One patient with glioblastoma still alive nine years later
by defytheodds on Wed Oct 24, 2012 10:25 PM
My deepest blessings go out to each and every one of you. This journey is life changing in every aspect of its meaning. I pray for the best changes possible. The best quality of life and the best days free from sickness and pain. May we have more happy days than sad and more laughter than tears and constant fear. I hold onto Faith strongly because I believe that if you have Faith nothing shall be impossible.
I have been battling with what they call a “Colon type cancer” for over three years now. The primary is unknown. There is no protocol for my cancer so we treat it as colon cancer. I have had 3 surgeries to remove large tumors on my ovaries, and the dome of my bladder. I have mets to the lymph nodes in the groin and abdominal area and spots on my liver and lungs. I have not had much success in finding a regime that has produced positive results. Rather, faced intolerable side-effects and tumors increased in size requiring surgery. I am now recovering from my 4 surgery for severe bowel obstruction caused by scar tissue. Chemo was halted due to surgery and recovery.
I was not keen on continuing with my current treatment because I had no quality of life – so sick. I was doing Irinotecan and Bevacizumab (Avastin) and Capeceitabine (Xeloda) pills. I continue with the pills for 2 weeks and then I have a week off. So treatment is every 3 weeks. I have asked to take the Irinotecan out because I can not tolerate it and only do Avastin and Xeloda.
Has anyone taken just these 2 drugs as part of their treatment? If so, have you had any benefits? At this point, I will be happy with just keeping things stable. I want some of my life back. Being sick in bed all the time becomes depressing and dark. I’ve lost the person I used to be but I haven’t lost my Faith – yet.
I am really currious to know if anyone is or has done this type of treatement.
Thanks so much everyone,
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