Women who don't have BRCA mutations could have other high-risk genes that affect treatment choices
by phyllischarles on Tue Nov 20, 2012 04:10 AM
I shouldn't be working; i am at work now on this site its all i can think about is his brain tumor...i just want to comfort him....i want us to finish our travels!!!He is so talented. I love my husband it took me so long to find him and now this!!!Grrrrrrrrrrrrrrrrrrrrrrrrrrrrrrrrrrrrrrrrrrrrrrrrrrrrrrrrrrrrrrrrrrrr
by nosepress on Tue Nov 20, 2012 04:25 AM
by kat54 on Tue Nov 20, 2012 04:44 AM
Iam so sorry you and your husband find yourselves here but you will get alot of understanding and support on this site.
I am a GBMIV survivor!! it will be 20 years in January. when I was first diagnosed in 1993 we were told 6-9 months. There wasn't a chemo that would cross the brain blood barrier. only radiation and surgery were effective. I did the radiation and have had two surgeries, 1st in 93 and 2nd in 95. my full story is under bios at yasg.com kathleen rhodes. also go to virtualtrials.com and you will find many survivor stories. DO NOT get stuck on the statistics many people have good quality of life for many years. I will pray for patience and strength for you both and for great success with your treatment plan. I know of one survivor diagnosed in 1987. my youngest was only 16. he is now 36, married and coaching college football. My prayer at the time was to see him graduate High school. stay strong Kathleen
by WillowTail on Tue Nov 20, 2012 06:19 AM
by siblingof on Wed Nov 21, 2012 12:49 AM
by tromda on Wed Nov 21, 2012 01:26 AM
Oh Phyllis!! I can feel your emotion coming through. I wish I had some advice, but I don't. Just breathe. It's hard, I know. We've been at it 18 months, and today he got another good report. I'm actually planning a trip for next year. Never, ever, did I ever believe 18 months ago, that I would be making plans for a vacation for both of us.
Someone on this board always signs off with "no regrets". i LOVE THAT! It's kind of been my guidance through all this.
Hang in there.
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