One patient with glioblastoma still alive nine years later
by PeteBarron1 on Mon Jan 07, 2013 10:09 PM
I think it can't hurt to try. I believe the canabinoids in the oil work to combat the tumors. I took it for 6 weeks and during that time my tumors shrunk the most. I can't afford the oil though. Cost me almost 500 for 6 weeks supply.
by Kay54 on Mon Jan 07, 2013 11:00 PM
It's been hard for me to know how much my cousin should take daily to really get the most benefit. Most companies are not allowed to make medical claims. The bottle that I purchased for her was $160, but they do have a program that gives you a 25% discount if you commit to purchasing for a period of time. Her bottle contains 500 mg. of the non-THC cannabinoids and we are guessing this is about a month supply, at half a dropper twice per day. I know this is not as much of the active chemical as some on youtube are recommending, but as you said, it would be very expensive and she can't afford it.
by StephStruble on Thu Feb 07, 2013 04:38 AM
by Kay54 on Thu Feb 07, 2013 11:50 PM
I wanted to post an update. (I'm also from Michigan, by the way.) My cousin had a rough month with her chemo (January). Today is February 7th and she had not been given her chemo yesterday (she gets it once a week on Thursdays) because she had a bad reaction to it in January and she has been told that they were going to switch to something new, but they have not received insurance clearance yet. She missed chemo the week before because I took her on a Caribbean cruise and we were gone for 10 days. The week before that, she received half of her usual chemo treatment on Jan. 24th, and the week before that, on the 17th, she had the bad reaction and doctors decided to switch to something new but not on the 24th since we were leaving for our trip on the 25th. All that to say that in spite of the chemo MESS for this past month, they did an assessment of her "cancer markers" and the numbers went DOWN--a very good thing! Now that makes two GOOD evaluations in the past two months. The term "cancer markers" was new to me so I did some checking. Her numbers went down from 107 to 83--a significant decrease! The numbers are used to evaluate treatments to see if they are having a good effect or if the cancer is on the increase. We know one thing...the only real change she has experienced has been in taking her cannabinoid drops and she went through her 2 oz. bottle in about a month. Seeing the improvement, I ordered her second bottle with joy. I will continue to post info as it comes in from her. We are also going to add in two or three other things....one is consuming 1.25 cups daily of home-grown broccoli sprouts. I have read a TON of info on this and would be glad to share that info. We will be ordering some broccoli seed and sprouting them, then she will eat them when they are at their peak concentration of the chemical we are after. We'll have to keep several jars constantly sprouting in order to provide her with a daily supply but it is simple and we are convinced of the scientific data. If anyone wants more info on this just let me know. The third thing we are doing is to use litmus paper (from our local pharmacy) to test her saliva pH. If she leans toward acidity versus alkalinity, that indicates that her body is providing a good environment for cancer cells. Cancer LIKES an acidic environment. Many people are combining baking soda and blackstrap molasses and consuming that for 3 weeks on and one week off, then 3 weeks back on, and again one week off. I have been gathering info on this. From info I've gathered, cancer cells consume a lot more sugar than normal cells. Blackstrap molasses is both high alkaline (cancer cells don't like alkaline environments) and sweet. Baking soda is also high alkaline and a cancer killer. By combining the two and heating them, the molasses is said to "bind" with the baking soda and when the cancer cells are consuming the sugars in the molasses, they are getting the soda into the inside of the cell and actively destroying the cancer cells. That is our present plan....CBD drops (concerntrated cannabinioids DERIVED FROM hemp seed oil), baking soda with molasses on a schedule, and daily servings of 1.25 cups of 3-4 day old broccoli sprounts. I'll continue to provide info on her progress. Note: the amount of baking soda daily is quite small. Not hard to do at all.
by carlito on Fri Feb 08, 2013 09:18 AM
where can I buy CBD drops?
by Kay54 on Fri Feb 08, 2013 11:08 AM
Hi Carlito...I just looked up the page link for the drops. http://dixiebotanicals.com/products/dew-drops-hemp-oil-suppl
I do not sell them, in case there is any question about that. If we continue to see positive results over the next few months, I'm going to think about getting a wholesale license and sell them so that locals here can purchase them easily and at a reduced price. I don't want to make a profit. Also, if I had cancer, I would purchase the 500 mg., 2 oz. bottle to get more of the cannabinoids to my cells. I take the 100 mg. bottle for my own needs but I have purchased the 500 mg. for my cousin. She is taking it TWICE a day, under the tongue. If you order it and try this, please leave any info since we are all being guinea pigs. One thing...the CBD is anti-inflammatory so you will get pain relief with that effect. I have noticed a BIG difference in pain in my joints.
The product is non-toxic and you can't overdose on it. That gives me a lot of peace of mind for her. The drops are thick and sweet since they are in a glycerine base. They don't drop out of the dropper easily so it's hard to count out 15 drops. I drop mine into a small espresso spoon because I don't want to risk touching the dropper onto my tongue and contaminating the drops in the bottle. I put a portion about the size of an aspirin (diameter), onto the spoon, then put it under my tongue (sublingual application) rather than on top of my tongue. I hold it there for about a minute, then swallow.
The 500 mg. bottle costs more but I would say that it lasts 4-6 weeks, depending on your portion size. I would make a suggestion and say this--I would do just as we did and purchase the drops for a couple of months, one month at a time. We are still using the second bottle. She started her first bottle at the end of November sometime after Thanksgiving. I told her I'd purchase the bottles for 6 months to test it out. Now that we have seen two positive evaluations, I've decided to sign up for their Compassionate Care program to receive the 25% discount. When you enter that program, you are making a 12 month committment to purchase the drops. You can end the committment but there is a $50 fee, which is no big deal. We'll be getting a nice discount so it is worth it.
by Kay54 on Fri Feb 08, 2013 11:34 AM
For all of you who are fighting this fight against cancer, I want to add info on our second level of attack. Please feel free to start with what I am posting and fact check. You will be amazed at the amount of information out there if you dig. I have a researcher personality so I like the fact-digging and am using it to help my cousin. Sometimes people who are ill are either depressed or too tired and worn out to spend hours and hours and days and days researching the way I do. I do this to help my relative but have been sharing the info via emails, to others when I hear that they have been given a cancer diagnosis. I HATE quackery and thoroughly research everything before promoting it.
I am going to START to post about Broccoli and Broccoli sprouts and the anti-cancer benefits. Research has been done on this for a long time and will floor anyone who has not heard about this...but word is getting out. EXTENSIVE research and reports have come in from Dr. Paul Tallalay at Johns Hopkins. I hope that if I post on Cancer Compass, that people will google the topic and be able to read up and learn about this for themselves. I am also communicating regularly with a local hydroponic farmer who is growing sprouts and selling them to the public. We are sharing information and hope that others are helped by it. My cousin and I will be growing our own sprouts soon, right in our homes, and eating them EVERY DAY as part of salads and sandwiches.
Here is what I have learned:
1. A chemical in broccoli and other "cruciferous" veggies has been found to prevent cancer cells from developing into cancer and actually KILLING cancer in lab experiments in lab dishes and in lab animals.
2. Cruciferous veggies are in the cabbage family. Brussel sprouts, cabbage, broccoli, cauliflower, radishes and several others are in this veggie family.
3. Researchers compared East Germans to West Germans in regard to cancer. The East Germans had a larger variety of fruits and veggies in their diet. West Germans did not, YET West Germans had fewer cases of cancer. The difference was that West Germans ate a LOT of cabbage.
4. Broccoli contains the most of the anti-cancer chemical glucoraphanin. Broccoli sprouts at 3-4 days old, contain the highest level of this chemical.
5. Glucoraphanin, once chewed, is affected by an enzyme called mycrosinase. The chewing activates the enzyme and turns glucoraphanin into sulforaphane. SULFORAPHANE is the cancer-fighter. Also, it is best to eat the sprouts and broccoli raw or with the full-grown broccoli, just steamed or stir-fried lightly. For a person with cancer, I'd suggested eating the sprouts to go after the cancer-killing chemical and get it into the bloodstream.
6. Scientists have found that it only takes about ONE HOUR from the time of eating the sprouts or broccoli, for the chemical to get to the cells. This fact has been published in scientific research reports.
7. Eating broccoli on a regular basis (at least once every 3 weeks) is a good cancer preventer. Our family will now be eating it once a week, bare minimum!
8. Eating 1.25 cups of fresh grown sprouts at 3-4 days old and chewing it well, will "bathe" the cells in a proven cancer killing chemical.
For starting you out on this trail, I am going to leave the links for two informative videos. I also want to say that if you dig and dig for info, as I have been doing for the past 2 months, you will find skads of scientific info and reports on this. Yesterday I was reading a report from the Dept. of Agricuture. They were citing the same reports that I have been reading and saying that they are searching out plant variieties in the broccoli family, that contain the highest level of the anti-cancer chemicals. There is a reason for this. The public, and especially people who are fighting cancer, are learning about the reports and studies. You can learn a lot by reading PubMed articles but they are written in scientific terms and hard to read at first. My husband is a research scientist (in cosmetic chemistry) and helps me a bit to understand the articles. I also spend time looking up definitions and breaking down the information. http://www.youtube.com/watch?v=6qcxUYpjPVc
I am now spending time looking into sources for seed and instructions on how to best sprout them. A lot of info on youtube but my hydroponic farmer friend is also helping me on this. We are both looking into buying seed with the highest glucoraphanin content.
Even though the videos talk about cancer "prevention", if you start researching the names of the two chemicals, you will find that they have SHRUNKEN existing tumors and cancer cells. It is sad but even with great research, it can take YEARS before scientific researchers are given funding (through the FDA) to do human clinical trials to prove the effectiveness on humans. WE are not going to wait for that!
Now we are stepping into Phase ii of our attack on cancer. Phase I has been the CBD drops. Phase II is the drops AND the daily broccoli sprouts into the diet (in smoothies, in salads, and in sandwiches).
by Kay54 on Fri Feb 08, 2013 12:11 PM
There are reasons why I chose to not go that route. According to the info I have, heating or drying the leaves severely weakens the strength of the chemicals that you are after to KILL cancer cells. I have been listening to a doctor on this and he explains the change from THCa (an anti-cancer chemical) to THC, which is psychoactive. We choose to avoid the psycho-actives, and they are not what we are after to fight cancer cells, anyway. We also don't want to have to grow a greenhouse full of plants to get the strength of CBD that we are after. I think Rick Simpson has been helpful but he's not a scientist and sometimes when I've listened to some of his statements, I am sure that his understanding is not correct (his comments on Bill Gates and immunizations, for example---WAY off) I'd rather go with very solid facts and science. Rick Simpson advocates recreational pot-smoking, aside from making the "oil". Pot-smoking CAN help those with cancer to increase their appetite, combat nausea, and relax them, but the anti-cancer chemicals are not potent in smoked marijuana. Check this video out... http://www.youtube.com/watch?v=7xPmR8j4plw
I'm hoping to share info so that others can understand the differences and get the most effective doses of cannabinoids without the "high". If you are dealing with nausea and loss of appetite, that would be another thing and something to work out with your own doctors.
by Kay54 on Fri Feb 08, 2013 07:27 PM
If you google "Sean McAllister" or "Pierre Desprez"--both scientific researchers in California with Phd's, you can learn about their work with cannabinoids and metastatic breast cancer cells. I forgot the name of the research facility that they work in but I believe it is in San Francisco.
When Sean says "in culture," he is referring to cultures in lab dishes, basically. "In vivo" refers to lab test animal results. http://www.youtube.com/watch?v=drW12wqbqwU
Here is a link to the research facility...I just googled it. http://www.cpmc.org/professionals/research/programs/science/
This was the first article that caught my attention on the whole concentrated cannabinoids topic. I was so excited that I began to DIG for information all over the internet and have found MUCH. http://www.sfgate.com/health/article/Pot-compound-seen-as-to " target="_blank" rel="nofollow">http://www.sfgate.com/health/article/Pot-compound-seen-as-to
As a side note, one of the two researchers has a sister who has breast cancer. He is anxiously appealing for funding for human clinical trials. I need to revisit their research facility website to see if they have gotten their funding yet. It's time. http://www.sfgate.com/health/article/Pot-compound-seen-as-to " target="_blank" rel="nofollow">http://www.sfgate.com/health/article/Pot-compound-seen-as-to
by wvleroyhayes on Fri Feb 08, 2013 09:50 PM
My last post on this real quick. Israel is producing pot plants without the psychoactive qualities. Best of luck to you all from a survivor.
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