Findings underscore importance of prevention efforts
by LMorton on Tue Nov 27, 2012 01:16 PM
I know there is another discussion on here with regards to this, but I douldnt post a message on it, so I am guessing it has been archived.
My mum has this illness, but not cancer, and I realise there is little support out there, especially in the UK for people who suffer with any kind of neutropenia (unless you are a child). I have so many questions as does she. This whole thing has been one nightmare after another, its taken a year for diagnosis, being sent from one person to another and now working between two hospitals who dont communicate!
Trying to get support for her I set up a facebook page and various other things and have been trawling the internet for answers... which are few and far between. needless to say its a worrying time and something that is hanging over our family.
I put this thread in the lukaemia section as it (apparently) has been nicknamed "pre-lukaemia by doctors.
I really hope to find others who are relatives or sufferers of this illness here. Just so I and mum have someone to talk to.
by FightingTigers on Wed Jan 02, 2013 10:49 PM
I'm sorry to know that your mum is going through this. I can't tell if the conditions are the same as what I had been dealing with since '01 but I was diagnosed with Cyclic Neutropenia then. My simple theraphy was to take a Neulasta injection shot every 21 days to jack back up the neutrophils periodically. The magic (though not to mention some tough side-effects of the shot itself) lasted until Spring '12 when my BM wouldn't react to the shot anymore. Thta's when they diagnosed me with T-Cell LGL leukemia. Now I look back and wonder why my oncologist never told me about the potential development into this back then or anytime b/w?? But that's a moot point now.
Let me know if I can help answer anything else related to this as I'm now battling a different war.
When you track a discussion, you will get notified by e-mail if anyone else posts a new message on this discussion. Are you sure you want to track this discussion?
If you stop tracking this discussion, you will no longer get notified by e-mail if anyone else posts a new message on this discussion. Are you sure you want to stop tracking this discussion?
If you were considering traveling for cancer treatment, which headline would you find more interesting?
Destination: HOPE. Cancer care that is worth the trip.
Over 84% of our patients travel to our hospital from another state
Neither headline is interesting
We care about your feedback. Let us know how we can improve your CancerCompass experience.