I'M SOOO SCARED

I shouldn't be working; i am at work now on this site its all i can think about is his brain tumor...i just want to comfort him....i want us to finish our travels!!!He is so talented. I love my husband it took me so long to find him and now this!!!Grrrrrrrrrrrrrrrrrrrrrrrrrrrrrrrrrrrrrrrrrrrrrrrrrrrrrrrrrrrrrrrrrrrr

 

Everyone is scared. you guys just have to fight together... enjoy movies or comedy shows together... dont let being scared put up walls...that happened with me and my grandfather and honestly all anyone needs is someone they love... im sorry you are dealing with this...

Iam so sorry you and your husband find yourselves here but you will get alot of understanding and support on this site.

I am a GBMIV survivor!! it will be 20 years in January. when I was first diagnosed in 1993 we were told 6-9 months.  There wasn't a chemo that would cross the brain blood barrier.  only radiation and surgery were effective. I did the radiation and have had two surgeries, 1st in 93 and 2nd in 95. my full story is under bios at yasg.com kathleen rhodes.  also go to virtualtrials.com and you will find many survivor stories.  DO NOT get stuck on the statistics many people have good quality of life for many years.  I will pray for patience and strength for you both and for great success with your treatment plan.  I know of one survivor diagnosed in 1987.  my youngest  was only 16.  he is now 36, married and coaching college football.  My prayer at the time was to see him graduate High school.  stay strong   Kathleen

Oh, Honey, it's just awful, isn't it? But look what you did when it was all too much for you. You reached out and let go of some of your anger & frustration. If you can keep doing that it will help you keep strong, balanced & healthy to face whatever the future throws at you and your husband. I hope and pray that everything works out for you both.

Hi Phyllis. I was scared for the longest time. Then I realized all my fears were about the future, and as time went by, most the things I was afraid of didn't happen. Those that did... the strength to handle them arrives when it's needed. The other things... they may happen in the future. They may not. But they're not happening right this second, and this present moment is the only real time there is. Hang in there.

Oh Phyllis!!   I can feel your emotion coming through.  I wish I had some advice, but I don't.   Just breathe.   It's hard, I know.   We've been at it 18 months, and today he got another good report.   I'm actually planning a trip for next year.   Never, ever, did I ever believe 18 months ago, that I would be making plans for a vacation for both of us. 

Someone on this board always signs off with "no regrets".  i LOVE THAT!  It's kind of been my guidance through all this.

Hang in there.