What were your first symptoms?

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What were your first symptoms?

by ava12 on Tue Dec 18, 2012 02:55 PM

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Hello,

It seems to me a lot of people went a long time before a diagnosis. Just wondering what were your first symptoms that something might be wrong and what was the test that confirmmed it?

RE: What were your first symptoms?

by siblingof on Wed Dec 19, 2012 12:12 AM

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1. Aphasia. 2. A CT scan followed by an MRI.

RE: What were your first symptoms?

by GeeBeeEm on Wed Dec 19, 2012 03:42 AM

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Waking up in the ER after having suffered a massive cerebral hemorrhage was my symptom. I had a craniotomy in a small regional hospital to drain the blood, but the useless NS didn't see I had a tumor, and neither did pathology! It was only an MRI 7 weeks later that I learnt I had a tumor, and then the pathology after the next craniotomy confirmed GBM. The symptoms I ignored were the years of really bad headaches.

RE: What were your first symptoms?

by elfprincess on Wed Dec 19, 2012 04:59 AM

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Mine was when the right half of my body went numb, nothing showed on CT scan so GP told me to go to the ER next time it happens.  ER doc said anxiety attack and given xanax. I convinced my GP to send me to a neurologist, who thought it was a TIA or a Migraine Variant.  After after 3 months of what turned out to be partial seizures the neurologist diagnosed me with a brain tumor after an MRI

RE: What were your first symptoms?

by karynk on Wed Dec 19, 2012 05:01 AM

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My husband's was a grand mal seizure that lead to dx - but the ER initially said he had heat stroke/dehydration.

RE: What were your first symptoms?

by ravirajagopalan on Wed Dec 19, 2012 05:57 AM

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My wife had a seizure. The only symptom was throwing up the ay before. Apart from that no symptom.

RE: What were your first symptoms?

by StanleyT on Wed Dec 19, 2012 11:50 AM

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On Dec 19, 2012 3:42 AM GeeBeeEm wrote:

Waking up in the ER after having suffered a massive cerebral hemorrhage was my symptom. I had a craniotomy in a small regional hospital to drain the blood, but the useless NS didn't see I had a tumor, and neither did pathology! It was only an MRI 7 weeks later that I learnt I had a tumor, and then the pathology after the next craniotomy confirmed GBM. The symptoms I ignored were the years of really bad headaches.

My wife also had a massive haemorrhage and an emergency crainiotomy - the surgeon did however notice unusual material in the brain and sent it for biopsy. Ten days later we were told that it was a GBM. Yet the day after her craniotomy I asked her surgeon if it was likely to be malignant, "Oh no" he said " I would not expect cancer in this case". As she had low blood pressure and no obvious aneurysm, until they got the biopsy result they suspected beta amyloid desposition - a corrosive abnormal protein which is a precursor to early onset Alzheimers. There are worse things than dying from a GBM....

With hindsight, the first symptom, two months prior to her stroke, was foot drop in her right ankle. No one suspected a brain tumour, she was sent to an orthopaedic surgeon with suspected nerve damage (or possibly Motor Neurone disease? - another worse than GBM way to die, very slowly...). They MRIed her spine (which was fine) not her head! She was due to go for further nerve tests until the haemorrhage intervened. The orthopaedic surgeon said later that in twenty years of practice he had never seen foot drop as a symptom of a brain tumour.

That is the problem, these things are usually symptom free until a late stage and then the symptoms are wayward and varied. One of the least useful phrases in English is "if only.."

RE: What were your first symptoms?

by siblingof on Wed Dec 19, 2012 12:59 PM

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Yeah, my sister had the runaround too-- I forget how many doctors she saw, five, six? Two of them neurologists. I remember one of the neurologists nodding and writing down what I now know were classic brain tumor symptoms on his yellow legal pad. Nobody sent her for a scan. We were saying to each other "Maybe she has a brain tumor? But no, the doctors say no." She also had the trip to the ER with the doc giving her prescription pain killers and telling her to take a week off work and get some risk. ("These hysterical women!" he probably thought.)

RE: What were your first symptoms?

by siblingof on Wed Dec 19, 2012 01:01 PM

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Oops I mean "get some rest" not "get some risk". Yikes.

RE: What were your first symptoms?

by StanleyT on Wed Dec 19, 2012 01:46 PM

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On Dec 19, 2012 1:01 PM siblingof wrote:

Oops I mean "get some rest" not "get some risk". Yikes.

It is really annoying that you can't edit posts on this forum. The pHpBB software on cancerforums.net is far better.

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