Researchers still found 'excellent' survival rates for both primary, secondary disease
by Sheddie on Tue Nov 20, 2012 06:14 PM
If I miss eating, not on purpose of course I get these stomach spasms and it's like I am being squeezed and I can't even breath. This happens if I miss a meal and I eat 5 or 6 times a day. If I sing or sit in a chair the wrong way. It happens at least once a weak or more and it's more painful then child labor in my eyes. Is there anyone else that had this surgery and has the same things happen to them?
by bestfriendmom on Wed Nov 21, 2012 02:52 PM
Not sure if you have every givin birth but this does not sound right to me. My mother had the full whipple procedure in Jan of 2012 and never experienced anything like this, i would suggest that you contact your doctor immediately. Pain that feels like giving birth is not normal at anytime. Please let me know how you make ouy
by singinglady on Wed Nov 21, 2012 11:18 PM
most post whipple patients experience horrific spasms; if you go to the site post whipple pain you will see fellow sufferers and their remedies; i had a full whipple and liver resection and used hyoscyamine for a short period then switched to large doses of pepto bismol and then to extra strength tylenol which has daily safety limits because if effects liver enzymes i live mostly pain free and drug free i believe it's a cascade of smooth muscle and it is indeed worse than labor but you will find many of us on the site mentioned above good luck
by dmcrane1 on Thu Nov 22, 2012 04:20 AM
My boyfriend had the Whipple and he had stomach spasms for about a year afterwards. They call it Whipple Pain, and actually is pretty common. Some people seem to have the pain worse than others. However, if you are concerned would also recommend you see your doctor and ask about it.
by zelda1 on Thu Nov 22, 2012 11:48 AM
here in adelaide australia my Mum had the wipple 16 months ago.she has this pain exaclty like you say and its unbearable to watch . there is a wipple support group on face book and they were so helpful to me. mum has to take angine spray but it knocks her out. what i found scary is that no docotr can explain this to us. apparently its common. hope this helps Lou
by BrianP on Thu Nov 22, 2012 05:38 PM
Spasms are normal, mostly caused by regeneration of the nerves, I get little ones once in a while, I had Whipple 11/05. Imodium pill & 3 Creon every time you eat 3-5 times a day smaller meals. Never take Tylenol, take Aleve better for your liver. You will never be normal but you will be ok. That pain brought me to my knees, & happened 3 times early on while driving on the expressway, talk about a challenge to getting to the brim lane. Have your gastro DR. do a ERCP scope if this keeps up.
by Whippleschmiple on Thu Nov 22, 2012 11:48 PM
I do NOT agree that most whipple patient experience horrific pain, pain, or spasms, and think a small percentage still need pain medicine weeks after the surgery. Those that have complications that worry them will seek out others and I am always fearful that those needing surgery for potentially curative surgery, to have a chance to survive, will hesitate and thereby reduce their chance at a long life. I think whipple requires respecting what we eat, how we take care of our bodies and what we put in it. Some of us need to avoid dairy for months, years, or longer and that alone will cause symptoms for some. Some will need enzymes and maybe prilosec/omeprazole with it. Most or all should take probiotics daily. Sometimes I think coconut milk products or aloe vera juice help GI upsets. I am nearly 2 1/2 years out and have many friends who are also whipple survivors of both types of surgery, have corresponded with a sizable number of whipple patients, and am not seeing pain complaints shortly after surgery or of an extended nature. For those needing a whipple, find a very competent surgeon and facility with a lot of practice in it fast and the questions could include complication rate. I personally find not being constipated to be a good state, so I find high fiber and going with frequency (not too loose or opposite) to keep a happier GI tract. I think more have to learn what foods and drinks they tolerate best. If we paint a picture as though the surgery is something to fear (a bad thing) when it is a chance at a life (a good thing), then we do not do each other a service. Good luck to all.
by Sheddie on Mon Nov 26, 2012 01:14 PM
The pain does not feel like labor pains. I said the pain feels worse, I'm sorry if I said that wrong but thank you for all of the info.
by Sheddie on Mon Nov 26, 2012 01:21 PM
I'm not trying to talk anyone out of having this surgery if they want to live they will have it, and they should have it of course. I just wanted to see if anyone else had these spasms besides me. I eat right and I can't eat certain things anymore, but the food isn't causing me the pain unless I eat what I can't eat and I don't do that. If I get constipated that causes spasms or if I don't eat every two hours on time and when I sing or sit a certain way. Besides the spasms I am doing very well.
by Sheddie on Mon Nov 26, 2012 01:26 PM
Did you just have your surgery? I am off of the creon I had my surgery Feb 29, 2012. Yes the pain sucks and it is alot to recover from but you are going to do just fine. They told me to take tylenol the doctors all say something different. I don't take anything anymore. I hope you are feeling good my friend :)
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