% category. It was discovered then that it was not pancreatic cancer but instead SCLC with mets to the pancreas. The prognosis is basically the same but the treatment options are quite different. We met with the oncologist on Nov. 1 and he started him on chemo that same day. We were told that without treatment he had approximately 5 weeks to live, probably less given his "rapidly detiorating state" and with treatment they could possibly "buy him 13 months." His chemo consists of Carboplatin on Day 1 and VP-16(etoposide) on days 1, 2 and 3 followed by a shot of Neuplasta on day 4. They hope to get 6 cycles in. After just the first cycle of chemo he made an amazing turn around. Prior to the chemo, he had lost 20lbs in one month and was sliding downhill at an alarming rate. He couldn't eat a thing and everything in his body hurt. It wasn't long after the 1st chemo cycle that he started eating again and I mean really eating. I was discouraged to see that he had lost another 3lbs when we went for cycle 2. I did start him on the Boost supplements but he only drinks one per day. It seems like he eats constantly throughout the day. He eats really well too...oatmeal and raisins, peanut butter toast, steak,chicken, potatoes. I truly believe that part of this battle will be his nutrition and I'm unsure of where to start. I have been approached by one of his nurses about a product called Reliv. Have you ever heard of it? I've not heard anything about the Juice Plus product until I read your post. What is the fish oil supplement for? How is your Mom doing? Did the cancer respond to the chemo? When they start the chemo again, do they use the same chemo that they originally used? My dad won't give up the smoking either and that is so frustrating. I tell him that it's never too late to quit but it's a powerful addiction. My mother smokes as well so that makes it difficult too. I do hope your mother is doing well and I will say an extra prayer for your family. God Bless...Tammy J

Cancer Center of America

by Applek on Wed Dec 06, 2006 12:00 AM

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Dear Holly, My father has SCLC and went through traditional treatment of both 6 cycles of Chemo and Radiation therapy 3 months ago. My father had MRI yesterday, and oncologist told us that he has 2 abnormal spots in his brain. SO he concludes that it has mets to the brain. We were devastating and he suggestsed whole brain radation. Do your mom has experience in whole brain radiation? I was wondering whether gamma knife or focal radiation would be better treatment for him since there are two spots so far. However, our oncologist still recommend WBR and said otherwise more spots may appear in next scan. We are scared and concerned. Please advise on your WBR or Gamma Knife experiences. I also would like to know more about cancer center of America and your contacts and where is their institution or hospitals. we are in Seattle and when I called cancer care of America, they told us they do not have facility in seattle and we would have to relocate. The local center was not able to provide much support. So I was disappointed. THe representative I talked to on the phone also was not too friendly. Their system seems kind of complicated and no local representative we can go to. We would have to relocate. Thank you

RE: Extensive Sclc

by Hollyrn on Sun Dec 10, 2006 12:00 AM

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Hi Tammy,

 I understand what you are going through.  The cancer came back in my Mom's lung.  She is presently going through chemo again and it is a different mix.  When she first went through her chemo treatments she felt fairly well, other than feeling quite tired.  Her appetite picked up.  I had her drink 3 boosts a day with a scoop of whey protein powder mixed in.  She maintained her 90 lb weight through her chemo and gained 10 lbs after her chemo was over.  She was in remission from August till the end of october and then she developed a cough.  I contacted the doctor and sure enough it was back - but only in her lung at this point.  This time her chemo is a little bit harder on her.  She finally tried the nicotine patch - so maybe that will help a little.  She gets short of breath at times. I am going to request home oxygen for her.  The fish oil pills are full of antioxidents. Between the juice plus capsules, fish oil, boost, protein powder and vitamins we are boosting her immune system to help her fight off the cancer and keep the healthy cells healthy as long as we can. 

I refuse to let the doctor give my mother a timeline on her life expendency.  My mom is just the type of person that, if given 6 months, will live 6 months.  Unlike me, I have the opinion that if you give me 6 months - I'll show you - and live a year.  I don't want her hope taken away.  If the supplements and vitamins only help 5% - I'll take that 5%. 

Although I think my mom see's the writing on the wall she wants to fight this disease - and I will be with her every step of the way, the way she has always been there for me.  Keep your dads treatment well rounded. Do what the doctor says medically, keep dad well nourished including supplements,(call cancer treatment centers of america for more info on this)  hold tight to your faith and let your dad know you are praying for him (that is important to my mom - and she was never a really religious person), thankfully he has your mother with him - this helps prevent him from feeling lonely.

This is no easy road and your dad needs someone to be a rock - sounds like that someone is you. Hold on to hope.  Miricles do happen.  My prayers are with you and your dad.  God bless  -  Holly 

RE: Cancer Center of America

by Hollyrn on Sun Dec 10, 2006 12:00 AM

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Hi Applek

So sorry to hear of your fathers mets to the brain - I know how devistating that is.  My mother recieved radiation but it was pointed directly at the area that had the cancer.  Prior to this my mom had chemo which appeared to have removed the cancer (this is unusual)  I requested she have radiation to irradicate any posible remainder of cancer.  So far, so good - but its only been a couple months.  The brain cancer did, however, cause my mother to have seizures.

I contacted Cancer Treatment Centers of America.  You can check them out at www.cancercenter.com.  you can also call and talk with an oncology information specialist at 800-615-3055.  They were very helpful to me.  They can't tell you what to do but they can help you get in contact with the right people.

I wish you all the best and will keep your father in my prayers.

Holly

RE: Extensive Sclc

by Andieb on Sat Dec 30, 2006 12:00 AM

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Holly,

First of all, I want to say that your notes are an inspiration to me as I am going through the difficult phase of initial SCLC diagnosis for my 57 year mother.  All tests indicate that she is in limited stage...which we view as our first blessing.  I am the primary care-giver and am having trouble comprehending that the woman whom is MOST important to me has this terrible disease. It is all a very new experience and I am trying to absorb as much imformation as I can to direct her during this time.

Couple of questions:

Was your Mom diagnosed in limited stage? Was the brain the 1st place to ms? How long did that take? Most importantly, is she enjoying her life or does she pretty much always feel bad?

I know it must be hard for you to answer messages like the one I am sending you because your mother's cancer seems to be progressing...but if you can at all help me understand what is coming my way, I would greatly appreciate it.

With great respect,

Andie

 

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