One patient with glioblastoma still alive nine years later
by Cando on Thu Nov 01, 2012 11:28 PM
by GBMBGONE on Fri Nov 02, 2012 01:31 AM
cando, i am so sorry to hear this. My thoughts and prayers are with you.
by Spouseof on Fri Nov 02, 2012 01:39 AM
by Gaylec on Fri Nov 02, 2012 03:00 AM
Cyber hugs to you Cando. So sorry you and your loved one have had to endure this horror. You are in my thoughts and prayers.
Gaylec - wife of GMB warrior John.
by karynk on Fri Nov 02, 2012 01:53 PM
I understand this on so many levels Cando! Such a similar situation here, although being a non-GBM I had to take some measures you did not. Thinking of you during this very hard time!
by siblingof on Fri Nov 02, 2012 02:03 PM
by modesta on Fri Nov 02, 2012 03:41 PM
by Cando on Sat Nov 03, 2012 10:01 PM
by dbrinker on Sun Nov 04, 2012 12:54 PM
On Nov 01, 2012 11:28 PM Cando wrote: Now into week 4of hospitalization, over the weekend he seizured again continually and was intubated and ventilated for 24 hours so the seizures could be controlled. He is totally without speech now, and likely does not understand either although he focuses intently on my face and relaxes when I am there. We decided today to stop all treatment except for the anti seizure medications that are given by IV. No feeding and I refused to have a permanent feeding tube inserted, no hydration unless he drinks it. We did not even make it to the six months of Trmodal. He is terribly restless, and I have asked that he be kept sedated. This is so much faster than I thought it would be.
On Nov 01, 2012 11:28 PM Cando wrote:
by niallsmum on Sun Nov 04, 2012 05:45 PM
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