BRCA screening has its limits in assessing dangers for women with a family history of disease, experts say
by LisaKG on Mon Nov 26, 2012 11:56 AM
by Cb1975 on Wed Nov 28, 2012 02:58 AM
by AnneLilja on Wed Nov 28, 2012 11:24 AM
by MadeInMichigan on Mon Dec 10, 2012 05:52 AM
This sounds a decent bit like the situation my mom is in, though she had cancer of the appendix (not quite the same thing). She got surgery, chemo to shrink a spot on her liver, and more surgery. Her cancer numbers are still up despite having no visible tumors in her body, though she's still breathing. She'll be going back on chemo next month and she's understandably not happy about that, but we'll see what happens.
by RosieGrace on Mon Dec 17, 2012 10:02 PM
It was sad to read your story because I'm young too. I'm 29. I have stage 4 colon cancer that's metastised to my lungs and my abdomen. I was diagnosed mid november and they tried to operate but the tumour was too large, so now it's chemo toshrink it and hopefully another operation in six months. I start chemo for the first time tomorrow and I am scared. I also have the same wonder about if the chemo will work in shrinking the cancer. if it doesn't, I'm screwed. Best of luck. I'm also hoping for another 20-30 years!
by Whippleschmiple on Mon Dec 17, 2012 11:40 PM
Have all of you younger patients had genetic testing for lynch (HNPCC), FAP, BRAC.... Try to also dramatically change diet, I read Dr. Servan-schreiber's Anti-cancer diet and since I had intestinal ampullary cancer which is like duodenal which is part of small intestine so similar to colon ca I followed all I could read on it. My dad had had colon cancer. I gave up red meat, almost all dairy,... I add certain foods, limit others, drink a lot of green tea, ... I was on xeloda and 5FU but for more advanced I am guessing oxaliplatin, maybe folfox or folfirinox of those with other drugs. I read exercising a certain amount of METs (type of exercise units) reduced recurrence rates for colon cancer so it may help to improve immunity. Some success for those with small areas in liver and immunotherapy at my hospital, Norris Cotton in Lebanon, NH (part of Dartmouth) under a Dr. Barth. BEST TO ALL and enjoy the holidays!! Find a support group, I have read survivorship odds increase! J in NH
by LisaKG on Tue Dec 18, 2012 03:50 AM
Thank you everyone for your comments and kind wishes.
RosieGrace - I am sorry to hear about your illness too :( don't give up hope... my friends mother has breast cancer and she has been having chemo the last few months to shrink the tumor so they can operate and its worked! she is scheduled for operation start of feb. I am now around 6 weeks post op and recovered really well. I actually went back to work 3 weeks after my op :) (restricted activities though). I started my chemo yesterday. My oncologist has put me on Xeloda (capecitabine) to begin with. I am greatful it is in tablet form and not IV. Although, I think his decision to put me onto this treatment was purely for the fact it was Xmas time and instead of me spending it in and out of hospital, this seemed like an easier option. I haven't had any side effects yet (touch wood), although I did here it can take days/weeks to kick in. I go back to my oncologist 3rd Jan after my 3 week cycle. He spoke about maybe adding Avastin to my treatment then further down the track adding 5FU. All my doctors said that given my age my oncologist will attack aggressively with my chemo but in fact he has done the opposite. He has said why do that if the lighter treatments work. I will discuss with him when I go back in a few weeks, cause I honestly want the strongest that gives it less chance of it coming back in future (providing they can even shrink the cancer in my liver). I know its scary but you just have to stay strong and positive. I now have overcome the fear of where my future lies. Im determined to beat this and thats the mind frame you need to put yourself into as well. I admit I still have my moments where I get down about it all though but I have so much support around me that gets me through it :) I wish you all the best when you start chemo tomorrow. Hopefully it won't knock you about too much. Keep me posted!! :)
Whippleschmiple - As far as I know they were going to test my tumor to see if it was genetic but I haven't heard anything about that. I only discovered after I was diagnosed that bowel cancer runs on my dads side of the family. I will search for Dr Servan-schreiber about this diet. I have heard that 80% of the recovery is through your diet and that exercise plays a big part of it as well. I have been doing a fair bit of research into 'cancer causing' foods..its amazing what I have read so far! I will be limiting myself to certains foods, but at the same time I need a balanced diet. I have heard of the folfox treatment. I read some american doctors forum about how he thinks the folfox is the best treatment by far in showing the best results. All the best!!
Sending best wishes to everyone that is battling this terrible illness. Merry Xmas all!! :)
by AnneLilja on Tue Dec 18, 2012 09:51 AM
by LisaKG on Wed Dec 19, 2012 02:44 AM
Thank you for the useful information :)
My oncologist did briefly mention that the reason he mainly put me on Xeloda was because of the holidays. But I will be discussing with him about the folfox treatment when I see him in 2 weeks. His plan was to try control the cancer first before attacking to try shrink the cancer (Im not sure if that is a standard procedure though).
I was informed about my options and one of them was the port-a-cath that stays insterted in the chest area. I think it is a good idea especially if I am constantly in and out of hospital having treatment.
Thanks again.. and I hope you have a lovely christmas :)
When you track a discussion, you will get notified by e-mail if anyone else posts a new message on this discussion. Are you sure you want to track this discussion?
If you stop tracking this discussion, you will no longer get notified by e-mail if anyone else posts a new message on this discussion. Are you sure you want to stop tracking this discussion?
Do you use smart phone apps?
Take our short survey on hospital smart phone apps.
We care about your feedback. Let us know how we can improve your CancerCompass experience.