my tumor marker becomes higher after the folfrinox treatment

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my tumor marker becomes higher after the folfrinox treatment

by pingpingli888 on Fri Nov 09, 2012 02:00 PM

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Since my pancreatic cancer spread into my liver, I start to receive folfrinox treatment. The blood test came out yesterday after 2 treatment the tumor marker becomes higher from 258 to 690. Doctor said, it might because of the treatment is breaking down the cancer cells, caused the fause marker high. It will settle down in a months or so...

Any one had such experience beofre?  

RE: my tumor marker becomes higher after the folfrinox treatment

by CatherineAngus on Sat Nov 10, 2012 06:31 AM

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Hi Pinpingli

I think you need to keep going with the chemo and see what the trend is after another round of folfirinox. Many things can affect CA19.9 - and your doctor will be looking for the trend, not making assumptions based on one reading. It sounds to me like it is too early to tell. My fiance's CA19.9 for example went from 180 to 1600 when he stopped Gemzar; then we waited, and the following readings were 2000, 2100, 2300 etc - so, it is obviously going up. But yours I think is too early to tell.

Good luck to you and hope you are feeling okay!

Catherine

RE: my tumor marker becomes higher after the folfrinox treatment

by sheann on Sat Nov 10, 2012 01:18 PM

Quote | Reply

On Nov 10, 2012 6:31 AM CatherineAngus wrote:

Hi Pinpingli

I think you need to keep going with the chemo and see what the trend is after another round of folfirinox. Many things can affect CA19.9 - and your doctor will be looking for the trend, not making assumptions based on one reading. It sounds to me like it is too early to tell. My fiance's CA19.9 for example went from 180 to 1600 when he stopped Gemzar; then we waited, and the following readings were 2000, 2100, 2300 etc - so, it is obviously going up. But yours I think is too early to tell.

Good luck to you and hope you are feeling okay!

Catherine

Hello, I was on folfirinox for 8 sessions shrunk mass by 30% since then it has been stable and I have had no treatment since June, my Doctor does not go by the tumor markers just a CT scan every 3 months, it has been 14 months since diagnosis with mets to the liver and nodes, I am feeling good, please give folfirinox a little more time, it seems to be having good results. Sheann 

RE: my tumor marker becomes higher after the folfrinox treatment

by pingpingli888 on Fri Nov 30, 2012 02:23 PM

Quote | Reply

On Nov 10, 2012 6:31 AM CatherineAngus wrote:

Hi Pinpingli

I think you need to keep going with the chemo and see what the trend is after another round of folfirinox. Many things can affect CA19.9 - and your doctor will be looking for the trend, not making assumptions based on one reading. It sounds to me like it is too early to tell. My fiance's CA19.9 for example went from 180 to 1600 when he stopped Gemzar; then we waited, and the following readings were 2000, 2100, 2300 etc - so, it is obviously going up. But yours I think is too early to tell.

Good luck to you and hope you are feeling okay!

Catherine

Hello, thanks for all the responses. The new blood test result came after the 3rd round of Folfrinox treatment, the tumor marker CA19-9 drop from prenious 690 to 279 ! I am so excited. My doctor will give me another test after 2 more treatment. Hope this Folfrinox is the right treatment for me to control and reduce the spread.

RE: my tumor marker becomes higher after the folfrinox treatment

by pingpingli888 on Fri Nov 30, 2012 02:33 PM

Quote | Reply

On Nov 10, 2012 1:18 PM sheann wrote:

On Nov 10, 2012 6:31 AM CatherineAngus wrote:

Hi Pinpingli

I think you need to keep going with the chemo and see what the trend is after another round of folfirinox. Many things can affect CA19.9 - and your doctor will be looking for the trend, not making assumptions based on one reading. It sounds to me like it is too early to tell. My fiance's CA19.9 for example went from 180 to 1600 when he stopped Gemzar; then we waited, and the following readings were 2000, 2100, 2300 etc - so, it is obviously going up. But yours I think is too early to tell.

Good luck to you and hope you are feeling okay!

Catherine

Hello, I was on folfirinox for 8 sessions shrunk mass by 30% since then it has been stable and I have had no treatment since June, my Doctor does not go by the tumor markers just a CT scan every 3 months, it has been 14 months since diagnosis with mets to the liver and nodes, I am feeling good, please give folfirinox a little more time, it seems to be having good results. Sheann 

Sheann, so you didnot have surgery, just folfrinox?

I had whipple, and after 5 months maintenance chemo, we found the mets to the liver and started folfrinox. I am going to have my 5th folfrinox treatment next monday. another bloodtest and CT will be expected to decide if my mets is under control.  How do you handle this folfrinox treatment?  It is pretty hard for me.

 

RE: my tumor marker becomes higher after the folfrinox treatment

by sheann on Fri Nov 30, 2012 07:29 PM

Quote | Reply

On Nov 30, 2012 2:33 PM pingpingli888 wrote:

On Nov 10, 2012 1:18 PM sheann wrote:

On Nov 10, 2012 6:31 AM CatherineAngus wrote:

Hi Pinpingli

I think you need to keep going with the chemo and see what the trend is after another round of folfirinox. Many things can affect CA19.9 - and your doctor will be looking for the trend, not making assumptions based on one reading. It sounds to me like it is too early to tell. My fiance's CA19.9 for example went from 180 to 1600 when he stopped Gemzar; then we waited, and the following readings were 2000, 2100, 2300 etc - so, it is obviously going up. But yours I think is too early to tell.

Good luck to you and hope you are feeling okay!

Catherine

Hello, I was on folfirinox for 8 sessions shrunk mass by 30% since then it has been stable and I have had no treatment since June, my Doctor does not go by the tumor markers just a CT scan every 3 months, it has been 14 months since diagnosis with mets to the liver and nodes, I am feeling good, please give folfirinox a little more time, it seems to be having good results. Sheann 

Sheann, so you didnot have surgery, just folfrinox?

I had whipple, and after 5 months maintenance chemo, we found the mets to the liver and started folfrinox. I am going to have my 5th folfrinox treatment next monday. another bloodtest and CT will be expected to decide if my mets is under control.  How do you handle this folfrinox treatment?  It is pretty hard for me.

 

No I wasn't able to have surgery because of mets to the liver and nodes, the folfirinox was hard on me for the first few months then my Doctor reduced it by 15% due to the side effects especially the neuropathy (tingles in the hands & feet) which helped a lot, I had my last treatment June, as I mentioned before my Doctor dose not go by tumor markers, ct scan June and September showed every thing stable, I am scheduled for another scan January, when there is a change for the worst I will go right back on folfirinox and hope that it will work again.  I am feeling good eating well and my energy level is great, I was first diagnosed September 2011, the surgeon I saw back then gave me 3 to 6 months so I am not doing to bad almost 15 months. Hope all goes well for you, I did have trouble eating to begin with and lost close to 20 lbs. I drank lots of milk, milk shakes, baked custard, pasta which I called easy food, also drank a lot of water. I do hope this info will help and I wish you luck, I also pray a lot and I am very thankfull for each day. Blessings Sheann

RE: my tumor marker becomes higher after the folfrinox treatment

by pingpingli888 on Sat Dec 01, 2012 01:16 AM

Quote | Reply

On Nov 30, 2012 7:29 PM sheann wrote:

On Nov 30, 2012 2:33 PM pingpingli888 wrote:

On Nov 10, 2012 1:18 PM sheann wrote:

On Nov 10, 2012 6:31 AM CatherineAngus wrote:

Hi Pinpingli

I think you need to keep going with the chemo and see what the trend is after another round of folfirinox. Many things can affect CA19.9 - and your doctor will be looking for the trend, not making assumptions based on one reading. It sounds to me like it is too early to tell. My fiance's CA19.9 for example went from 180 to 1600 when he stopped Gemzar; then we waited, and the following readings were 2000, 2100, 2300 etc - so, it is obviously going up. But yours I think is too early to tell.

Good luck to you and hope you are feeling okay!

Catherine

Hello, I was on folfirinox for 8 sessions shrunk mass by 30% since then it has been stable and I have had no treatment since June, my Doctor does not go by the tumor markers just a CT scan every 3 months, it has been 14 months since diagnosis with mets to the liver and nodes, I am feeling good, please give folfirinox a little more time, it seems to be having good results. Sheann 

Sheann, so you didnot have surgery, just folfrinox?

I had whipple, and after 5 months maintenance chemo, we found the mets to the liver and started folfrinox. I am going to have my 5th folfrinox treatment next monday. another bloodtest and CT will be expected to decide if my mets is under control.  How do you handle this folfrinox treatment?  It is pretty hard for me.

 

No I wasn't able to have surgery because of mets to the liver and nodes, the folfirinox was hard on me for the first few months then my Doctor reduced it by 15% due to the side effects especially the neuropathy (tingles in the hands & feet) which helped a lot, I had my last treatment June, as I mentioned before my Doctor dose not go by tumor markers, ct scan June and September showed every thing stable, I am scheduled for another scan January, when there is a change for the worst I will go right back on folfirinox and hope that it will work again.  I am feeling good eating well and my energy level is great, I was first diagnosed September 2011, the surgeon I saw back then gave me 3 to 6 months so I am not doing to bad almost 15 months. Hope all goes well for you, I did have trouble eating to begin with and lost close to 20 lbs. I drank lots of milk, milk shakes, baked custard, pasta which I called easy food, also drank a lot of water. I do hope this info will help and I wish you luck, I also pray a lot and I am very thankfull for each day. Blessings Sheann

Your information is very helpful.

I am also suffering from the newropathy, tingles not only in the hands and feet, also goes on my face, but it becomes better on the second week. I have treatment once every 2 weeks. Once the side effect stops, my appetite comes back, and energy level goes high. My surgeon told me I was "cancer free" after the Whipple. The surgery was a big success. I recovered very fast. But never expected it spread into my liver in september. Doctor told me 6 month to a year to live. I don't believe it.  I lost 15 lbs from surgery, and  6 lbs from folfirinox.

A lot people told me cancer grows on milk products. I am not sure if it is ture, however I stopped drinking milk. Drinking liquid is a problem for me. Ensure makes me nausea. Now I am drinking Japenese Rice Tea.

I also pray. But I am not happy with my prayer, if you can share with me how to pray effectively?

Thank you!

RE: my tumor marker becomes higher after the folfrinox treatment

by roly2919 on Sat Dec 01, 2012 01:45 AM

Quote | Reply

On Nov 09, 2012 2:00 PM pingpingli888 wrote:

Since my pancreatic cancer spread into my liver, I start to receive folfrinox treatment. The blood test came out yesterday after 2 treatment the tumor marker becomes higher from 258 to 690. Doctor said, it might because of the treatment is breaking down the cancer cells, caused the fause marker high. It will settle down in a months or so...

Any one had such experience beofre?  

Don't panic, I have had 2 courses of Folfiri and 2 of Folfinox in the last 4 years, and in all 4 cases the CEA and CA19-9 numbers jumped  around cycles 2,3 then came down markedly. My oncologist gave the same explanation that the cancer cels are being broken down.

Good luck,

Roly.

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