What helps achy muscles?

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What helps achy muscles?

by Littlemo on Sun Nov 25, 2012 08:49 PM

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Hi, so my husband has entered into a clinical trial to treat his GBM4. The Temodar dose is doubled in this trial. He is on day 6 of this increased dose and it has really taken a whammy on his system. Nausea is pretty intense but his worst complaint is his achy muscles. He walks around like he has just ran an iron man and is suffering the consequences. His Temodar is scheduled to be on 7days, off 7days, and repeat for a year. He also has two meds that our thought to have anticancer properties (namenda, and metformin) that he takes daily. We really wanted to make it through this trial but due to his not faring well to the increased dose and frequency I'm not sure it will be possible. He's fairly young (35yo) He hydrates himself pretty well, we try to take a walk a day, and I try to get him to snack here and there through out the day but these symptoms don't seem to improve. Oh and he takes zofran daily. Does anybody have any tips on how to help achy muscles? I'm afraid we may have to come off of the trial. It's just the first week of treatment and I hate that it's this difficult for my husband.

RE: What helps achy muscles?

by jon4156 on Sun Nov 25, 2012 11:25 PM

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Massage.

RE: What helps achy muscles?

by maggidimps on Sun Nov 25, 2012 11:59 PM

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Hi My husband has just finished his first six treatments of chemo- he had what he called tired restless and achy legs- he tried all the old remedys but nothing worked- henow  takes a tablet every evening which works brilliantly- the medicine is for those sufferring from Parkinson disease -ask your GP as they are probably named differently in the UK

RE: What helps achy muscles?

by jpearson472 on Mon Nov 26, 2012 12:02 AM

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The best thing I have found for achy muscles is soaking in a hot bath.  What has also worked wonders is riding a recumbant bike 15 miles every other day and lifting weights.  It allows the body to work hard and feel close to normal

RE: What helps achy muscles?

by Idyllwild on Mon Nov 26, 2012 01:09 AM

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A jacuzzi with hot water and strong jets was a great relief to me.

RE: What helps achy muscles?

by bilbosgirl on Mon Nov 26, 2012 02:52 PM

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Is he sure it's muscle aches as opposed to joint pain? My husband is on temodar and in his third month he really started to suffer from pain all over but he thinks its more in the joints (shoulders, hips, knees) than muscle pain.

We're trying to figure that one out right now, so I'm sorry I don't have an answer... hoping someone else might...

RE: What helps achy muscles?

by number9 on Mon Nov 26, 2012 06:05 PM

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Lovin your photo Littlemo!!! 

Achy muscles ... ever hear of Biofreeze?  It helped my Mom's discomfort.  Bought it through Amazon and applied generously.

Also (sounds goofy but i am quite serious) I ordered full leg ice packs used for racing horses.  Regular ice packs just were not cutting it on the comfort scale.  My Mom's entire legs or arms would flare in pain, from skin to joint discomfort during her Temodar/Avastin timeline.  So we extened the velcro on the ice packs for the horse legs to fit human legs.  They were lifesavers for her.

When the pain kept increasing from there, Fentanyl patches came into play and were the best for her at that time.

There are many who never/rarely experience the muscle/joint/skin pain from treatments.  And then there are those, like my Mom, who went off the scale in discomfort.  Took alot of trial and error.  Everyone is so different and comfort becomes very personal as to what helps and doesn't.  Hoping what is shared above may help in some way.

Thinking of YOU!

RE: What helps achy muscles?

by Littlemo on Mon Nov 26, 2012 09:54 PM

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Thank you everybody for your responses! Definitely great recommendations. Definitely going to see if any of these help. I feel like I'm being super needy here but I wanted to put a few more questions out there. Nausea: other then using anti nausea meds, did anybody have tips for helping some rather intense nausea. Michael, my husband has not really eaten anything in 3days. I know snacking is suppose to help but he gets mad at me when I try to place even toast in front of him. The smell itself is nauseating to him. Someone recommended buying Ensure drinks. Any other ideas? Again thank you for your replies. Much love Mo

RE: What helps achy muscles?

by herrmajo on Tue Nov 27, 2012 05:24 AM

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for the nausea bananas helped alot!

RE: What helps achy muscles?

by Littlemo on Tue Nov 27, 2012 04:51 PM

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On Nov 27, 2012 5:24 AM herrmajo wrote:

for the nausea bananas helped alot!

Thanks, maybe I can see if he will tolerate that. Again thanks to all!!!
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