Avastin long term for glioblastoma?

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Avastin long term for glioblastoma?

by jjcsdaisy1 on Thu Dec 20, 2012 05:11 PM

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Has anyone on here been on Avastin long term (over a year?) and if so, how long and with what results?  What symptoms from the long term Avastin use?  Anyone longer than a year on the clinical of Avastin/Tarceva?

Lisa

RE: Avastin long term for glioblastoma?

by jbwgolfer on Thu Dec 20, 2012 05:22 PM

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Ive been on Avastin since February 2012,not quite a year. GBM stage IV first presented 12/14/11, resected 95% Jan 2012, Temodar & Avastin since. I have no side effects from Avastin, fatigue from Temodar. The last 5 MRIs show no tumor growth. I also have the Novocure device. Jim

RE: Avastin long term for glioblastoma?

by siblingof on Fri Dec 21, 2012 10:24 PM

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Yes, my sister has been on it since October of 2011. She has had no longterm ill effects. She progressed on Avastin in May of 2012 and came off it for two months in the summer of 2012 in order to join a clinical trial. Coming off the Avastin caused explosive tumor growth. She then went back on it and the growth slowed down.

RE: Avastin long term for glioblastoma?

by ourVictory on Fri Dec 28, 2012 06:05 PM

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Jim may you please expand your experience with novocure(What, how, when? BOb. Thank you...

RE: Avastin long term for glioblastoma?

by phyllischarles on Sat Dec 29, 2012 02:12 AM

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WHAT IS THE NOVOCURE DEVICE?

RE: Avastin long term for glioblastoma?

by echatlos on Sun Dec 30, 2012 01:16 PM

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Hi Lisa, I've been on Avastin since Jan 2010 - 23 months. It has shrunk my AA Grade III tumors to the point where my Dr is saying he can't make them out on the MRIs. He tells me the Cancer Stem Cells still exist. I've had light to moderate side effects. But I am not sure they are due to Avastin or my original treatment of Radiation/Temodar. Mostly it is stiff muscles and joints in my legs and some dizziness. Nothing debilitating. A minor price to pay for the great results.

RE: Avastin long term for glioblastoma?

by suzanne55 on Wed Jan 02, 2013 04:36 PM

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Lisa,

My husband was on Avastin for 13 months with no side effects.  In all that time, we saw no growth of the existing tumors - they were quite small to begin with. It was the location in the brainstem that made treatment so difficult. All of the doctors we consulted with considered Avastin to be one of the best tools to come along in treating brain cancer. 

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