One patient with glioblastoma still alive nine years later
by ws1953 on Mon Nov 05, 2012 02:31 AM
My younger brother has been diagnosed with Pancreatic Cancer two years ago. he is getting treatment at MD anderson in Houston, Texas. He was doing ok until very recently. Chemo was working and he was having almost a normal life. However; in the past three months he is loosing a lot of weight. He we from size 40 to 34. He can't eat any thing and does not have any apetite. He vomit whenever he eats some thing.
His doctor are not prescribing him any thing for apetite or vomit. I feel some time that his doctors are not as aggressive as they should have been.
Can some one provide any suggestion or advice what should we do in this situation? Is any one aware of any alternative treatment or any trial therapy in progress? How about Dr. Gonzalez or Dr. Bruzynski?
Thanks for your help.
Note: He is not a candiate for surgery because the tumor is on his head. His cancer has not metastisize.
by Headhen on Mon Nov 05, 2012 03:06 AM
by bushy on Mon Nov 05, 2012 03:12 AM
What is the name of the chemo being used at present
by ws1953 on Mon Nov 05, 2012 03:24 AM
Thanks. Let me find out and get back to you.
by tlbschwab on Mon Nov 05, 2012 03:37 AM
I'm not a Dr., but from what I have read if he does not have mets or artery/vein involvement they should be able to do a whipple on the head and remove the tumor. Why did they say they can't do surgery?
What chemo is he on? MD Anderson is one of the best PC hospitals out there (we did Johns Hopkins for my mom). Why are they not prescribing anti nausea meds to him? He won't have an appetite if he is not on something to help with the chemo. Have they checked his tumor markers or given a CT scan? I have heard of good results from the folfirinox chemo, is that what your brother is on?
Praying he gets his appetite back, but I think he will need some meds to help if he has lost that much weight!
by ws1953 on Mon Nov 05, 2012 03:55 AM
Thanks for your quick response. It is very much appreciated.
He is going for CAT Scan tomorrow. His tumor markers were 100 point up from last time. I believe his current tumor markers are around 900. I don't know type of CHemobut I will find out and let you know.
Again thanks for your response and kind words. Hoping your mom is doing better abd my thoughts and prayers arwe with your family.
by tlbschwab on Mon Nov 05, 2012 04:07 AM
by tlbschwab on Mon Nov 05, 2012 04:10 AM
by ws1953 on Tue Nov 06, 2012 01:53 AM
Can you please provide additional information?
by grantkwok on Wed Nov 07, 2012 11:50 AM
My mum is having Curcumin therapy and Ginsenoside RH2 at the same time. appetite is ok but not yet prove to have cureing performance. Doctor is still saying "last 3 month" for her.
However, her life quality is ok. eat, sleep, small walk is not bad.
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