new diagnosis

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new diagnosis

by wendy55 on Wed Oct 31, 2012 09:17 PM

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I came across this site in my desperate attempt to find answers. My 11 year old has just been diagnosed with germinoma, we are all devastated. He starts radiotherapy in just over a weeks time. He has a right sided tremor and weakness does anyone know if/when this will get better? We are in the UK. He has a reservoir to correct the hydrocephalus and this has helped with his sleepiness. His left eyelid has improved and is not drooping as much. Can anyone please give me any advice or words to help us through this time. Thank you

RE: new diagnosis

by ourVictory on Sat Nov 03, 2012 09:55 PM

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My glioblastoma effects eased a lot after my surgery compared to two weeks before surgery. eventhough some effects nausea and seizures- they where never really bad except for a terrible day and night headache, this meaning slight tremors on my left thumb for seconds and vomiting once for a day  are extremely mild compared to before surgery. After months of my surgery I confused one of those so called seizures to what I thought was a seizure that ended up being fly landing and walking on my skin.Almost no symptoms after a year and now after two years mostly fatigue, from chemotherapy but with a decent life quality...age they say is at his-your son's advantage. For your information 32 years ago three doctors told me I would survive for around, three, two, one month and my surgeon told me he would'nt have surgery if he was in my situation.I decided to have it, And I am still here regardless...and will aim for no less than 30 more years...

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