essential thrombocytosis

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essential thrombocytosis

by kmenear76 on Mon Oct 22, 2012 04:15 AM

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Hi.  I am new to this message board.  I have had ET since 2009.  I take Hydroxyurea.  The dose depends on my blood work or symptoms.  I do fine sometimes.  Other times, I feel like I can't make it another day.  I'd like to talk with others that have ET since it is so rare.  I flew out to Mayo Clinic, Fl for a second opinion, since I was skeptical of the treatment options I was given here in my state.  The symptoms are what concerns me: muscle spasms, migraines, fatigue.  If anyone with ET would like to talk, feel free to contact me.  Thanks.

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