This is it.

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This is it.

by Cando on Thu Nov 01, 2012 11:28 PM

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Now into week 4of hospitalization, over the weekend he seizured again continually and was intubated and ventilated for 24 hours so the seizures could be controlled. He is totally without speech now, and likely does not understand either although he focuses intently on my face and relaxes when I am there. We decided today to stop all treatment except for the anti seizure medications that are given by IV. No feeding and I refused to have a permanent feeding tube inserted, no hydration unless he drinks it. We did not even make it to the six months of Trmodal. He is terribly restless, and I have asked that he be kept sedated. This is so much faster than I thought it would be.

RE: This is it.

by GBMBGONE on Fri Nov 02, 2012 01:31 AM

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cando, i am so sorry to hear this. My thoughts and prayers are with you.

RE: This is it.

by Spouseof on Fri Nov 02, 2012 01:39 AM

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I am truly sorry for your pain. I hope he doesn't suffer long and goes peacefully.

RE: This is it.

by Gaylec on Fri Nov 02, 2012 03:00 AM

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Cyber hugs to you Cando.  So sorry you and your loved one have had to endure this horror.  You are in my thoughts and prayers.

Gaylec - wife of GMB warrior John.

RE: This is it.

by karynk on Fri Nov 02, 2012 01:53 PM

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I understand this on so many levels Cando!  Such a similar situation here, although being a non-GBM I had to take some measures you did not.  Thinking of you during this very hard time!

-Karyn

RE: This is it.

by siblingof on Fri Nov 02, 2012 02:03 PM

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Cando, I'm so sorry.

RE: This is it.

by Cando on Sat Nov 03, 2012 10:01 PM

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Thank you all for your support. We finally managed to get a drug cocktail that keeps him comfortable, although he still has moments of agitation. I am exhausted, and have little support in the way of family to spell me off. I won't leave him alone at the hospital. He continues to seizure despite all the medication. This an ugly f****** disease.

RE: This is it.

by dbrinker on Sun Nov 04, 2012 12:54 PM

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On Nov 01, 2012 11:28 PM Cando wrote:

Now into week 4of hospitalization, over the weekend he seizured again continually and was intubated and ventilated for 24 hours so the seizures could be controlled. He is totally without speech now, and likely does not understand either although he focuses intently on my face and relaxes when I am there. We decided today to stop all treatment except for the anti seizure medications that are given by IV. No feeding and I refused to have a permanent feeding tube inserted, no hydration unless he drinks it. We did not even make it to the six months of Trmodal. He is terribly restless, and I have asked that he be kept sedated. This is so much faster than I thought it would be.
Cando: I'm so very sorry sending you hugs & praying for strength

RE: This is it.

by niallsmum on Sun Nov 04, 2012 05:45 PM

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I am so sorry to read what you are going through. And, yes, this f------ cancer stinks. I HATE it. I am sending you my love, prayers and warmest thoughts. Please don't forget to take care of YOU too - you must be exhausted. God bless x x
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