Hello

Hello

I am here to offer help. I am here to listen. If there is anything I can do to help please let me know I want to help. I know first hand what it is like to fight. I have been battling Brain cancer for 10 years now. I was told over and over that I will not make it another day or another year. I will not give up and I do not want others to either. I want to share my story and I want to help all that I can. I do not want to hide any more. I am a proud servivor. If you need to talk or have questions please feel free to contact me. It may be a day or so that you hear from me but I promise I will get back to you. Thank you to all on here that are sharing there stories. you are all strong and amazing.

thank you.

WINWIN

Thank you. I am having one of those days, after weeks of feeling bulletproof, where I am thinking WTF??? I have got BRAIN CANCER!!!! I am feeling fine and normal and everything, but ..... Who the heck gets BRAIN cancer! Why me? I'm 2 years post diagnosis and doing really well, no deficit obvious to strangers, though very apparent to family and friends. I haven't returned to work, where I was in a super stressful senior role. I am a single parent to my now 6&7 year old kids, and that takes all my strength and concentration! It's just sometimes I almost forget my diagnosis and feel normal, and other times it's there in my face, reminding me that guys are frightened to date me, that I'm going to spend another Christmas alone (my kids will be with their father that left me 10 weeks before my diagnosis, because I was acting wierd). Posting these deep dark feelings on the www in the hope that someone else out there can feel better somehow by knowing that they aren't alone in their feelings.

On Nov 29, 2012 11:23 PM winwin wrote:

Hello

I am here to offer help. I am here to listen. If there is anything I can do to help please let me know I want to help. I know first hand what it is like to fight. I have been battling Brain cancer for 10 years now. I was told over and over that I will not make it another day or another year. I will not give up and I do not want others to either. I want to share my story and I want to help all that I can. I do not want to hide any more. I am a proud servivor. If you need to talk or have questions please feel free to contact me. It may be a day or so that you hear from me but I promise I will get back to you. Thank you to all on here that are sharing there stories. you are all strong and amazing.

thank you.

WINWIN

 I am also a long term survivor. Over 19 years. Initial diagnosis was a grade 2 PXA. Later (much later) progressed and turned malignant.

What was your initial diagnosis?

Hux

 

That is just how I felt. For years I thought I was alone and that I was the only one Going through this but there is so many people out there with the same issues and we need to stick together and be strong. I thought that no man would love me again after having cancer but my fight made the man of my dreams fall in love with me. And at the time he met me I had started teatment again. I also had Three girls all under the age of 5. Now we are together and happy as can be with the fear that it might come back and bite my ass. but I live to the fullest the best I can. I know I get down and it hurts so i get back up and try again. I am proud of you for pushing forward. everytime I get tired or my body hurts I am greatful because I know that I am alive and that I can smile through my pain and look at my children and loved ones and give them hope. For one day we all face something hard and we don't think we can do it. but when we look at people like you and I we know we can. Keep your head up don't forget you are loved by those little ones. Give those kids big hugs and remember that they need to see you battle this so that they can tell your story of hope and winning.

Glocoma at first than nothing your fine you are just going blind for no reason. I don't know what is wrong with you. than it was Brain Cancer I was 17 years old and I do not remeber the stage or the type I remeber being afaid and being told that I will not make it. I am sorry that I do not remember the type. I will look at my records and let you know when I find them.

Hi win win....WOW!,, 10 years!!! How awesome to hear that. My wonderful husband was diagnosed with Glioblastoma IV a month ago. He had a lemon size tumor removed successfully and we thought GREAT!!! Well not so, the dr. tells us that this is going to kill him "soon" unfreakin believable!!!! So nice to hear that you can survive this monster. Please tell me your story... Firefighter

On Dec 15, 2012 2:04 PM Firefigther wrote:

Hi win win....WOW!,, 10 years!!! How awesome to hear that. My wonderful husband was diagnosed with Glioblastoma IV a month ago. He had a lemon size tumor removed successfully and we thought GREAT!!! Well not so, the dr. tells us that this is going to kill him "soon" unfreakin believable!!!! So nice to hear that you can survive this monster. Please tell me your story... Firefighter

Three times now fighting and winning against the cancer.  The last brush in August was a reemergence without symptoms of carcinoid at the dome of the liver.  Due to close proximity to my heart, Radio Frequency Ablation was used.  It appears successful for now.  I am taking monthly injections of Octreotide.  I will add you to my prayer list.  We know that we'll probably fight this again but I will tell you it makes my faith stronger and stronger.  Cancer can only kill my body not my Spirit.

Bill