One patient with glioblastoma still alive nine years later
by shannan0806 on Mon Nov 19, 2012 10:35 PM
Hello, I found this site and I am reaching out for any kind of help. My nana was diagnosed with GBM about 3 weeks ago after she had a mild stroke. She had the surgery and things were going good. PT/OT was great. She went home on a day pass and things went down hill from there. She BP was up and down she was light headed, dehydrated and started becoming so tired. That monday she started having partial seizures and they increased her meds, Keppra, Depakote and they did not control the seizures. She was having non convulsive seizures so we can't actually see them. She declined from there after MY INSTANCE to move her from a rehab floor they finally gave her a 2nd EEG and mover her to ICU b/c she was non responsive. They put her into a medically induced coma and stopped the IV Versed on Sat. today is Monday and she still has not come around. Until she is alert and oriented she can not take they treatment for the cancer. Has anyone been where we are now and could you please help give us some insight. thank you shannan
by siblingof on Wed Nov 21, 2012 12:40 AM
by shannan0806 on Wed Nov 21, 2012 05:52 PM
Thank you she 73 the doctor said they have only seen this situation twice. she seems to be trying to come around but its so hard waiting. she has finally responded to the doctor when he said open your eyes but that was it and she closed them again. i am hoping this is positive and she will wake up SOON. the doctor say they arent giving up on her but they gave us another option of a possible surgery.
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