One patient with glioblastoma still alive nine years later
by Sue1956 on Tue Dec 11, 2012 10:09 PM
by Daddysgirl75 on Wed Dec 12, 2012 02:37 AM
by lcarite on Wed Dec 12, 2012 02:24 PM
On Dec 11, 2012 10:09 PM Sue1956 wrote: My father in law has been diagnosed with stage 4 cancer which has spread to lymph nodes and liver, no treatment plan and meeting the hospice nurses tomorrow, nobody seems to know how long he has left but it doesn't look good, on paired diet at the moment and sleeping a lot. Still manages to get out for a little trip in the car but these are getting more difficult, looking really for any support I can get. Thankyou
On Dec 11, 2012 10:09 PM Sue1956 wrote:
So sorry to hear about your father-in-law, prayers go out to you and your family. If you use Facebook, please join the Esophageal Cancer Awareness Association - I just joined this group, they are very active and caring. My husband has stage 4 EC.
by Sue1956 on Thu Dec 13, 2012 07:01 AM
by Sue1956 on Fri Dec 14, 2012 05:42 PM
by jaycc on Mon Dec 17, 2012 08:04 PM
I wish we had a different reason to be a group, but here you are in the EC Stage IV world.
ditto on the facebook site, lots of people there.
There is a crossroad whether to treat or not to treat. Assuming from your message he has decided (not told by others that there are not treatments,there are, make sure this is what HE wants)
So assuming he doesn't want to go through treatment here's some experience from our journey. (my husband,50 was dx at Stage IV mets to liver all quadrants) He did treatment and got 6 extra good months, which we will always cherish.
You still have to fight to get him good care. Many medical people seem to be almost afraid of EC. He has the right to take this journey with what dignity you can provide him.
You have choices with your hospice nurses. We found they were 50/50. Meaning some were burnt out, some were good. If you don't feel they are a match for him, tell the service and ask for another. (Our Onco social worker was very helpful)
Try to keep some part of the day active. Have him walk around, try to keep reading the paper or some type of material.
You'll need to make decisions about fluids and feeding tube. Again this is your decision, becareful that you are not rushed into stopping these items, especially fluids.
In our case we needed to keep the GP invovled. He was more concerned then the Oncologists about doing things that were best for my husband's daily care.
Join your ambulance committtee/member it ususally costs under $20 and you may need it.
Suggest fining moments to enjoy what he wants to enjoy,movies, music, the sun rise, a good conversation.
Go easy on yourselves as caregivers. It is hard, but you all love him, so you'll do it, and you'll get through.
Feel free to contact me if you want.
by Sue1956 on Fri Dec 28, 2012 09:29 PM
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If you were considering traveling for cancer treatment, which headline would you find more interesting?
Destination: HOPE. Cancer care that is worth the trip.
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