Treatments after Avastin/CPT-11?

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Treatments after Avastin/CPT-11?

by miamivice on Mon Dec 10, 2012 09:48 PM

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Does anyone have any experience with treatment options for recurring GBM after going through initial TMZ, radiation treatment followed by the combination of Avastin/Irinitecan (CPT-11)? All I know about are posible clinical trials. I was first diagnosed in March 2012, 100% removal, recurrance in initial extraction site, and 2nd surgery Sept 2012. After 4 treatments with Avastin/CPT-11, MRI scan, 12/3/2012. Recurrance in original site plus 3 more in different locations. I'm not ready to give up. God can do anything.

RE: Treatments after Avastin/CPT-11?

by siblingof on Tue Dec 11, 2012 12:25 AM

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Miami, I'm sorry to hear about your recurrence. Let me tell you what happened to my sister after she recurred on Avastin. She stopped the Avastin and went on a clinical trial. The recurrence exploded. Grew hugely. We dropped the trial, went back on Avastin again, and the recurrence, which is still growing, slowed down. So we stuck with Avastin.

RE: Treatments after Avastin/CPT-11?

by miamivice on Tue Dec 11, 2012 12:37 AM

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siblingof,

Thanks for the reply. My oncologist took me off the Avastin since the recurrance showed 3 additional tumors plus recurrance in the original extract site. I've already had 2 surgeries to remove tumor growth. All of this is in 9 months time. Its all in God's hands now.

RE: Treatments after Avastin/CPT-11?

by siblingof on Tue Dec 11, 2012 03:22 PM

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So you never had a good scan on Avastin? In that case yeah, not much point in continuing on it. If you're looking into clinical trials, the one we were on that didn't work was ABT-888. Wishing you good luck with what you do choose.

RE: Treatments after Avastin/CPT-11?

by Luvingwife on Thu Dec 13, 2012 02:38 AM

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Miamivice:

Hey, my DH had good results with Avastin /CPT11, but there was a 'recurrence' or 'suspicious' regrowth after a long time of 'stable'. Now he is on Tarceva . It is a drug fda approved for Pancreatic and small cell Lung CA. He has been taking it for over  3 years, apparently effective because there has been no evidence of tumor progression. It is very expensive (about $4,000 per /month) and is not usually appr by insurance. There is assistance available at Genentech if your insurance denies coverage.

good luck

Laurie V

www.caringbridge.org.visit.johnv

RE: Treatments after Avastin/CPT-11?

by miamivice on Thu Dec 13, 2012 03:31 AM

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Thanks for the info.

RE: Treatments after Avastin/CPT-11?

by ourVictory on Tue Dec 18, 2012 03:03 PM

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Thank you I hope my monthly Avastin  infusions to keep on working for as long as possible but your info about Tarceva is gladly acknowledge, from my understanding Avastin is way more expensive but approved by my insurance co. Gracias...

RE: Treatments after Avastin/CPT-11?

by miamivice on Tue Dec 18, 2012 03:46 PM

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It's good to stick with the treatments that are working for you. Everyone is different including the cancer. Make sure you and your family are your health advocates. A lot of times the doctors simply follow the treatment plans they are most familiar with and new options pop up all of the time. Also, stay on top of all of the natural elements out there as far as daily nutrition. I really believe the breakdown in the body when cancer first surfaces has all to do with immune system breakdown stemming from our daily nutrition and the lack of nutrients needed by the body missing in the common foods we eat today. Grain versus grass fed cattle, pesticides, things we put on and in our bodies.

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