One patient with glioblastoma still alive nine years later
by Cindy7 on Wed Sep 13, 2006 12:00 AM
by Hollyrn on Tue Sep 19, 2006 12:00 AM
by Cindy7 on Sun Sep 24, 2006 12:00 AM
by Smiticks on Mon Nov 20, 2006 12:00 AM
by Hollyrn on Tue Nov 21, 2006 12:00 AM
by Tammyj on Tue Dec 05, 2006 12:00 AM
by Applek on Wed Dec 06, 2006 12:00 AM
by Hollyrn on Sun Dec 10, 2006 12:00 AM
I understand what you are going through. The cancer came back in my Mom's lung. She is presently going through chemo again and it is a different mix. When she first went through her chemo treatments she felt fairly well, other than feeling quite tired. Her appetite picked up. I had her drink 3 boosts a day with a scoop of whey protein powder mixed in. She maintained her 90 lb weight through her chemo and gained 10 lbs after her chemo was over. She was in remission from August till the end of october and then she developed a cough. I contacted the doctor and sure enough it was back - but only in her lung at this point. This time her chemo is a little bit harder on her. She finally tried the nicotine patch - so maybe that will help a little. She gets short of breath at times. I am going to request home oxygen for her. The fish oil pills are full of antioxidents. Between the juice plus capsules, fish oil, boost, protein powder and vitamins we are boosting her immune system to help her fight off the cancer and keep the healthy cells healthy as long as we can.
I refuse to let the doctor give my mother a timeline on her life expendency. My mom is just the type of person that, if given 6 months, will live 6 months. Unlike me, I have the opinion that if you give me 6 months - I'll show you - and live a year. I don't want her hope taken away. If the supplements and vitamins only help 5% - I'll take that 5%.
Although I think my mom see's the writing on the wall she wants to fight this disease - and I will be with her every step of the way, the way she has always been there for me. Keep your dads treatment well rounded. Do what the doctor says medically, keep dad well nourished including supplements,(call cancer treatment centers of america for more info on this) hold tight to your faith and let your dad know you are praying for him (that is important to my mom - and she was never a really religious person), thankfully he has your mother with him - this helps prevent him from feeling lonely.
This is no easy road and your dad needs someone to be a rock - sounds like that someone is you. Hold on to hope. Miricles do happen. My prayers are with you and your dad. God bless - Holly
So sorry to hear of your fathers mets to the brain - I know how devistating that is. My mother recieved radiation but it was pointed directly at the area that had the cancer. Prior to this my mom had chemo which appeared to have removed the cancer (this is unusual) I requested she have radiation to irradicate any posible remainder of cancer. So far, so good - but its only been a couple months. The brain cancer did, however, cause my mother to have seizures.
I contacted Cancer Treatment Centers of America. You can check them out at www.cancercenter.com. you can also call and talk with an oncology information specialist at 800-615-3055. They were very helpful to me. They can't tell you what to do but they can help you get in contact with the right people.
I wish you all the best and will keep your father in my prayers.
by Andieb on Sat Dec 30, 2006 12:00 AM
First of all, I want to say that your notes are an inspiration to me as I am going through the difficult phase of initial SCLC diagnosis for my 57 year mother. All tests indicate that she is in limited stage...which we view as our first blessing. I am the primary care-giver and am having trouble comprehending that the woman whom is MOST important to me has this terrible disease. It is all a very new experience and I am trying to absorb as much imformation as I can to direct her during this time.
Couple of questions:
Was your Mom diagnosed in limited stage? Was the brain the 1st place to ms? How long did that take? Most importantly, is she enjoying her life or does she pretty much always feel bad?
I know it must be hard for you to answer messages like the one I am sending you because your mother's cancer seems to be progressing...but if you can at all help me understand what is coming my way, I would greatly appreciate it.
With great respect,
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