One patient with glioblastoma still alive nine years later
by ava12 on Tue Dec 18, 2012 02:55 PM
It seems to me a lot of people went a long time before a diagnosis. Just wondering what were your first symptoms that something might be wrong and what was the test that confirmmed it?
by siblingof on Wed Dec 19, 2012 12:12 AM
by GeeBeeEm on Wed Dec 19, 2012 03:42 AM
by elfprincess on Wed Dec 19, 2012 04:59 AM
Mine was when the right half of my body went numb, nothing showed on CT scan so GP told me to go to the ER next time it happens. ER doc said anxiety attack and given xanax. I convinced my GP to send me to a neurologist, who thought it was a TIA or a Migraine Variant. After after 3 months of what turned out to be partial seizures the neurologist diagnosed me with a brain tumor after an MRI
by karynk on Wed Dec 19, 2012 05:01 AM
My husband's was a grand mal seizure that lead to dx - but the ER initially said he had heat stroke/dehydration.
by ravirajagopalan on Wed Dec 19, 2012 05:57 AM
by StanleyT on Wed Dec 19, 2012 11:50 AM
On Dec 19, 2012 3:42 AM GeeBeeEm wrote: Waking up in the ER after having suffered a massive cerebral hemorrhage was my symptom. I had a craniotomy in a small regional hospital to drain the blood, but the useless NS didn't see I had a tumor, and neither did pathology! It was only an MRI 7 weeks later that I learnt I had a tumor, and then the pathology after the next craniotomy confirmed GBM.
The symptoms I ignored were the years of really bad headaches.
On Dec 19, 2012 3:42 AM GeeBeeEm wrote:
My wife also had a massive haemorrhage and an emergency crainiotomy - the surgeon did however notice unusual material in the brain and sent it for biopsy. Ten days later we were told that it was a GBM. Yet the day after her craniotomy I asked her surgeon if it was likely to be malignant, "Oh no" he said " I would not expect cancer in this case". As she had low blood pressure and no obvious aneurysm, until they got the biopsy result they suspected beta amyloid desposition - a corrosive abnormal protein which is a precursor to early onset Alzheimers. There are worse things than dying from a GBM....
With hindsight, the first symptom, two months prior to her stroke, was foot drop in her right ankle. No one suspected a brain tumour, she was sent to an orthopaedic surgeon with suspected nerve damage (or possibly Motor Neurone disease? - another worse than GBM way to die, very slowly...). They MRIed her spine (which was fine) not her head! She was due to go for further nerve tests until the haemorrhage intervened. The orthopaedic surgeon said later that in twenty years of practice he had never seen foot drop as a symptom of a brain tumour.
That is the problem, these things are usually symptom free until a late stage and then the symptoms are wayward and varied. One of the least useful phrases in English is "if only.."
by siblingof on Wed Dec 19, 2012 12:59 PM
by siblingof on Wed Dec 19, 2012 01:01 PM
by StanleyT on Wed Dec 19, 2012 01:46 PM
On Dec 19, 2012 1:01 PM siblingof wrote: Oops I mean "get some rest" not "get some risk". Yikes.
On Dec 19, 2012 1:01 PM siblingof wrote:
It is really annoying that you can't edit posts on this forum. The pHpBB software on cancerforums.net is far better.
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