Any experience at Cedars Sinai for treatment of GBM?

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Any experience at Cedars Sinai for treatment of GBM?

by ravirajagopalan on Sun Oct 14, 2012 06:09 PM

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Hi all, one of the options we are looking at for my wife's recurrent GBM is a clinical trial (immuno) at Cedars Sinai. I will contact them tomorrow. Just wanted to see if anyone on this site has had experience at Cedars Sinai hospital in dealing with GBM - and if so, what the feedback was.

Really appreciate any responses,

Regards,

Ravi

RE: Any experience at Cedars Sinai for treatment of GBM?

by siblingof on Sun Oct 14, 2012 09:05 PM

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No, but I've emailed researchers there a couple times with regard to previous studies, and they've been kind and very helpful via email.

RE: Any experience at Cedars Sinai for treatment of GBM?

by RobinMB on Sun Oct 14, 2012 11:04 PM

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The doctors and staff at Cedars Sinai are amazing.  My husband had a recurrence of GBM, and Dr. Yu performed the surgery to remove his tumors from his right frontal lobe.  It went very well.  My husband doesn't have any deficits from the surgery.  We are so thankful.  Dr. Yu is a very skilled surgeon, and he is a very compassionate person as well.  I would highly recommend Cedars Sinai.  Best wishes! 

RE: Any experience at Cedars Sinai for treatment of GBM?

by huxley2006 on Mon Oct 15, 2012 02:26 PM

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Ditto what RobinMB. said , I Had the same experience with Dr Yu and Cedars in general. They are top notch. I would say there may be better choices for the vaccine. Check out UCLA they have some great vaccine trials going on but Cedars is terrific.

 

Hux..

 

RE: Any experience at Cedars Sinai for treatment of GBM?

by Gaylec on Tue Oct 16, 2012 05:38 AM

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I too have heard good things about Cedars, but you also might want to check UCLA - a major brain cancer center with lots of clinical trials as well.  This site lists clinical trials and other info there.  http://www.neurooncology.ucla.edu/PatientCare/WorldClassOnco

RE: Any experience at Cedars Sinai for treatment of GBM?

by ravirajagopalan on Wed Oct 31, 2012 05:32 AM

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Hi all, thanks for the feedback. Dr. Yu did the surgery and we had good experience with him. UCLA was our other choice - but the trial that seemed most promising was full.

RE: Any experience at Cedars Sinai for treatment of GBM?

by ravirajagopalan on Wed Oct 31, 2012 05:34 AM

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And yes, Dr. Yu is very easy to talk to and very approachable. Always responded to questions I asked via email and discussed details of operation very patiently.

RE: Any experience at Cedars Sinai for treatment of GBM?

by NICESNAIL on Thu Nov 01, 2012 02:12 AM

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I have GBM and had surgery from Dr. Yu 6/12. My initial surgery was at MDA 01/10, then moved treatment to Duke for a trial. 2nd surgery at Duke. Went to Cedars for 3rd surgery for the ICT-107 trial for regrowth. OUTSTANDING hospital and would highly recommend Dr. Yu.  The immunotherapy there is having phenominal results!!! Go to Immunocellular's homepage and see the latest press releases. GREAT choice from someone who has been there. Best of luck!

RE: Any experience at Cedars Sinai for treatment of GBM?

by ravirajagopalan on Thu Nov 01, 2012 01:00 PM

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Hi Nicesnail, the trial site says ICT-107 is for newly diagnosed patients only. Is there another version for recurrent?

RE: Any experience at Cedars Sinai for treatment of GBM?

by ourVictory on Thu Nov 01, 2012 07:10 PM

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I signed all the paperwork to participate in a clinical trial at Cedars Sinai. 2-3 months later I was told the tumor was not big enough to qualify(5 cms. was not big enough?)  I insisted two- three months later and was told my GBM was mostly water. If possible, can you share what qualified you to your Immunotherapy trial-if it was a trial-. And after what treatments or conditions where you able to participate and also your current results. Still I do agree they are a good choice since I am alive after24mos.!

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