dukes D 47 round chemo FOLFIRI+AVASTIN

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RE: dukes D 47 round chemo FOLFIRI+AVASTIN

by vedransaba on Tue Nov 27, 2012 05:28 PM

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On stu 27, 2012 5:23 AnneLilja wrote:

Hi Allan71, I think some side-effects are the same but that there are some differences. The way I understand it, the platinum-based chemo have the potentially serious side-effect of neuropathy whereas Irinotecan affects the mucous membranes of the digestive tract which causes mouth sores (I felt like I had been scalded) and potentially severe diarrhea. There were days I couldn't eat, there were days I was in agony with stomach cramps and diarrhea. I got to try different stuff to reduce the side-effects and found that, for me, an old ulcer medication made a *big*difference. It's called Andapsin in Sweden where I am at, active ingredient sucralfate. It's a pretty disgusting goo, but worked for me. I would say that I got a couple of decent days in before the next treatment. I hope Folfiri works for you. I wish you the best of luck. Sincerely, Anne

you said exactly same side effects like me... but i go to toilet more than 10-20 times on day,bcs they cut 1 m small intestine and 20-30 cm my colon ascendis..

RE: dukes D 47 round chemo FOLFIRI+AVASTIN

by AnneLilja on Tue Nov 27, 2012 05:38 PM

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Vedransaba, Like in your case, my oncologist decided on Folfiri for me as the number one chemo protocol, and when that stops working I will get Folfox. I got the impression from my doctor that it's more common to be able to take more cycles of Irinotecan than a platinum based type of chemo. But when I read what Allan71 wrote I realize some people can take a lot of Folfox! i have relative who was diagnosed with rectal cancer stage 4 almost at the same time I was diagnosed. He has surgery to remove the primary cancer, a reversible ileostomy and Folfox. I guess in his case it would be more dangerous to risk diarrhea and dehydration so Folfox was the right choice. Sincerely, Anne

RE: dukes D 47 round chemo FOLFIRI+AVASTIN

by AnneLilja on Tue Nov 27, 2012 05:42 PM

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Vedransaba, The Irinotecan must be hard on you. I hope you have found something that allieviate the mouth and cramping. Anne

RE: dukes D 47 round chemo FOLFIRI+AVASTIN

by lucky24 on Fri Nov 30, 2012 06:33 PM

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Well done to all you and beating the statistics, nobody can put a time frame on our lifes. I too have been on going chemo for the past 3 years and im going on having my 38 session next week. I have had horrible experiences from the drugs and numerous visits to the hospital with different things. But im here and i want to live and i want to beat this. keep up the positive posts , it warms my spirts.

 

RE: dukes D 47 round chemo FOLFIRI+AVASTIN

by vedransaba on Sat Dec 01, 2012 11:07 AM

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on monday i will go for 48 chemo,but i have my blood results.CEA  is little higher  6,39 ,normal is 0-5 and   i dont know do you know formula for leukocite? neutorfiln granulociti x leukociti must be 1,5 in croatia ,but i have little neutropenia ,0,31 neutr ,granulociti and my leukociti is 4.2..

RE: dukes D 47 round chemo FOLFIRI+AVASTIN

by vedransaba on Tue Dec 25, 2012 07:26 AM

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where are you all?

merry Christmass to all..

i am finished 48 chemo 05.12 and i am free more thane ever..next will be 04.01.2013..  i celebrate 3 yrs my life with cancer and i feel NEVER STRONGER!!

RE: dukes D 47 round chemo FOLFIRI+AVASTIN

by AnneLilja on Tue Dec 25, 2012 12:16 PM

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Merry Christmas to you to, Vedransaba! I'm glad to hear you are doing so well. Sincerely, Anne
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