One patient with glioblastoma still alive nine years later
by juditha on Sat Dec 08, 2012 02:10 AM
My husband has had the surgery to remove as much as possible and then had the radiation; chemo and is now on Avastin....does anyone out there have any info on this drug and if it really works? and for how long? We are at the one year mark and I am amazed but fearful. He isn't really getting any better. Judith
by Marycarole on Sat Dec 08, 2012 02:50 AM
by siblingof on Sat Dec 08, 2012 08:28 PM
by RobinMB on Sun Dec 09, 2012 02:07 AM
Does anyone know what group of GBM patients Avastin works best with? For example, mesenchymal, proneural, neural, etc. From what I've learned about GBM, patients respond well to treatments that seem to target the specific type of group that the patients are categorized in. I read that the mesenchymal group responds well to the dendritic cell vaccine. The proneural group doesn't respond well to Temodar. That's about all I've learned so far. I think much more personal treatment needs to take place regarding GBM. This is not a one size fits all cancer.
by juditha on Sun Dec 09, 2012 03:38 AM
Thanks for the info...I am trying to figure out if this drug will continue to work, or is time-limited like the other treatments we have tried?? Seems to lengthen life a little bit, but, where does one go from here?
by plener on Thu Jan 03, 2013 12:23 AM
i would start on antabuse and copper--search the medical literature
by siblingof on Thu Jan 03, 2013 02:25 AM
by SarahGrey on Thu Jan 03, 2013 02:34 AM
On Dec 09, 2012 3:38 AM juditha wrote: Thanks for the info...I am trying to figure out if this drug will continue to work, or is time-limited like the other treatments we have tried?? Seems to lengthen life a little bit, but, where does one go from here?
On Dec 09, 2012 3:38 AM juditha wrote:
My husband just started Avastin and it shrunk his tumor in half. Amazing...
I have read that its effects are limited and it stops working after awhile. I have no idea how long it works before the tumor stops responding. I too am fearful and would like to know the answer.
Something we need to keep in mind though, is that everyone is different. Everyone responds differently... So never give up hope...
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