Researchers still found 'excellent' survival rates for both primary, secondary disease
by kmenear76 on Mon Oct 22, 2012 04:15 AM
Hi. I am new to this message board. I have had ET since 2009. I take Hydroxyurea. The dose depends on my blood work or symptoms. I do fine sometimes. Other times, I feel like I can't make it another day. I'd like to talk with others that have ET since it is so rare. I flew out to Mayo Clinic, Fl for a second opinion, since I was skeptical of the treatment options I was given here in my state. The symptoms are what concerns me: muscle spasms, migraines, fatigue. If anyone with ET would like to talk, feel free to contact me. Thanks.
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