One patient with glioblastoma still alive nine years later
by vedransaba on Sat Nov 10, 2012 06:24 AM
HY, i am write for 1 st time.i am from croatia and i am 41 yrs old.. first sorry for my bad english,but in school we learn french ,bad choice :)
i have colon cancer ,dukes D. i I operated 05.01.2010.tumor was at the beginning of the large intestine and invaded the small intestine, peritoneum and lymph nodes .. my doctor gave me 6 months of life ..
today I am here I am stilla live and I am going on Monday to 47 chemo protocol folfiri + Avastin ..
but I am in fear, great fear, because for the first time this summer, my CT was performed, showing little progression .moj lymph nodes (metastases) in the peritoneum has grown from 6.1 mm to 6.5 x 11.1 x 14.6 mm I .. 2 months this summer I received chemo because I have to pull teeth .. now I am back on the horse again and I am receiving chemo and doing my 13 07.12.2012 CT.I I think and hope that it will be ok ..
If you have questions, please ask me.i will try to help ..
I read on the forums, an American to be there for HIPEC is often the case as moj.u HIPEC Croatia also work, but I do not know if I can do and is it really so difficult operation to the story that the survival rate of only 50 percent??
by vedransaba on Mon Nov 19, 2012 06:49 PM
done chemo no 47 ..and i am stronger than before.. 07.12.2012.i do CT scan no.13 and i hope that will be stationary...who knows!??!
by AnneLilja on Fri Nov 23, 2012 10:29 PM
by AnneLilja on Fri Nov 23, 2012 10:31 PM
by AnneLilja on Fri Nov 23, 2012 10:33 PM
by livtolaf on Sun Nov 25, 2012 07:29 PM
Anne, my husband was diagnosed 1 yr ago. Not spread to liver but some nodes in the chest area. My question now regards platelet level and Avastin. His oncologist won't give him Avastin at 87,000. They say it has to be 100. He hasn't had 100 except 3 times since mid-August. Also supposed to be starting Xeloda, but waiting for spinal tap to see what may be causing hand tremor. Has been 6 weeks since chemo and would like to get going. Did you get Avastin at lower platelet levels. Thank you.
by AnneLilja on Mon Nov 26, 2012 07:57 PM
by Allan71 on Tue Nov 27, 2012 04:38 PM
Anne, I'm 46 and I have had stage 4 Colon cancer sence 4'09 with 3 major surgerys to remove tumors in both my colon and small intestines, this thursday I will start a new chemo regiment using Foliri for the first time. It will be my 49th chemo treatment. In the past I have used folfox and oxciliplatin, which worked will however my body started rejecting the platin which led to over night chemo sessions. My latest CT scan has shown the existing cancer areas reducing. But now they found spots in my lungs. The Doctor has changed Chemo to Foliri. Can you tell me the side affects of the Foliri and how long it took you to recover after each treatment. Thank you Allan
by vedransaba on Tue Nov 27, 2012 04:48 PM
some people with me received folfox and i think that is much toxic than folfiri and side affects are harder than folfiri..i have folfiri +avastin 47 time in 30 months..i have diarrhea, loss of taste the first couple of days, a little nausea, and measuring your blood pressure, but my blood is so far, thankfully, was always good ..my next line if my NEXT CT SCANS shows progression will be folfox and i have litlle fear about that chemo bcs my doctor saide to me..the best munition for you is FOLFIRI +AVASTIN..
by AnneLilja on Tue Nov 27, 2012 05:23 PM
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