FAP (Familial Adenometous Polyposis)

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FAP (Familial Adenometous Polyposis)

by colonless on Wed Dec 05, 2012 08:16 PM

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Does anyone else have this? It is a rare hereditary colon cancer. About 2/3 of my family have it. If you do have it, do you also have the desmoid tumors that sometime accompany it? My neice has them and her dr have recommended life-long chemo in small doses to prevent the tumors. They are benign but they are invasive and can effect all of the organs in the abdomen. I am looking for how ppl have been treated for it. Chemo for the rest of her life when she is only 21 seems a little extreme. Can anyone help??

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