One patient with glioblastoma still alive nine years later
by jrohald on Thu Dec 20, 2012 05:54 AM
by bushy on Thu Dec 20, 2012 08:41 AM
I am 27 months after Whipple and still feel a similar tight band of pain as well as pain elsewhere and yet my friend had whipple 12 months ago and has not had the pain I have I am having surgery in the new year for incisional double hernia, myself and the surgeon hope that this fixes my chronic pain, if not I will be going to pain management,so we are all different after this surgery they told me the pain would go in about 8 months it has not changed I have always had lower back pain disc and nerve problem it depends where your lower back pain is it took me over 12 months to gain weight so don't be to impatient we all respond differently to this surgery good luck with your recovery, if the back pain continues have it investigated
by rose108 on Thu Dec 20, 2012 04:21 PM
Let me just start by saying that you have just begun the long healing process. I am 2-l/2 years after whipple and still have issues. Not to say that things don't get better, they just are never the same as they were. In addition to all the work they did inside of you that needs to heal, I found that after the fact I had to deal with the trauma of the ordeal that I went through. Physical pain causes mental anguish and likewise, mental anguish actually can cause physical pain.
I don't think that the doctors prepare us very well for our futures after surgery. You can't mess with mother nature and not expect something to give. Regarding stools, our digestive systems are rearranged and do not function in the same manner. Sometimes food goes too quickly through our system so it does not process the fat (this causes floating stool). I personally do not take creon as I seem to do okay without, but if I understand what others have mentioned it basically helps with gas and other unpleasant side effects of not processing fats.
In addition to your surgeon, you should have a good GI doctor to help with digestive issues and a caring primary doctor that can help with other things that come up.
I think the best thing I did after surgery was to get out and walk. Start slowly and build up to a comfortable amount for you. I found it helped get my muscles back in shape. I pretty much stayed at the same weight after the initial loss for about two years, but now I'm trying to be careful because it is creeping up a little. (I definitely could afford the loss and am enjoying the "new" me).
Incisional hernias are very common after this surgery and can cause discomfort (though not always). You can usually tell if you have one by having a distended stomach as the day goes on. I noticed mine about three months after surgery and it got bigger as time went on. I eventually had it repaired about one year later.
In closing I would say, everyone is different and you've just been through one tough surgery. Be patient and give yourself a break. It is a slow healing process and you should not expect to be back to normal in this short amount of time.
There is a great thread on here called my whipple story by e2momma where she really tells her whole experience with the whipple procedure and the after effects. It was around the beginning of 2010. I have to say that it made me feel like I was not alone in this process.
Prayers for a blessed holiday season and hope this was of some help.
by lucky2Bhere on Thu Dec 20, 2012 08:09 PM
Wow, couldn't say it any better than Rose & bushy. I am 15 months pass whipple. I take enzymes. they help me digest my food, and the horrible gas pains are nearly gone. My oncologist said I didn't need them. He was wrong. My surgeon prescribed them six months after the whipple, as I was still losing weight. Just recently I have been able to gain a few pounds.
The good doctors do not prepare you for the New You. As rose has said........ you are forever different. I still have the tightness you discribe and chrone discomfort. I take pain meds everyday. Just enough to get me thru the day without snarling at my loved ones or my pets. LOL!! Yes, some days my stools still float, some days not. The most important thing is.......... we are survivors!!! Walking is very important, as is a positive attitude! Good Luck, & God Bless You! Hugs, Candy
by happy2balive on Fri Dec 21, 2012 03:11 PM
I would like to speak with you regarding your experiences with your whipple surgery. I am going on 20 months post whipple and are now getting pains of a knawing feeling almost regularly.
Please send me a private e-mail
by jrohald on Thu May 23, 2013 12:03 AM
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