neuroendocrine carcinoid tumers

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neuroendocrine carcinoid tumers

by boatman on Thu Dec 13, 2012 02:00 AM

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I was diagnosed with neuroendocrine carcinoid in July of 2012.  I had a sore throat for a couple months and then it appeared that my lynphnoides were swolen.  went it for surgery to put in a track because the tumers were cutting off my wind pipe.  So he was going to cut the tumors out but when he got in there he decided not to start cutting.. took a piece for biopsy.   I had a pet scan done then.  I had cancer in my neck, on my pancreas, on my liver, on my lung and in my left hip..

I took 6 rounds of chemo.  After a few of them the tumors got smaller and smaller until they were gone.. The bone cancer was gone, clear on the pancreas, just a small piece on my lung and liver .   Just finished the chemo, getting a new scan on the 19th and it should be clean of cancer at that time..  will have to be checked every 2 months.  I hope this is the way I am headed..

Doc says it can not be cured but it can go in dormant for 2 days or 2 years ...

Has any one seen or heard of this before ????

 

thanks,

Everett P

 

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