Ivor Lewis esophagectomy (Barrets Disease)

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Ivor Lewis esophagectomy (Barrets Disease)

by keithrsmith on Mon Dec 10, 2012 01:40 AM

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 had the esophagectomy four years ago.  It was successful with time but I have had ongoing problems with frequent and severe coughing spasms associated with the passage of food through the "join section".  Possibly there are surface nerves or scar tissued causing this.   My specialists don't seem to have an answer.  Endoscopy does not show any identifiable cause.  Does anyone know of similar problems, causes or suggestions for treatment.  It is bearable but quite a nuisance.  Only eat with family who understand my problem.  When it does happen in public people around become quite concerned for my welfare so I avoid this wherever possible.

RE: Ivor Lewis esophagectomy (Barrets Disease)

by Uncleg on Fri Dec 14, 2012 03:04 PM

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On Dec 10, 2012 1:40 AM keithrsmith wrote:

 had the esophagectomy four years ago.  It was successful with time but I have had ongoing problems with frequent and severe coughing spasms associated with the passage of food through the "join section".  Possibly there are surface nerves or scar tissued causing this.   My specialists don't seem to have an answer.  Endoscopy does not show any identifiable cause.  Does anyone know of similar problems, causes or suggestions for treatment.  It is bearable but quite a nuisance.  Only eat with family who understand my problem.  When it does happen in public people around become quite concerned for my welfare so I avoid this wherever possible.

Hi I am two months post op now from ivor lewis esophagectomy and have started to develope a cough and worse struggle to swallow comfortably ..i have found taking a sip of coke during these problems minimise the trouble i have

also i have bought an electric bed which i have found to be invaluable i fond a local guy who makes them half the price of the high street

hope this finds you coping better

RE: Ivor Lewis esophagectomy (Barrets Disease)

by keithrsmith on Mon Dec 17, 2012 09:34 PM

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Thank you for that, I will give the coke a try. Happy festive season.

RE: Ivor Lewis esophagectomy (Barrets Disease)

by Carolj03 on Thu Dec 27, 2012 07:43 PM

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I am 3 years post op and I also have a cough.   I cough alot when I am eating and I had my surgeon do a endoscopy because I felt there was something triggering the cough and I could feel it when I swallowed. He found nothing. I can eat soup with no problems. When I go out to eat, that is what I have.  My surgeon said there really is nothing that can be done about it.  He says it is caused by acid reflux.  (I sort of disagree). I still do have acid reflux and I always will. I agree with you that it is bearable but a nuisance. I wish I had an answer for you..I am always looking for answers myself.

RE: Ivor Lewis esophagectomy (Barrets Disease)

by keithrsmith on Thu Dec 27, 2012 09:50 PM

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Thanks for the information. Your problem seems much like mine as is the advice you have received.  I guess we have to be grateful for being survivors  and make the best of it.  I really think it is caused by scar tissue at the join or surface nerves in that area but corrective surgery would probably not be worth the risk.  Good luck to you and have a Happy New Year.

RE: Ivor Lewis esophagectomy (Barrets Disease)

by outthere on Fri Dec 28, 2012 09:59 PM

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Husband 4 months Post op Ivor Lewis.Has had to have a throat stretch to mitigate the swallowing problem (feeling like the food cannot get past the new junction in throat.It has helped.

RE: Ivor Lewis esophagectomy (Barrets Disease)

by doingfine on Fri Dec 28, 2012 10:29 PM

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I am 8 years past surgery and I do have some difficulty while eating.  I found I need to keep my head down and I definitely cannot talk at all while eating.  This evening I got a little crumb caught and coughed and coughed until I finally sneezed and that cured it.  I have one paralyzed vocal chord that was fixed, but doesn't work.  The doctor put a silicone thing in there to keep the paralyzed side closed so I wouldn't lose air and so the other side could come over and close the gap.  Anyhow, the coughing and choking is annoying, but I am used to it...just very careful when I eat.  Sometimes a sip of water will work for me.

RE: Ivor Lewis esophagectomy (Barrets Disease)

by Hermannbs on Mon Oct 07, 2013 11:21 PM

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On Dec 14, 2012 3:04 PM Uncleg wrote:

On Dec 10, 2012 1:40 AM keithrsmith wrote:

 had the esophagectomy four years ago.  It was successful with time but I have had ongoing problems with frequent and severe coughing spasms associated with the passage of food through the "join section".  Possibly there are surface nerves or scar tissued causing this.   My specialists don't seem to have an answer.  Endoscopy does not show any identifiable cause.  Does anyone know of similar problems, causes or suggestions for treatment.  It is bearable but quite a nuisance.  Only eat with family who understand my problem.  When it does happen in public people around become quite concerned for my welfare so I avoid this wherever possible.

Hi I am two months post op now from ivor lewis esophagectomy and have started to develope a cough and worse struggle to swallow comfortably ..i have found taking a sip of coke during these problems minimise the trouble i have

also i have bought an electric bed which i have found to be invaluable i fond a local guy who makes them half the price of the high street

hope this finds you coping better

Hi, I am almost three months post op and developed an almost continuous cough about a week after discharge. My surgeon said if is a result of the surgery and would eventually go away although they couldn't give me a time table. Trying to eat anything during that time was tough as I was never comfortable with what might happen. I can share that the cough is now almost completely gone. I still have some problems eating, I occasionally get that gagy feeling, although it is less and less over time, that makes you want to spit it all back up. When this happens I have noticed that what's coming up is from the throat not the stomach. Up until recently, when this happened, it may have been at least a day before I could eat again but this to has improved and all symptoms are resolved in a couple of hours. My surgeon's office attributes this to scare tissue and my oncologist things it is spasm. I will find out for sure on Friday. I have learned to stay away from certain foods; oatmeal, thick soups, fibrous veggies, and bread. I do also find that coke or other carbonated soda's help a lot. They help me burn which for awhile I thought I would never be able to do again. Best wishes everybody.....

RE: Ivor Lewis esophagectomy (Barrets Disease)

by WilmaC on Thu Nov 21, 2013 01:07 AM

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hi    i had high grade dysplasia and ivor lewis... with adaptions in nov 2005. i am female and was 46 . Ihad been to doctorr for years with no help and started researching on internet and when i took findings to my doctor he laughed and gave me yet another acid tablet. two more years passed and my health declined and i then had to threaten legal action if refsal for a scope. diagosis was as i discovered. surgery has saved me but i now stand firn when worry comes. each symptom must be faced and places like tis are saving lives and offes solutions and let us know we are not alone but can forge new friendships and give hope and help.some days i just go to bed at the days end and tell myself i will try again tomorrow

RE: Ivor Lewis esophagectomy (Barrets Disease)

by steveb50 on Thu Nov 21, 2013 11:54 AM

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Hi doingfine. My husband has had the same experiences as you. I think your right, my husband has a problem when he speaks while eating. He seems to aspirate easily while eating and the paralyzed vocal chord seems to have made the situation worse. The coughing is the symptom of the aspiration and that is probably why endoscopy doesn't show any problem. I hope this helps.

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