One patient with glioblastoma still alive nine years later
by rosegamel on Thu Nov 22, 2012 10:26 AM
Only 8 weeks on avastin. Mri on tuesday showed extensive enhancement from the tumor bed and beyond. You can literally see the cancer spreading. The avastin didnt do anything. Carboplatin is next i guess. going to cleveland clinic next week. I dont know what else to do and im scared.
by jackie342 on Thu Nov 22, 2012 01:04 PM
I have been thinking about you and your husband for weeks.
I tried to call and could not get through. Have been praying.
I am so sorry that the recent treatment did not work. This monster is horrible. There will be a trial open at UC soon, will he qualify for that? Thats what we are waiting for. Mike is doing okay. That last MRI gave alot of confusion, maybe growth, maybe necrosis, maybe psedo growth. Back on temador for 5 and then the specra MRI in Dec. Trying to back off the decadron, down to .5mg a day. I remember when we talked private about the treatment in Cleveland, I hope and pray that this is the answer. My heart goes out to you, I know that feeling of being scared. Have you put a call to DR. Rixe for his opinion?
Peace and love to you,
by karynk on Thu Nov 22, 2012 06:30 PM
Rose - Have you contacted University Hospitals in Cleveland? Lisa Rogers is the NO - I would contact them if you are coming into Cleveland anyways.
by bpp30m on Sat Nov 24, 2012 06:03 AM
hang in there rose, hopefully something better will come along
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