Though guidelines suggest screening starts at 50, researcher says it's premature to change them
by kimberlybrito on Mon Nov 12, 2012 08:11 AM
Hi everyone my name is kimberly and im new to this site.. my dad was diagnosed with a malignant olgio grade 2 in may 2011, they removed most of it, it was the size of a softball and had radiation and chemo he is only 40 years old he is on temodar however he had a reocurrance in oct 25 he had his second surgery and it was the size of a small ball. I have been looking on the internet and i dont like what i see about his prognosis i am really scareed becasue i want my dad to be around for a long time. I wanted to know what some people have done to survive longer then the 5 years. He is currently working, doesnt suffer any side effects and he is doing amazing but its stilll scary can someone out there please help me i want to keep my dad around for a long time.
by umiljar on Tue Nov 13, 2012 10:30 AM
It is a scary thing finding out someone you love so much could have this thing happen and now what do you do. The best thing for you to do is just love your Dad, understand that at times he might say or do things he ordinarily wouldn't do and that he wants to live life the same as before, but now he may need a little help getting things done. The doctors will take care of the medical stuff and you should just simply love your Dad, help him do things if you can, but take care of yourself too.
by siblingof on Tue Nov 13, 2012 07:41 PM
by KrysannTHEmum on Thu Nov 15, 2012 03:03 PM
I can understand how you are feeling, you are so young and seeing a parent go through this is terrifying. I also have an oligo..had surgery almost 3 years ago, no radiation or chemo though, but have re-growth so radiation will be next for me...my daughter and son are 13 and 10 now and we as a family just hold onto the fact that everyday there are new developments in medicine and one day there may even be a cure.
I try in my mind to think as positive as possible...for myself , my husband and my childrens sake...we never know what the future may hold, nobody does,...don't over research lifespan times as they aren't always correct! But to be honest, as their mom, I have found myself wondering if I will be there to help pick out my daughters wedding dress and give my son the keys to the car when he's 16...but it will eat you up if you think about it constantly...especially as brain tumour research and treatments advance, there are so many possibilities...I think that your Dad being back to work without side effects is wonderful, that means he is feeling well enough to do so!! Make time to spend with him, just being a dad and daughter....don't focus on it being because he has a brain tumour, but just enjoy being together!! Please take care! K
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