One patient with glioblastoma still alive nine years later
by Loril on Tue Sep 19, 2006 12:00 AM
by Ice_Blue_Hawaii on Wed Sep 20, 2006 12:00 AM
by Loril on Thu Sep 21, 2006 12:00 AM
by florence_b on Thu Sep 21, 2006 12:00 AM
by Rafi_1 on Thu Sep 28, 2006 12:00 AM
by Denita on Sat Oct 21, 2006 12:00 AM
by Ice_Blue_Hawaii on Sun Dec 10, 2006 12:00 AM
Lori - I hope all is well with you. It's been a few months since I was able to log on and check on this message thread. Denita, no, they did not do a radical hysterectomy on my partner. She had her ovaries removed, though there was no disease in them, but her doctor said the cancer often jumps to the ovary, so he took them out. He left the uterus and cervix in. He also told me he took out 14 abdominal lymph nodes, but I read the surgical report this past summer and he only took out 6, not 14. She then had 6 weeks of chemo with Cisplatin, 50mgs weekly. She had concurrent external radiation, once a day for 30 treatments. Then she had 5 internal radiation, or brachytherapy treatments. All was well until September 2005 when we found it spread to her lungs. In August, 2006, it was in her brain. I am so sorry to inform you all that the light of my life passed away November 8 of this year. The lung mets completely overtook all four lobes of her lungs, and she was in the hospital for 3 weeks with obstructional pneumonia. She finally couldn't breathe anymore. She did pass away peacefully, I wish I didn't have to tell you all this. She fought so hard. Another friend of mine was diagnosed with stage 3b in 2002 and she is cancer free today because, I think, the doctor did a complete hysterectomy and took out a TON of lymph nodes in her abdomen. She has lymphadema now, which is a bother, but she's alive, and she's never had a recurrence. I think if my partner's doctor had taken out more lymph nodes, the cancer would not have spread to the lungs. Those cancer cells were in the lymph nodes when she had surgery in 2003, I'm sure.
My prayers continue to be with you both - stay ever vigilant against recurrence!
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