One patient with glioblastoma still alive nine years later
by bernadettep on Sat Dec 22, 2012 05:19 PM
by jdykllr on Mon Dec 24, 2012 06:16 AM
I would love to hear any success news on Lomustine. My husband will be on it soon along with Avastin. He had recurrance just had his second brain surgery on Dec-7-12
by cpnmorgan on Wed Dec 26, 2012 03:27 PM
My husband is at nearly 3 1/2 years fighing GBM. He has recurrence going on now and started the CCNU 3 weeks ago. It is too soon to tell if it is working. He also started back on Avastin, and did gamma knife a month ago. MRI is slated for sometime in January.
From what I read CCNU was used primarily in GBM patients before Temodar arrived. Now it seems CCNU is used as a last ditch effort for patients with recurrence. Disheartening.
by Bulley1 on Thu Dec 27, 2012 07:48 PM
by bernadettep on Fri Dec 28, 2012 12:57 AM
On Dec 27, 2012 7:48 PM Bulley1 wrote: My husband's NO listed 3 other chemo treatments she can use. CCNU was the last . Thinking there is a reason it's the last.........
Wondering how cpnmorgan's husband is tolerating the CCNU. Headaches? Nausea?
Hope it works, Bernadette!!
On Dec 27, 2012 7:48 PM Bulley1 wrote:
Can you tell me which chemo's those are?
by cpnmorgan on Fri Dec 28, 2012 01:24 AM
He started the CCNU December 3 and just as predicted 3 weeks later really hit a wall. Fatigued. Nausea. Headaches. Bloody nose issues. His platelet count a month ago was 178,000 and yesterday at 81,000. He was able to get his Avastin chemo but they would not give him the CPT-11 due to his below 100k platelet count.
by Bulley1 on Fri Dec 28, 2012 03:18 AM
by Bulley1 on Fri Dec 28, 2012 04:44 AM
by cpnmorgan on Fri Dec 28, 2012 01:51 PM
When you track a discussion, you will get notified by e-mail if anyone else posts a new message on this discussion. Are you sure you want to track this discussion?
If you stop tracking this discussion, you will no longer get notified by e-mail if anyone else posts a new message on this discussion. Are you sure you want to stop tracking this discussion?
If you were considering traveling for cancer treatment, which headline would you find more interesting?
Destination: HOPE. Cancer care that is worth the trip.
Over 84% of our patients travel to our hospital from another state
Neither headline is interesting
We care about your feedback. Let us know how we can improve your CancerCompass experience.